The 20 Best Porphyria Doctors Near Me in North Holland, NL

Find the Top Porphyria Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 37 doctor with experience in Porphyria near North Holland, NL. Of these, 32 are Experienced, 2 are Advanced, 2 are Distinguished and 1 are Elite.

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37 providers found
    Elite in Porphyria

    Janneke G. Langendonk
    Elite in Porphyria

    Janneke G. Langendonk
    Referral may be required
    Rotterdam, ZH, NL 

    Janneke Langendonk practices practicing medicine in Rotterdam, Netherlands. Langendonk is rated as an Elite expert by MediFind in the treatment of Porphyria. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Classic Galactosemia, and Protoporphyria.

    Distinguished in Porphyria

    Haley P. Wilson
    Distinguished in Porphyria

    Haley P. Wilson
    Referral may be required
    Rotterdam, ZH, NL 

    Haley Wilson practices practicing medicine in Rotterdam, Netherlands. Ms. Wilson is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Protoporphyria, Erythropoietic Protoporphyria, and Hallervorden-Spatz Disease.

    Distinguished in Porphyria

    Debby Wensink
    Distinguished in Porphyria

    Debby Wensink
    Referral may be required
    Rotterdam, ZH, NL 

    Debby Wensink practices practicing medicine in Rotterdam, Netherlands. Ms. Wensink is rated as a Distinguished expert by MediFind in the treatment of Porphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.

    Learn about our expert tiers
    Advanced in Porphyria

    Margreet M. Wagenmakers
    Advanced in Porphyria

    Margreet M. Wagenmakers
    Referral may be required
    Rotterdam, ZH, NL 

    Margreet Wagenmakers practices practicing medicine in Rotterdam, Netherlands. Ms. Wagenmakers is rated as an Advanced expert by MediFind in the treatment of Porphyria. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Gyrate Atrophy of the Choroid and Retina, Erythropoietic Protoporphyria, Protoporphyria, Mucolipidosis Type 4, and Endoscopic Transnasal Transsphenoidal Surgery.

    Advanced in Porphyria

    Edith H. Friesema
    Advanced in Porphyria

    Edith H. Friesema
    Referral may be required
    Rotterdam, ZH, NL 

    Edith Friesema practices practicing medicine in Rotterdam, Netherlands. Ms. Friesema is rated as an Advanced expert by MediFind in the treatment of Porphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Allan-Herndon-Dudley Syndrome, and Acute Hepatic Porphyria (AHP).

    Experienced in Porphyria

    Esther W. Grob-De Bekker
    Experienced in Porphyria

    Esther W. Grob-De Bekker
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Esther Grob-De Bekker practices practicing medicine in Rotterdam, Netherlands. Ms. Grob-De Bekker is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her clinical expertise encompasses Sciatica, Myotonic Dystrophy Type 2, Paramyotonia Congenita, Myotonic Dystrophy, and Colonoscopy.

    Experienced in Porphyria

    Lucia Bossoni
    Experienced in Porphyria

    Lucia Bossoni
    Referral may be required
    C. J. Gorter Center For High Field MRI, 
    Leiden, ZH, NL 

    Lucia Bossoni practices practicing medicine in Leiden, Netherlands. Ms. Bossoni is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her clinical expertise encompasses Porphyria and Hallervorden-Spatz Disease.

    Experienced in Porphyria

    Louise E. Van Der Weerd-Van Der Meeren
    Experienced in Porphyria

    Louise E. Van Der Weerd-Van Der Meeren
    Referral may be required
    Leiden, ZH, NL 

    Louise Van Der Weerd-Van Der Meeren practices practicing medicine in Leiden, Netherlands. Ms. Van Der Weerd-Van Der Meeren is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Hereditary Cerebral Amyloid Angiopathy, Cerebral Amyloid Angiopathy, Dementia, and Primary Amyloidosis.

    Experienced in Porphyria

    Agnita W. Boon
    Experienced in Porphyria

    Agnita W. Boon
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Agnita Boon practices practicing medicine in Rotterdam, Netherlands. Ms. Boon is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Movement Disorders, Hallervorden-Spatz Disease, Parkinson's Disease, and Porphyria.

    Experienced in Porphyria

    Albertina E. Wagenmakers
    Experienced in Porphyria

    Albertina E. Wagenmakers
    Referral may be required
    Rotterdam, ZH, NL 

    Albertina Wagenmakers practices practicing medicine in Rotterdam, Netherlands. Wagenmakers is rated as an Experienced expert by MediFind in the treatment of Porphyria. Their clinical expertise encompasses Acute Intermittent Porphyria, Cushing's syndrome, Porphyria Cutanea Tarda, and Acromegaloid Facial Appearance Syndrome.

