The 20 Best Porphyria Doctors in Germany

Find the Top Porphyria Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 165 doctor with experience in Porphyria near Germany. Of these, 156 are Experienced, 4 are Advanced, 4 are Distinguished and 1 are Elite.

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165 providers found
    Elite in Porphyria
    Elite in Porphyria
    Referral may be required
    Chemnitz, SN, DE 

    Ulrich Stolzel practices practicing medicine in Chemnitz, Germany. Mr. Stolzel is rated as an Elite expert by MediFind in the treatment of Porphyria. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, Hereditary Coproporphyria, and Liver Transplant.

    Distinguished in Porphyria
    Distinguished in Porphyria
    Referral may be required
    Munich, BY, DE 

    Petro Petrides practices practicing medicine in Munich, Germany. Mr. Petrides is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Variegate Porphyria, and Acute Hepatic Porphyria (AHP).

    Distinguished in Porphyria
    Distinguished in Porphyria
    Referral may be required
    Jena, TH, DE 

    Thomas Stauch practices practicing medicine in Jena, Germany. Mr. Stauch is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Adult Immune Thrombocytopenia, and Immune Thrombocytopenic Purpura (ITP).

    Learn about our expert tiers
    Distinguished in Porphyria
    Distinguished in Porphyria
    Referral may be required
    Chemnitz, SN, DE 

    Ilja Kubisch practices practicing medicine in Chemnitz, Germany. Kubisch is rated as a Distinguished expert by MediFind in the treatment of Porphyria. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, and Hereditary Coproporphyria.

    Distinguished in Porphyria
    Distinguished in Porphyria
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Jorge Frank practices practicing medicine in Goettingen, Germany. Mr. Frank is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Multiple Familial Trichoepithelioma, Variegate Porphyria, Porphyria, and Ectodermal Dysplasias.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Duesseldorf, NW, DE 

    Norbert Neumann practices practicing medicine in Duesseldorf, Germany. Mr. Neumann is rated as an Advanced expert by MediFind in the treatment of Porphyria. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Protoporphyria, Porphyria, Erythropoietic Protoporphyria, and Congenital Erythropoietic Porphyria.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Berlin, BE, DE 

    Eva Wiesenecker-Diehl practices practicing medicine in Berlin, Germany. Ms. Wiesenecker-Diehl is rated as an Advanced expert by MediFind in the treatment of Porphyria. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Variegate Porphyria, and Sepsis.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Berlin, BE, DE 

    Lea Gerischer practices practicing medicine in Berlin, Germany. Ms. Gerischer is rated as an Advanced expert by MediFind in the treatment of Porphyria. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Variegate Porphyria, Acute Intermittent Porphyria, Porphyria, and Thymectomy.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Heidelberg, BW, DE 

    Christine Kaeppel practices practicing medicine in Heidelberg, Germany. Ms. Kaeppel is rated as an Advanced expert by MediFind in the treatment of Porphyria. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Apolipoprotein C2 Deficiency, and Familial Lipoprotein Lipase Deficiency.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Dresden, SN, DE 

    Johannes Schetelig practices practicing medicine in Dresden, Germany. Mr. Schetelig is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Leukemia, Acute Myeloid Leukemia (AML), Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Graft.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Dresden, SN, DE 

    Martin Bornhauser practices practicing medicine in Dresden, Germany. Mr. Bornhauser is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Acute Myeloid Leukemia (AML), Leukemia, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Splenectomy.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Biedersteiner Str. 29, 
    Munich, BY, DE 

    Christian Posch practices practicing medicine in Munich, Germany. Mr. Posch is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Melanoma, Hidradenitis Suppurativa, Merkel Cell Carcinoma, and Pyoderma Gangrenosum.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Union Of National European Pediatric Societies And Association, 
    Berlin, BE, DE 

    Massimo Mantovani-Pettoello practices practicing medicine in Berlin, Germany. Mr. Mantovani-Pettoello is rated as an Experienced expert by MediFind in the treatment of Porphyria. His clinical expertise encompasses Severe Acute Respiratory Syndrome (SARS), Obesity in Children, Congenital Hyperinsulinism, and COVID-19.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required

    BE, Germany

    Berlin, BE, DE 

    Frank Tacke practices practicing medicine in Berlin, Germany. Mr. Tacke is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Cirrhosis, Non-Alcoholic Fatty Liver Disease, Nonalcoholic Steatohepatitis (NASH), Liver Transplant, and Hepato-Pancreato-Biliary Surgery.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Brandenburg An Der Havel, BB, DE 

    Christian Jenssen practices practicing medicine in Brandenburg An Der Havel, Germany. Mr. Jenssen is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Lymphofollicular Hyperplasia, Pancreatic Islet Cell Tumor, Glucagonoma, Endoscopy, and Gastrostomy.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Dr. Von Haunersches Children's Hospital, 
    Munich, BY, DE 

    Berthold Koletzko practices practicing medicine in Munich, Germany. Mr. Koletzko is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Obesity, Obesity in Children, Congenital Hyperinsulinism, and Gestational Diabetes.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Heidelberg, BW, DE 

    Alexander Enk practices practicing medicine in Heidelberg, Germany. Mr. Enk is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Melanoma, Scleromyxedema, Papular Mucinosis, Squamous Cell Skin Carcinoma, and Tissue Biopsy.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Berlin, BE, DE 

    Felix Schoenrath practices practicing medicine in Berlin, Germany. Mr. Schoenrath is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Cardiogenic Shock, Aortic Regurgitation, Heart Transplant, and Lung Transplant.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Meiningen, TH, DE 

    Michael Hocke practices practicing medicine in Meiningen, Germany. Mr. Hocke is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hereditary Pancreatitis, Pancreatic Islet Cell Tumor, Glucagonoma, Endoscopy, and Gastrostomy.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Tuebingen, BW, DE 

    Ingeborg Mann-Kraegeloh practices practicing medicine in Tuebingen, Germany. Ms. Mann-Kraegeloh is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 165

    Last Updated: 11/08/2026

    What is the definition of Porphyria?

    Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

    When should I see a Porphyria doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porphyria doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Porphyria doctor in Germany?

    You can find a Porphyria doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Porphyria doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porphyria doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porphyria doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porphyria doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porphyria doctors in Germany?

    Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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