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    Last Updated: 01/09/2026

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    MediFind found 91 doctor with experience in Porphyria near Netherlands. Of these, 83 are Experienced, 4 are Advanced, 3 are Distinguished and 1 are Elite.

    Location
    LocationClose
    91 providers found
      Elite in Porphyria
      Elite in Porphyria
      Rotterdam, ZH, NL 

      Janneke Langendonk practices in Rotterdam, Netherlands. Langendonk is rated as an Elite expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Porphyria, Acute Intermittent Porphyria, Protoporphyria, and Classic Galactosemia.

      Distinguished in Porphyria
      Distinguished in Porphyria
      Assen, DR, NL 

      Niels Jonker practices in Assen, Netherlands. Mr. Jonker is rated as a Distinguished expert by MediFind in the treatment of Porphyria. His top areas of expertise are Porphyria and Neurotoxicity Syndromes.

      Distinguished in Porphyria
      Distinguished in Porphyria
      Rotterdam, ZH, NL 

      Hugh Wilson practices in Rotterdam, Netherlands. Mr. Wilson is rated as a Distinguished expert by MediFind in the treatment of Porphyria. His top areas of expertise are Protoporphyria, Porphyria, Erythropoietic Protoporphyria, and Hallervorden-Spatz Disease.

      Learn about our expert tiers
      Distinguished in Porphyria
      Distinguished in Porphyria
      Rotterdam, ZH, NL 

      Debby Wensink practices in Rotterdam, Netherlands. Ms. Wensink is rated as a Distinguished expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Protoporphyria, Erythropoietic Protoporphyria, Porphyria, and Acute Intermittent Porphyria.

      Advanced in Porphyria
      Advanced in Porphyria
      Rotterdam, ZH, NL 

      Margreet Wagenmakers practices in Rotterdam, Netherlands. Ms. Wagenmakers is rated as an Advanced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Protoporphyria, Erythropoietic Protoporphyria, Mucolipidosis Type 4, and Endoscopic Transnasal Transsphenoidal Surgery.

      Advanced in Porphyria
      Advanced in Porphyria
      Amsterdam, NH, NL 

      Harald Petry practices in Amsterdam, Netherlands. Mr. Petry is rated as an Advanced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Intermittent Porphyria, Apolipoprotein C2 Deficiency, Familial Lipoprotein Lipase Deficiency, and Porphyria.

      Advanced in Porphyria
      Advanced in Porphyria
      Rotterdam, ZH, NL 

      Edith Friesema practices in Rotterdam, Netherlands. Ms. Friesema is rated as an Advanced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Acute Intermittent Porphyria, Porphyria, Allan-Herndon-Dudley Syndrome, and Acute Hepatic Porphyria (AHP).

      Advanced in Porphyria
      Advanced in Porphyria
      Winterswijk, GE, NL 

      Cas Weykamp practices in Winterswijk, Netherlands. Mr. Weykamp is rated as an Advanced expert by MediFind in the treatment of Porphyria. His top areas of expertise are Hemoglobin C Disease, Porphyria, and Hemoglobin E Disease.

      Esther W. Grob-De Bekker
      Experienced in Porphyria
      Experienced in Porphyria

      Erasmus MC

      Rotterdam, ZH, NL 

      Esther Grob-De Bekker practices in Rotterdam, Netherlands. Ms. Grob-De Bekker is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Sciatica, Lynch Syndrome, Myotonic Dystrophy, Fasciotomy, and Colonoscopy.

      Experienced in Porphyria
      Experienced in Porphyria
      Groningen, GR, NL 

      Willem Van Ginkel practices in Groningen, Netherlands. Van Ginkel is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Tyrosinemia Type 1, Phenylketonuria (PKU), Porphyria, and Vitamin B12 Deficiency Anemia.

      Experienced in Porphyria
      Experienced in Porphyria
      C. J. Gorter Center For High Field MRI, 
      Leiden, ZH, NL 

      Lucia Bossoni practices in Leiden, Netherlands. Ms. Bossoni is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Porphyria and Hallervorden-Spatz Disease.

      Experienced in Porphyria
      Experienced in Porphyria
      Zwolle, OV, NL 

      Gerritje Mijnhout practices in Zwolle, Netherlands. Mijnhout is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Acute Intermittent Porphyria, Porphyria, Porphyria Cutanea Tarda, and Thyroid Nodule.

      Experienced in Porphyria
      Experienced in Porphyria
      Leiden, ZH, NL 

      Louise Van Der Weerd practices in Leiden, Netherlands. Ms. Van Der Weerd is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Cerebral Amyloid Angiopathy, Hereditary Cerebral Amyloid Angiopathy, Primary Amyloidosis, and Dementia.

      Experienced in Porphyria
      Experienced in Porphyria

      Erasmus MC

      Rotterdam, ZH, NL 

      Agnita Boon practices in Rotterdam, Netherlands. Ms. Boon is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Movement Disorders, Hallervorden-Spatz Disease, Parkinson's Disease, and Supranuclear Ophthalmoplegia.

      Experienced in Porphyria
      Experienced in Porphyria
      Amsterdam, NH, NL 

      Marjo Van Der Knaap practices in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are CACH Syndrome, Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Metachromatic Leukodystrophy, and Bone Marrow Transplant.

      Experienced in Porphyria
      Experienced in Porphyria
      Groningen, GR, NL 

      Marcel Jonkman practices in Groningen, Netherlands. Jonkman is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Epidermolysis Bullosa, Junctional Epidermolysis Bullosa, Epidermolysis Bullosa Acquisita, and Dowling-Meara Epidermolysis Bullosa Simplex.

      Experienced in Porphyria
      Experienced in Porphyria
      Nijmegen, GE, NL 

      Dorine Swinkels practices in Nijmegen, Netherlands. Ms. Swinkels is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her top areas of expertise are Iron Deficiency Anemia, Hemochromatosis, Anemia, Bone Marrow Aspiration, and Splenectomy.

      Experienced in Porphyria
      Experienced in Porphyria
      Leiden, ZH, NL 

      Marjolein Bulk practices in Leiden, Netherlands. Bulk is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Hereditary Cerebral Amyloid Angiopathy, Dementia, Alzheimer's Disease, and Cerebral Amyloid Angiopathy.

      Experienced in Porphyria
      Experienced in Porphyria
      Groningen, GR, NL 

      Francjan Van Spronsen-Spronsen practices in Groningen, Netherlands. Van Spronsen-Spronsen is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Phenylketonuria (PKU), Tyrosinemia Type 1, Maternal Hyperphenylalaninemia, and Molybdenum Cofactor Deficiency (MoCD).

      Experienced in Porphyria
      Experienced in Porphyria
      Nijmegen, GE, NL 

      Coby Laarakkers practices in Nijmegen, Netherlands. Laarakkers is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their top areas of expertise are Iron Deficiency Anemia, Hemochromatosis, Anemia, Porphyria, and Splenectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 91

      Last Updated: 01/09/2026

      What is the definition of Porphyria?

      Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

      When should I see a Porphyria doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porphyria doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porphyria doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porphyria doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porphyria doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

      Why is it important to get a second opinion from a different Porphyria doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porphyria doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porphyria doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porphyria doctors in Netherlands?

      Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porphyria doctor that offers video calls?

      Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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