The 20 Best Porphyria Doctors Near Me

Find the Top Porphyria Experts and Specialists

The 20 Best Porphyria Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 5168 doctor with experience in Porphyria. Of these, 4720 are Experienced, 332 are Advanced, 75 are Distinguished and 25 are Elite.

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5,168 providers found
    Elite in Porphyria

    Dr. Karl Anderson
    Gastroenterology
    Elite in Porphyria

    Dr. Karl Anderson
    Gastroenterology

    University Of Texas Medical Branch

    301 University Blvd, 
    Galveston, TX 
    409-747-0890
    Languages Spoken:
    English
    See accepted insurances

    Karl Anderson is a Gastroenterologist in Galveston, Texas. Dr. Anderson is rated as an Elite provider by MediFind in the treatment of Porphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Hepatitis C, and Hepatitis.

    Elite in Porphyria

    Paolo Ventura
    Elite in Porphyria

    Paolo Ventura
    Modena, IT 

    Paolo Ventura practices in Modena, Italy. Mr. Ventura is rated as an Elite expert by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, and Variegate Porphyria.

    Elite in Porphyria

    Eliane Sardh
    Elite in Porphyria

    Eliane Sardh

    Karolinska Institutet

    Stockholm, AB, SE 

    Eliane Sardh practices in Stockholm, Sweden. Ms. Sardh is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Porphyria, and Variegate Porphyria.

    Learn about our expert tiers
    Elite in Porphyria

    Ulrich Stolzel
    Elite in Porphyria

    Ulrich Stolzel
    Chemnitz, SN, DE 

    Ulrich Stolzel practices in Chemnitz, Germany. Mr. Stolzel is rated as an Elite expert by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, Hereditary Coproporphyria, and Liver Transplant.

    Elite in Porphyria

    Laurent Gouya
    Elite in Porphyria

    Laurent Gouya
    Paris, FR 

    Laurent Gouya practices in Paris, France. Mr. Gouya is rated as an Elite expert by MediFind in the treatment of Porphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Protoporphyria, and Bone Marrow Transplant.

    Elite in Porphyria

    Sverre Sandberg
    Elite in Porphyria

    Sverre Sandberg
    Bergen, NO 

    Sverre Sandberg practices in Bergen, Norway. Mr. Sandberg is rated as an Elite expert by MediFind in the treatment of Porphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, and Porphyria Cutanea Tarda.

    Elite in Porphyria

    Jasmin Barman-Aksozen
    Elite in Porphyria

    Jasmin Barman-Aksozen
    Zurich, ZH, CH 

    Jasmin Barman-Aksozen practices in Zurich, Switzerland. Ms. Barman-Aksozen is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Porphyria, Erythropoietic Protoporphyria, Protoporphyria, and Acute Hepatic Porphyria (AHP).

    Elite in Porphyria

    Pauline S. Harper
    Elite in Porphyria

    Pauline S. Harper

    Karolinska Institutet

    Stockholm, AB, SE 

    Pauline Harper practices in Stockholm, Sweden. Ms. Harper is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Acute Intermittent Porphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Variegate Porphyria.

    Elite in Porphyria

    Bruce M. Wang
    Elite in Porphyria

    Bruce M. Wang
    Floor 2, No. 17-1, Lane 113, Xiamen Street, 
    TPQ, TW 

    Bruce Wang practices in Taiwan. Mr. Wang is rated as an Elite expert by MediFind in the treatment of Porphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Erythropoietic Protoporphyria, and Liver Transplant.

    Elite in Porphyria

    Aasne K. Aarsand
    Elite in Porphyria

    Aasne K. Aarsand
    Bergen, NO 

    Aasne Aarsand practices in Bergen, Norway. Aarsand is rated as an Elite expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, and Porphyria Cutanea Tarda.

