The 20 Best Porencephaly Doctors Near Me in boston, MA

Find the Top Porencephaly Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 42 doctor with experience in Porencephaly near boston, MA. Of these, 36 are Experienced, 5 are Advanced and 1 are Distinguished.

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42 providers found
    Distinguished in Porencephaly
    Neurosurgery
    Distinguished in Porencephaly
    Neurosurgery
    Referral may be required

    Tufts Medical Center Neely Neurosurgery

    800 Washington St Bldg 7TH Fl 7, 
    Boston, MA 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Carl Heilman is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Heilman is rated as a Distinguished provider by MediFind in the treatment of Porencephaly. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Meningioma, Hydrocephalus, Acoustic Neuroma, Endoscopic Transnasal Transsphenoidal Surgery, and Mastoidectomy. Dr. Heilman is currently accepting new patients.

    Advanced in Porencephaly
    Advanced in Porencephaly
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kristopher Kahle is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Kahle is rated as an Advanced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Normal Pressure Hydrocephalus, Vein of Galen Aneurysm, Posterior Fossa Decompression, and Craniectomy. Dr. Kahle is currently accepting new patients.

    Advanced in Porencephaly
    Advanced in Porencephaly
    Referral may be required

    Carlos Fernandez-Del Castillo MD

    15 Parkman St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jonathan Rosand is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Rosand is rated as an Advanced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Cerebral Amyloid Angiopathy, Stroke, Siderosis, Primary Amyloidosis, and Gastrostomy. Dr. Rosand is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Porencephaly
    Advanced in Porencephaly
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Benjamin Warf is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Warf is rated as an Advanced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Myelomeningocele, Syringomyelia, Posterior Fossa Decompression, and Endoscopy. Dr. Warf is currently accepting new patients.

    Advanced in Porencephaly
    Advanced in Porencephaly
    Referral may be required

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Edward Yang is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration. Dr. Yang is currently accepting new patients.

    Advanced in Porencephaly
    Advanced in Porencephaly
    Referral may be required

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Michelle Larosa is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Larosa is rated as an Advanced provider by MediFind in the treatment of Porencephaly. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Bronchogenic Cyst, Gas Bloat Syndrome, Tracheobronchopathia Osteoplastica, Collapsed Lung, and Reconstructive Urology Surgery. Dr. Larosa is currently accepting new patients.

    Experienced in Porencephaly
    Neurosurgery | Pediatrics
    Experienced in Porencephaly
    Neurosurgery | Pediatrics
    Referral may be required

    Boston Pediatric Neurosurgical Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Edward Smith is a Neurosurgery specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Moyamoya Disease, Wyburn-Mason Syndrome, Vein of Galen Aneurysm, and Arteriovenous Malformation. Dr. Smith is board certified in Neurological Surgery. Dr. Smith is currently accepting new patients.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Timothy Smith is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 45 other conditions, according to our data. His clinical expertise encompasses Pituitary Tumor, Brain Tumor, Meningioma, Awake Craniotomy, and Laminectomy. Dr. Smith is board certified in Neurological Surgery. Dr. Smith is currently accepting new patients.

    Experienced in Porencephaly
    Neurosurgery | Radiology
    Experienced in Porencephaly
    Neurosurgery | Radiology
    Referral may be required

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nirav Patel is a Neurosurgery specialist and a Radiologist practicing medicine in Boston, Massachusetts. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Brain Aneurysm, Transmyocardial Revascularization, and Stent Placement. Dr. Patel is board certified in Neurological Surgery. Dr. Patel is currently accepting new patients.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Mooney is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Mooney is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Subdural Hematoma, Brain Tumor, Chronic Subdural Hematoma, Awake Craniotomy, and Laminectomy. Dr. Mooney is board certified in Neurological Surgery. Dr. Mooney is currently accepting new patients.