    Experienced in Porphyria

    Marjolein Bulk
    Experienced in Porphyria

    Marjolein Bulk
    Referral may be required
    Rotterdam, ZH, NL 

    Marjolein Bulk practices practicing medicine in Rotterdam, Netherlands. Bulk is rated as an Experienced expert by MediFind in the treatment of Porphyria. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Hereditary Cerebral Amyloid Angiopathy, Dementia, Alzheimer's Disease, and Cerebral Amyloid Angiopathy.

    Experienced in Porphyria

    Fredj Ben Bdira
    Experienced in Porphyria

    Fredj Ben Bdira
    Referral may be required
    Leiden, ZH, NL 

    Fredj Ben Bdira practices practicing medicine in Leiden, Netherlands. Ben Bdira is rated as an Experienced expert by MediFind in the treatment of Porphyria. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Farber Lipogranulomatosis, Congenital Erythropoietic Porphyria, Gaucher Disease, and Porphyria.

    Experienced in Porphyria

    Eric J. Sijbrands
    Experienced in Porphyria

    Eric J. Sijbrands
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Eric Sijbrands practices practicing medicine in Rotterdam, Netherlands. Mr. Sijbrands is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Familial Hypercholesterolemia, High Cholesterol, Heterozygous Familial Hypercholesterolemia (HeFH), and Defective Apolipoprotein B-100.

    Experienced in Porphyria

    Felix M. De Rooij
    Experienced in Porphyria

    Felix M. De Rooij
    Referral may be required
    Rotterdam, ZH, NL 

    Felix De Rooij practices practicing medicine in Rotterdam, Netherlands. Mr. De Rooij is rated as an Experienced expert by MediFind in the treatment of Porphyria. His clinical expertise encompasses Porphyria, Erythropoietic Protoporphyria, Maturity Onset Diabetes of the Young, and Protoporphyria.

    Experienced in Porphyria

    Maaike Biewenga
    Experienced in Porphyria

    Maaike Biewenga
    Referral may be required
    Leiden, ZH, NL 

    Maaike Biewenga practices practicing medicine in Leiden, Netherlands. Ms. Biewenga is rated as an Experienced expert by MediFind in the treatment of Porphyria. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Autoimmune Hepatitis, Hepatitis, Sclerosing Cholangitis, Cholangitis, and Liver Transplant.

    Experienced in Porphyria

    Piotr A. Wielopolski
    Experienced in Porphyria

    Piotr A. Wielopolski
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Piotr Wielopolski practices practicing medicine in Rotterdam, Netherlands. Mr. Wielopolski is rated as an Experienced expert by MediFind in the treatment of Porphyria. His clinical expertise encompasses Tracheobronchomalacia, Pompe Disease, Cervical Cancer, Osgood-Schlatter Disease, and Osteotomy.

    Experienced in Porphyria

    Martina Huber
    Experienced in Porphyria

    Martina Huber
    Referral may be required
    Leiden, ZH, NL 

    Martina Huber practices practicing medicine in Leiden, Netherlands. Ms. Huber is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her clinical expertise encompasses Porphyria.

    Experienced in Porphyria

    Sandra Coenen
    Experienced in Porphyria

    Sandra Coenen
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Sandra Coenen practices practicing medicine in Rotterdam, Netherlands. Ms. Coenen is rated as an Experienced expert by MediFind in the treatment of Porphyria. Her clinical expertise encompasses Liver Failure, Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL), Congenital Cardiovascular Shunt, Erythropoietic Protoporphyria, and Liver Transplant.

    Experienced in Porphyria

    Stephan C. Huijbregts
    Experienced in Porphyria

    Stephan C. Huijbregts
    Referral may be required
    Leiden, ZH, NL 

    Stephan Huijbregts practices practicing medicine in Leiden, Netherlands. Mr. Huijbregts is rated as an Experienced expert by MediFind in the treatment of Porphyria. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Phenylketonuria (PKU), Tyrosinemia Type 1, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

    Experienced in Porphyria

    Lydiane Hirschler
    Experienced in Porphyria

    Lydiane Hirschler
    Referral may be required
    Leiden, ZH, NL 

    Lydiane Hirschler practices practicing medicine in Leiden, Netherlands. Hirschler is rated as an Experienced expert by MediFind in the treatment of Porphyria. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Cerebral Amyloid Angiopathy, Primary Amyloidosis, Hereditary Cerebral Amyloid Angiopathy, and Dementia.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 37

    Last Updated: 06/30/2026

    What is the definition of Porphyria?

    Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

    When should I see a Porphyria doctor in North Holland, NL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porphyria doctor in North Holland, NL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Porphyria doctor in North Holland, NL?

    You can find a Porphyria doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Porphyria doctors in North Holland, NL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porphyria doctors in North Holland, NL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porphyria doctor in North Holland, NL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porphyria doctor in North Holland, NL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porphyria doctors in North Holland, NL?

    Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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