The 20 Best Porphyria Doctors Near Me in Missouri, US

Find the Top Porphyria Experts and Specialists

The 20 Best Porphyria Doctors in Missouri, US

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 33 doctor with experience in Porphyria near Missouri, US. Of these, 27 are Experienced and 4 are Advanced.

Location
LocationClose
33 providers found
    Robert E. Pluenneke
    Advanced in Porphyria
    Advanced in Porphyria

    The University Of Kansas Cancer Center

    8700 North Green Hills Road, 
    Kansas City, MO 
    Experience:
    36+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Pluenneke is a Hematologist in Kansas City, Missouri. Dr. Pluenneke has been practicing medicine for over 36 years and is rated as an Advanced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Testicular Yolk Sac Tumor, Ovarian Carcinosarcoma, Virilizing Ovarian Tumor, Endoscopy, and Bone Marrow Aspiration. Dr. Pluenneke is currently accepting new patients.

    Experienced in Porphyria
    Dermatology
    Experienced in Porphyria
    Dermatology

    Office

    8656 N Ambassador Dr, 
    Kansas City, MO 
    Languages Spoken:
    English

    Emily Ochoa is a Dermatologist in Kansas City, Missouri. Dr. Ochoa is rated as an Experienced provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Actinic Keratosis, Melanoma, Autosomal Recessive Hypotrichosis, and Alopecia Areata.

    Experienced in Porphyria
    Dermatology
    Experienced in Porphyria
    Dermatology

    KC Care Health Center

    3515 Broadway Blvd, 
    Kansas City, MO 
    Languages Spoken:
    English

    John Hall is a Dermatologist in Kansas City, Missouri. Dr. Hall is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Pyoderma Gangrenosum, Actinic Keratosis, Psoriasis, and Warts.

    Learn about our expert tiers
    Experienced in Porphyria
    Dermatology
    Experienced in Porphyria
    Dermatology

    Office

    1010 Carondelet Dr Ste 125, 
    Kansas City, MO 
    Languages Spoken:
    English

    John Rupp is a Dermatologist in Kansas City, Missouri. Dr. Rupp is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Seborrheic Keratosis, Actinic Keratosis, Rosacea, and Warts.

    Advanced in Porphyria
    Advanced in Porphyria

    Sarah Cannon Cancer Institute At Lee’s Summit Medical Center

    2100 SE Blue Pkwy Ste 165, 
    Lees Summit, MO 
    Languages Spoken:
    English

    Syed Karim is an Oncologist in Lees Summit, Missouri. Dr. Karim is rated as an Advanced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Anemia, Leukocytosis, Familial Colorectal Cancer, and Colorectal Cancer.

    Advanced in Porphyria
    Hematology
    Advanced in Porphyria
    Hematology

    St Lukes Hospital Of Kansas City

    4401 Wornall Rd, 
    Kansas City, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Furha Iram is a Hematologist in Kansas City, Missouri. Dr. Iram is rated as an Advanced provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Hemolytic-Uremic Syndrome, Atypical Hemolytic Uremic Syndrome (aHUS), Immune Thrombocytopenic Purpura (ITP), Adult Immune Thrombocytopenia, and Bone Marrow Aspiration.

    Advanced in Porphyria
    Family Medicine
    Advanced in Porphyria
    Family Medicine

    Barnes Health LLC

    2101 Corona Rd Ste 102, 
    Columbia, MO 
    Languages Spoken:
    English

    James Direnna is a primary care provider, practicing in Family Medicine in Columbia, Missouri. Dr. Direnna is rated as an Advanced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, and Pneumonia.

    Ajay Jain
    Pediatric Gastroenterology | Pediatrics
    Pediatric Gastroenterology | Pediatrics

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Ajay Jain treats pediatric patients with serious digestive diseases, including liver disease, intestinal failure, and conditions requiring total parenteral nutrition. He is actively involved in research on the topics of gastric bypass, nonalcoholic steatohepatitis (NASH), total parenteral nutrition, liver transplantation, and more. Dr. Jain is a professor of pediatrics in the Division of Gastroenterology at Saint Louis University School of Medicine. He is Medical Director for Pediatric Liver Transplantation and Chairman of the Nutritional Advisory Committee at SSM Health Cardinal Glennon Children's Hospital. Dr. Jain is the president of the American Society for Parenteral and Enteral Nutrition and a member of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. He is active with the United Network for Organ Sharing (UNOS)/Organ Procurement and Transplantation Network. See Dr. Jain's academic publications. Dr. Jain is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Biliary Atresia, Colitis, Portal Hypertension, and Short Bowel Syndrome.

    Alex Befeler
    Gastroenterology | Transplant Surgery
    Gastroenterology | Transplant Surgery

    SLUCare Physician Group

    1225 S. Grand Blvd., Second Level, 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Alex Befeler treats patients for autoimmune liver disease, liver cancer, complications of cirrhosis, and hepatocellular carcinoma. He sees patients before and after liver transplantation and serves as the medical director of liver transplantation. In his practice, he uses the latest treatment options, including sorafenib therapy for patients with hepatocellular carcinoma. His research interests include liver cancer markers and treatment, and hepatitis C treatment before and after liver transplantation. Dr. Befeler is a professor in the Department of Internal Medicine, Division of Gastroenterology and Hepatology, at Saint Louis University School of Medicine. Dr. Befeler is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Nonalcoholic Steatohepatitis (NASH), Hepatitis, Visceromegaly, Endoscopy, and Liver Transplant.