    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery
    Referral may be required

    Beth Israel Deaconess Medical Center

    110 Francis Street, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Rafael Vega is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Vega is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioblastoma, Posterior Fossa Tumor, Awake Craniotomy, and Craniectomy. Dr. Vega is board certified in American Board Of Neurological Surgery. Dr. Vega is currently accepting new patients.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Beth Israel Deaconess Medical Center

    110 Francis Street, 
    Boston, MA 
     (3.0 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Joshua Aronson is a Neurosurgery provider practicing medicine in Boston, Massachusetts. He has been practicing medicine for over 17 years. Dr. Aronson is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Subdural Hematoma, Parkinson's Disease, Seizures, Deep Brain Stimulation, and Awake Craniotomy. Dr. Aronson is board certified in American Board Of Neurological Surgery. Dr. Aronson is currently accepting new patients.

    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery
    Referral may be required

    Tufts Medical Center Neely Neurosurgery

    800 Washington St Bldg 7TH Fl 7, 
    Boston, MA 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Julian Wu is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Wu is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Meningioma, Acoustic Neuroma, Schwannoma, Gamma Knife Radiosurgery, and Thrombectomy. Dr. Wu is currently accepting new patients.

    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery
    Referral may be required

    Tufts Medical Center Neely Neurosurgery

    800 Washington St Bldg 7TH Fl 7, 
    Boston, MA 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marie Roguski is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Roguski is rated as an Experienced provider by MediFind in the treatment of Porencephaly. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Dandy-Walker Syndrome, Subdural Hematoma, Glioma, Endoscopic Transnasal Transsphenoidal Surgery, and Posterior Fossa Decompression. Dr. Roguski is currently accepting new patients.

    Experienced in Porencephaly
    Radiology | Pediatric Radiology
    Experienced in Porencephaly
    Radiology | Pediatric Radiology
    Referral may be required
    55 Fruit St, Fnd 2, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English

    Sjirk Westra is a Radiologist and a Pediatric Radiologist practicing medicine in Boston, Massachusetts. Dr. Westra is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His clinical expertise encompasses Scoliosis, Periventricular Heterotopia, Porencephaly, and Schizencephaly.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Rudolph Marciano-Iii is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Marciano-Iii is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Spinal Stenosis, Spinal Cord Abscess, Awake Craniotomy, and Microdiscectomy.

    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery
    Referral may be required

    MGH Brain Tumor Center

    55 Fruit St, Yawkey 9E, Room 9026, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Brian Nahed is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Nahed is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Tissue Biopsy. Dr. Nahed is currently accepting new patients.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Carlos Fernandez-Del Castillo MD

    15 Parkman St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    William Butler is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Butler is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Tethered Cord Syndrome, Chiari Malformation, Chiari Malformation Type 1, Posterior Fossa Decompression, and Cordotomy. Dr. Butler is currently accepting new patients.

    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery
    Referral may be required

    Beith Isreal Deaconess Medical Center

    110 Francis St Ste 3B, 
    Boston, MA 
     (2.4 miles away)
    Languages Spoken:
    English

    Justin Moore is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Moore is rated as an Experienced provider by MediFind in the treatment of Porencephaly. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Subdural Hematoma, Chronic Subdural Hematoma, Meningioma, Stent Placement, and Transmyocardial Revascularization.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Beth Israel Deaconess Medical Center

    330 Brookline Ave, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English

    Ghusn Al Sideiri is a Neurosurgery provider practicing medicine in Boston, Massachusetts. Dr. Al Sideiri is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His clinical expertise encompasses Choroid Plexus Cyst, Familial Porencephaly, Arachnoid Cysts, and Ganglioglioma.

    Showing 1-20 of 42

    Last Updated: 09/26/2026

    What is the definition of Porencephaly?

    Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

    When should I see a Porencephaly doctor near boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porencephaly doctor near boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Porencephaly doctors near boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porencephaly doctors near boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porencephaly doctor near boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Porencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porencephaly doctor near boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porencephaly doctors near boston, MA?

    Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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