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    Last Updated: 01/09/2026

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    MediFind found 22 doctor with experience in Porphyria near Baden-Wuerttemberg, DE. Of these, 20 are Experienced, 1 are Advanced and 1 are Distinguished.

    Location
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    22 providers found
      Distinguished in Porphyria
      Distinguished in Porphyria
      Karlsruhe, BW, DE 

      Thomas Stauch practices in Karlsruhe, Germany. Mr. Stauch is rated as a Distinguished expert by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Intermittent Porphyria, Porphyria, Adult Immune Thrombocytopenia, and Immune Thrombocytopenic Purpura (ITP).

      Advanced in Porphyria
      Advanced in Porphyria
      Heidelberg, BW, DE 

      Christine Kaeppel practices in Heidelberg, Germany. Ms. Kaeppel is rated as an Advanced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Acute Intermittent Porphyria, Porphyria, Apolipoprotein C2 Deficiency, and Familial Lipoprotein Lipase Deficiency.

      Alexander H. Enk
      Experienced in Porphyria
      Experienced in Porphyria
      Heidelberg, BW, DE 

      Alexander Enk practices in Heidelberg, Germany. Mr. Enk is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Melanoma, Papular Mucinosis, Scleromyxedema, Tissue Biopsy, and Kidney Transplant.

      Learn about our expert tiers
      Ingeborg Mann-Krageloh
      Experienced in Porphyria
      Experienced in Porphyria
      Tuebingen, BW, DE 

      Ingeborg Mann-Krageloh practices in Tuebingen, Germany. Ms. Mann-Krageloh is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

      Experienced in Porphyria
      Experienced in Porphyria
      Heidelberg, BW, DE 

      Claus Schmitt practices in Heidelberg, Germany. Mr. Schmitt is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Secondary Peritonitis, Peritonitis, Chronic Kidney Disease, Kidney Transplant, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Porphyria
      Experienced in Porphyria
      Heidelberg, BW, DE 

      Manfred Schmidt practices in Heidelberg, Germany. Mr. Schmidt is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Wiskott-Aldrich Syndrome, Congenital Aplastic Anemia, Fanconi Anemia, Hemophilia B, and Colostomy.

      Experienced in Porphyria
      Experienced in Porphyria
      Kusterdingen, BW, DE 

      Irene Farina-Gil practices in Kusterdingen, Germany. Ms. Farina-Gil is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Acute Intermittent Porphyria, Wiskott-Aldrich Syndrome, Porphyria, and Blood Clots.

      Experienced in Porphyria
      Experienced in Porphyria
      Heidelberg, BW, DE 

      Helmut Seitz practices in Heidelberg, Germany. Seitz is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Alcoholic Cirrhosis, Non-Alcoholic Fatty Liver Disease, Cirrhosis, Cerebral Hypoxia, and Liver Transplant.

      Experienced in Porphyria
      Experienced in Porphyria
      Tuebingen, BW, DE 

      Nadja Kaiser practices in Tuebingen, Germany. Ms. Kaiser is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Micrognathia, and Primary Lateral Sclerosis.

      Experienced in Porphyria
      Experienced in Porphyria
      Heidelberg, BW, DE 

      Christiane Cussigh practices in Heidelberg, Germany. Ms. Cussigh is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Variegate Porphyria and Porphyria.

      Experienced in Porphyria
      Experienced in Porphyria
      Heidelberg, BW, DE 

      Raffaele Fronza practices in Heidelberg, Germany. Mr. Fronza is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Intermittent Porphyria, Wiskott-Aldrich Syndrome, Apolipoprotein C2 Deficiency, and Familial Lipoprotein Lipase Deficiency.

      Experienced in Porphyria
      Experienced in Porphyria
      Freiburg, BW, DE 

      Daniel Elsner practices in Freiburg, Germany. Mr. Elsner is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Intermittent Porphyria, Low Sodium Level, and Porphyria.

      Experienced in Porphyria
      Experienced in Porphyria
      Kaiser Joseph Str 262, 
      Freiburg, BW, DE 

      Carlo Cota practices in Freiburg, Germany. Mr. Cota is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Lichen Sclerosus, Vitiligo, Hypomelanotic Disorder, and Familial Atypical Multiple Mole Melanoma Syndrome.

      Experienced in Porphyria
      Experienced in Porphyria
      Ulm, BW, DE 

      Annemarie Hubers practices in Ulm, Germany. Ms. Hubers is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Pseudobulbar Affect, and Lambert-Eaton Syndrome.

      Experienced in Porphyria
      Experienced in Porphyria
      Stuttgart, BW, DE 

      Eli Amson practices in Stuttgart, Germany. Mr. Amson is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Gigantism and Porphyria.

      Experienced in Porphyria
      Experienced in Porphyria
      Tuebingen, BW, DE 

      Janine Magg practices in Tuebingen, Germany. Ms. Magg is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Variegate Porphyria, Huntington Disease, Increased Head Circumference, and Posterior Fossa Tumor.

      Experienced in Porphyria
      Experienced in Porphyria
      Heidelberg, BW, DE 

      Anke Lonsdorf practices in Heidelberg, Germany. Ms. Lonsdorf is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Muir-Torre Syndrome, Squamous Cell Skin Carcinoma, Actinic Keratosis, and Basal Cell Skin Cancer.

      Experienced in Porphyria
      Experienced in Porphyria
      Renningen, BW, DE 

      Jochen Hoffmann practices in Renningen, Germany. Mr. Hoffmann is rated as an Experienced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Pellagra, Papular Mucinosis, Scleromyxedema, and Psoriasis.

      Experienced in Porphyria
      Experienced in Porphyria
      Freiburg, BW, DE 

      Angelika Bilger practices in Freiburg, Germany. Ms. Bilger is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Brain Tumor, Acute Intermittent Porphyria, and Porphyria.

      Experienced in Porphyria
      Experienced in Porphyria
      Freiburg, BW, DE 

      Sarah Grunert practices in Freiburg, Germany. Ms. Grunert is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, Glycogen Storage Disease Type 6, Mitochondrial Trifunctional Protein Deficiency, and Carnitine Palmitoyltransferase 1 Deficiency.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 22

      Last Updated: 01/09/2026

      What is the definition of Porphyria?

      Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

      When should I see a Porphyria doctor in Baden-Wuerttemberg, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porphyria doctor in Baden-Wuerttemberg, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porphyria doctors in Baden-Wuerttemberg, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porphyria doctors in Baden-Wuerttemberg, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porphyria doctor in Baden-Wuerttemberg, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

      Why is it important to get a second opinion from a different Porphyria doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porphyria doctor in Baden-Wuerttemberg, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porphyria doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porphyria doctors in Baden-Wuerttemberg, DE?

      Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porphyria doctor that offers video calls?

      Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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