    Elite in Porphyria

    Dr. Sioban Keel
    Hematology
    Elite in Porphyria

    Dr. Sioban Keel
    Hematology

    Rachel Loschiavo PA-C

    825 Eastlake Ave E, 
    Seattle, WA 
    206-606-1209
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Sioban Keel is a Hematologist in Seattle, Washington. Dr. Keel is rated as an Elite provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Pure Red Cell Aplasia, Acute Intermittent Porphyria, and Bone Marrow Aspiration.

    Elite in Porphyria

    Elisabeth I. Minder
    Elite in Porphyria

    Elisabeth I. Minder
    Zurich, ZH, CH 

    Elisabeth Minder practices in Zurich, Switzerland. Ms. Minder is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Protoporphyria, Erythropoietic Protoporphyria, and Liver Transplant.

    Elite in Porphyria

    Elena Di Pierro
    Elite in Porphyria

    Elena Di Pierro
    Milan, IT 

    Elena Di Pierro practices in Milan, Italy. Ms. Di Pierro is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Porphyria, Erythropoietic Protoporphyria, Protoporphyria, and Acute Intermittent Porphyria.

    Elite in Porphyria

    Penelope E. Stein
    Elite in Porphyria

    Penelope E. Stein
    London, ENG, GB 

    Penelope Stein practices in London, United Kingdom. Ms. Stein is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Acute Intermittent Porphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Variegate Porphyria.

    Elite in Porphyria

    Janneke G. Langendonk
    Elite in Porphyria

    Janneke G. Langendonk
    Rotterdam, ZH, NL 

    Janneke Langendonk practices in Rotterdam, Netherlands. Langendonk is rated as an Elite expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Porphyria, Acute Intermittent Porphyria, Protoporphyria, and Classic Galactosemia.

    Elite in Porphyria

    Maria D. Cappellini-Domenica
    Elite in Porphyria

    Maria D. Cappellini-Domenica
    Milan, IT 

    Maria Cappellini-Domenica practices in Milan, Italy. Ms. Cappellini-Domenica is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Anemia, Thalassemia, Hemoglobinopathy, Splenectomy, and Bone Marrow Transplant.

    Elite in Porphyria

    Dr. Charles Parker
    Hematology
    Elite in Porphyria

    Dr. Charles Parker
    Hematology

    Huntsman Cancer Institute Bmt

    1950 Circle Of Hope Dr, 
    Salt Lake City, UT 
    801-585-2626
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Charles Parker is a Hematologist in Salt Lake City, Utah. Dr. Parker is rated as an Elite provider by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, Porphyria Cutanea Tarda, and Bone Marrow Aspiration. Dr. Parker is currently accepting new patients.

    Elite in Porphyria

    Francesca Granata
    Elite in Porphyria

    Francesca Granata
    Milan, IT 

    Francesca Granata practices in Milan, Italy. Ms. Granata is rated as an Elite expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.

    Elite in Porphyria

    Antonio Fontanellas
    Elite in Porphyria

    Antonio Fontanellas
    Pamplona, NC, ES 

    Antonio Fontanellas practices in Pamplona, Spain. Mr. Fontanellas is rated as an Elite expert by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Intermittent Porphyria, Porphyria, Type B Insulin Resistance Syndrome, and Urea Cycle Disorders (UCD).

    Elite in Porphyria

    Michael N. Badminton
    Elite in Porphyria

    Michael N. Badminton
    Cardiff, WLS, GB 

    Michael Badminton practices in Cardiff, United Kingdom. Mr. Badminton is rated as an Elite expert by MediFind in the treatment of Porphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Variegate Porphyria, and Hereditary Coproporphyria.

    Showing 1-20 of 5,168

    Last Updated: 02/22/2026

    What is the definition of Porphyria?

    Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

    When should I see a Porphyria doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porphyria doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Porphyria doctor near me?

    You can find a Porphyria doctor in any of the 10 largest U.S. cities by clicking below:

    Porphyria doctor near New York, NY
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    How does MediFind rank Porphyria doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porphyria doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porphyria doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porphyria doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porphyria doctors near me?

    Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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