The 20 Best Porphyria Doctors in Netherlands

Find the Top Porphyria Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 77 doctor with experience in Porphyria near Netherlands. Of these, 69 are Experienced, 4 are Advanced, 3 are Distinguished and 1 are Elite.

Location
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77 providers found
    Elite in Porphyria
    Elite in Porphyria
    Referral may be required
    Rotterdam, ZH, NL 

    Janneke Langendonk practices practicing medicine in Rotterdam, Netherlands. Langendonk is rated as an Elite expert by MediFind in the treatment of Porphyria. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Protoporphyria, and Classic Galactosemia.

    Distinguished in Porphyria
    Distinguished in Porphyria
    Referral may be required
    Assen, DR, NL 

    Niels Jonker practices practicing medicine in Assen, Netherlands. Mr. Jonker is rated as a Distinguished expert by MediFind in the treatment of Porphyria. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Porphyria and Neurotoxicity Syndromes.

    Distinguished in Porphyria
    Distinguished in Porphyria
    Referral may be required
    Rotterdam, ZH, NL 

    Debby Wensink practices practicing medicine in Rotterdam, Netherlands. Ms. Wensink is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.

    Learn about our expert tiers
    Distinguished in Porphyria
    Distinguished in Porphyria
    Referral may be required
    Rotterdam, ZH, NL 

    Haley Wilson practices practicing medicine in Rotterdam, Netherlands. Ms. Wilson is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Protoporphyria, Porphyria, Erythropoietic Protoporphyria, and Hallervorden-Spatz Disease.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Rotterdam, ZH, NL 

    Margreet Wagenmakers practices practicing medicine in Rotterdam, Netherlands. Ms. Wagenmakers is rated as an Advanced expert by MediFind in the treatment of Porphyria. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Gyrate Atrophy of the Choroid and Retina, Erythropoietic Protoporphyria, Protoporphyria, Mucolipidosis Type 4, and Endoscopic Transnasal Transsphenoidal Surgery.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Amsterdam, NH, NL 

    Harald Petry practices practicing medicine in Amsterdam, Netherlands. Mr. Petry is rated as an Advanced expert by MediFind in the treatment of Porphyria. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Acute Intermittent Porphyria, Apolipoprotein C2 Deficiency, Familial Lipoprotein Lipase Deficiency, and Porphyria.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Rotterdam, ZH, NL 

    Edith Friesema practices practicing medicine in Rotterdam, Netherlands. Ms. Friesema is rated as an Advanced expert by MediFind in the treatment of Porphyria. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Allan-Herndon-Dudley Syndrome.

    Advanced in Porphyria
    Advanced in Porphyria
    Referral may be required
    Winterswijk, GE, NL 

    Cas Weykamp practices practicing medicine in Winterswijk, Netherlands. Mr. Weykamp is rated as an Advanced expert by MediFind in the treatment of Porphyria. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hemoglobin C Disease, Porphyria, and Hemoglobin E Disease.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required

    Northwest Clinics

    Alkmaar, NH, NL 

    Piergiuseppe Agostoni practices practicing medicine in Alkmaar, Netherlands. Mr. Agostoni is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Cardiomyopathy, Hyperventilation, Heart Transplant, and Percutaneous Coronary Intervention (PCI).

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Esther Grob-De Bekker practices practicing medicine in Rotterdam, Netherlands. Ms. Grob-De Bekker is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her clinical expertise encompasses Sciatica, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    C. J. Gorter Center For High Field MRI, 
    Leiden, ZH, NL 

    Lucia Bossoni practices practicing medicine in Leiden, Netherlands. Ms. Bossoni is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her clinical expertise encompasses Porphyria and Hallervorden-Spatz Disease.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Leiden, ZH, NL 

    Louise Van Der Weerd practices practicing medicine in Leiden, Netherlands. Ms. Van Der Weerd is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Cerebral Amyloid Angiopathy, Hereditary Cerebral Amyloid Angiopathy, Primary Amyloidosis, and Dementia.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Agnita Boon practices practicing medicine in Rotterdam, Netherlands. Ms. Boon is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Movement Disorders, Hallervorden-Spatz Disease, Parkinson's Disease, and Porphyria.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Zwolle, OV, NL 

    Gerritje Mijnhout practices practicing medicine in Zwolle, Netherlands. Mijnhout is rated as an Experienced expert by MediFind in the treatment of Porphyria. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Porphyria Cutanea Tarda, and Thyroid Nodule.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Amsterdam, NH, NL 

    Marjo Van Der Knaap practices practicing medicine in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Metachromatic Leukodystrophy, and Bone Marrow Transplant.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Groningen, GR, NL 

    Marcel Jonkman practices practicing medicine in Groningen, Netherlands. Mr. Jonkman is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Epidermolysis Bullosa, Junctional Epidermolysis Bullosa, Epidermolysis Bullosa Acquisita, and Dominant Dystrophic Epidermolysis Bullosa.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Groningen, GR, NL 

    Willem Van Ginkel practices practicing medicine in Groningen, Netherlands. Van Ginkel is rated as an Experienced expert by MediFind in the treatment of Porphyria. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Tyrosinemia Type 1, Phenylketonuria (PKU), Porphyria, and Vitamin B12 Deficiency Anemia.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Rotterdam, ZH, NL 

    Nicole Peltenburg practices practicing medicine in Rotterdam, Netherlands. Ms. Peltenburg is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Argininosuccinic Aciduria, Porphyria, Von Gierke Disease, and Erythropoietic Protoporphyria.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Nijmegen, GE, NL 

    Eline Van Der Hagen practices practicing medicine in Nijmegen, Netherlands. Ms. Van Der Hagen is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her clinical expertise encompasses Newborn Jaundice, Transient Familial Hyperbilirubinemia, Porphyria, and Hemolysis.

    Experienced in Porphyria
    Experienced in Porphyria
    Referral may be required
    Nijmegen, GE, NL 

    Coby Laarakkers practices practicing medicine in Nijmegen, Netherlands. Laarakkers is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their clinical expertise encompasses Iron Deficiency Anemia, Hemochromatosis, Anemia, Porphyria, and Splenectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 77

    Last Updated: 09/26/2026

    What is the definition of Porphyria?

    Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

    When should I see a Porphyria doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porphyria doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Porphyria doctor in Netherlands?

    You can find a Porphyria doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Porphyria doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porphyria doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porphyria doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porphyria doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porphyria doctors in Netherlands?

    Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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