    Experienced in Porphyria
    Internal Medicine
    Experienced in Porphyria
    Internal Medicine

    Saint Francis Clinic Poplar Bluff

    225 Physicians Park Ste 400, 
    Poplar Bluff, MO 
    Languages Spoken:
    English

    Stephen Nagy is a primary care provider, practicing in Internal Medicine in Poplar Bluff, Missouri. Dr. Nagy is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Type 2 Diabetes (T2D).

    Experienced in Porphyria
    Experienced in Porphyria

    Premier Pain Consultants

    607 S New Ballas Rd Ste 3300, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Christina Min is a Hematologist in Saint Louis, Missouri. Dr. Min is rated as an Experienced provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Familial Colorectal Cancer, Breast Cancer, Paget Disease of the Breast, and Lynch Syndrome.

    Experienced in Porphyria
    Experienced in Porphyria

    Coury Spine LLC

    226 S Woods Mill Rd Ste 35W, 
    Chesterfield, MO 
    Languages Spoken:
    English

    Barbra Horn is an Oncologist in Chesterfield, Missouri. Dr. Horn is rated as an Experienced provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Variegate Porphyria, Hereditary Coproporphyria, Porphyria, and Primary Lymphoma of the Brain.

    Experienced in Porphyria
    Internal Medicine
    Experienced in Porphyria
    Internal Medicine

    Office

    4921 Parkview Pl Ste 7B, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Morey Blinder is an Internal Medicine provider in Saint Louis, Missouri. Dr. Blinder is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Sickle Cell Disease, Hemoglobin SC Disease, Anaplastic Large Cell Lymphoma, Acute Myeloblastic Leukemia without Maturation, and Thrombectomy.

    Experienced in Porphyria
    Family Medicine
    Experienced in Porphyria
    Family Medicine

    Madison Medical Center

    611 W Main St, 
    Fredericktown, MO 
    Languages Spoken:
    English

    Eric Davis is a primary care provider, practicing in Family Medicine in Fredericktown, Missouri. Dr. Davis is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are End-Stage Renal Disease (ESRD), Headache, Chronic Cough, and Maturity Onset Diabetes of the Young.

    Experienced in Porphyria
    Family Medicine
    Experienced in Porphyria
    Family Medicine

    Mosaic Life Care At Cameron-Family Care

    923 N Walnut St, 
    Cameron, MO 
    Experience:
    17+ years
    Languages Spoken:
    English

    Lindsay Rice is a primary care provider, practicing in Family Medicine in Cameron, Missouri. Dr. Rice has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Coronary Heart Disease, Lung Metastases, and Maturity Onset Diabetes of the Young.

    Experienced in Porphyria
    Hospital Medicine
    Experienced in Porphyria
    Hospital Medicine

    Liberty Hospital

    2525 Glenn Hendren Dr, 
    Liberty, MO 
    Languages Spoken:
    English

    Julie Marx is a primary care provider, practicing in Hospital Medicine in Liberty, Missouri. Dr. Marx is rated as an Experienced provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Pyogenic Liver Abscess, Lung Metastases, Heart Attack, Hip Replacement, and Bone Graft.

    Experienced in Porphyria
    Hematology
    Experienced in Porphyria
    Hematology

    Missouri Baptist Medical Center

    3015 N Ballas Rd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Atif Shafqat is a Hematologist in Saint Louis, Missouri. Dr. Shafqat is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Paget Disease of the Breast, Inflammatory Breast Cancer, and Small Cell Lung Cancer (SCLC).

    Experienced in Porphyria
    Experienced in Porphyria

    Central Care PA

    1501 N Oakland Ave, 
    Bolivar, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Penelope Harris is a Hematologist in Bolivar, Missouri. Dr. Harris is rated as an Experienced provider by MediFind in the treatment of Porphyria. Her top areas of expertise are Breast Cancer, Familial Colorectal Cancer, Paget Disease of the Breast, and Smoldering Multiple Myeloma.

    Experienced in Porphyria
    Experienced in Porphyria

    Office

    1475 Kisker Rd Ste 180, 
    Saint Charles, MO 
    Languages Spoken:
    English

    Robert Siegel is a Hematologist in Saint Charles, Missouri. Dr. Siegel is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Lung Cancer, Neuroendocrine Tumor, Breast Cancer, Gastrointestinal Stromal Tumor, and Bone Marrow Aspiration.

    Experienced in Porphyria
    Hematology | Oncology
    Experienced in Porphyria
    Hematology | Oncology

    Office

    1060 W 10th St, 
    Rolla, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Mark Pajeau is a Hematologist and an Oncologist in Rolla, Missouri. Dr. Pajeau is rated as an Experienced provider by MediFind in the treatment of Porphyria. His top areas of expertise are Small Cell Lung Cancer (SCLC), EGFR Positive Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), and Large-Cell Lung Carcinoma.

    Showing 1-20 of 33

    Last Updated: 02/22/2026

    What is the definition of Porphyria?

    Porphyrias are a group of rare disorders in which an important part of hemoglobin, called heme, is not made properly. Hemoglobin is a protein in red blood cells that carries oxygen. Heme is also found in myoglobin, a protein found in certain muscles.

    When should I see a Porphyria doctor in Missouri, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porphyria doctor in Missouri, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Porphyria doctors in Missouri, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porphyria doctors in Missouri, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porphyria doctor in Missouri, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porphyria doctor in Missouri, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porphyria doctors in Missouri, US?

    Look for the filter feature on the left side of the Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Porphyria Doctors by city