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    Last Updated: 03/06/2025

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    MediFind found 19 doctor with experience in Potocki-Lupski Syndrome. Of these, 13 are Experienced, 4 are Elite, 1 are Advanced and 1 are Distinguished.

    Location:
    19 providers found
    Elite in Potocki-Lupski Syndrome
    Medical Genetics
    Elite in Potocki-Lupski Syndrome
    Medical Genetics
    1 Baylor Plz # Bcm225, 
    Houston, TX 
     (936.9 mi)
    Languages Spoken:
    English

    Sarah Elsea is a Medical Genetics provider in Houston, Texas. Dr. Elsea and is rated as an Elite provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Potocki-Lupski Syndrome, Hypotonia, and Urea Cycle Disorders (UCD).

    Elite in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Elite in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    6701 Fannin St, Suite Cc 1560, 
    Houston, TX 
     (937.3 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Lorraine Potocki is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Potocki and is rated as an Elite provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Potocki-Lupski Syndrome, Smith-Magenis Syndrome, Hypotonia, and Trisomy 17 Mosaicism. Dr. Potocki is currently accepting new patients.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Elite in Potocki-Lupski Syndrome
    Pediatrics | Medical Genetics
    Elite in Potocki-Lupski Syndrome
    Pediatrics | Medical Genetics
    6701 Fannin St, 
    Houston, TX 
     (937.3 mi)
    Languages Spoken:
    English
    Accepting New Patients

    James Lupski is a Pediatrics specialist and a Medical Genetics provider in Houston, Texas. Dr. Lupski and is rated as an Elite provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are Potocki-Lupski Syndrome, Hypotonia, Smith-Magenis Syndrome, and Microcephaly. Dr. Lupski is currently accepting new patients.

    Learn about our expert tiers
    Elite in Potocki-Lupski Syndrome
    Medical Genetics
    Elite in Potocki-Lupski Syndrome
    Medical Genetics
    4800 Sand Point Way Ne, 
    Seattle, WA 
     (2421.4 mi)
    Languages Spoken:
    English

    Bo Yuan is a Medical Genetics provider in Seattle, Washington. Dr. Yuan and is rated as an Elite provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are Potocki-Lupski Syndrome, Smith-Magenis Syndrome, Trisomy 17 Mosaicism, and Mosaicism.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    25 Michigan St Ne, Suite 2000, 
    Grand Rapids, MI 
     (769.8 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Laurie Seaver is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Seaver and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are 1p36 Deletion Syndrome, Hypotonia, Cardiofaciocutaneous Syndrome, and Smith-Magenis Syndrome. Dr. Seaver is currently accepting new patients.

    Distinguished in Potocki-Lupski Syndrome
    Distinguished in Potocki-Lupski Syndrome
    1365 Clifton Rd Ne, Building B Suite 2200, 
    Atlanta, GA 
     (262.9 mi)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Juanita Neira-Fresneda is a Medical Genetics provider in Atlanta, Georgia. Dr. Neira-Fresneda and is rated as a Distinguished provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Potocki-Lupski Syndrome, Smith-Magenis Syndrome, Trisomy 17 Mosaicism, and Phenylketonuria (PKU). Dr. Neira-Fresneda is currently accepting new patients.

    Advanced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Advanced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics

    The General Hospital Corporation

    55 Fruit St, 
    Boston, MA 
     (819.7 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Paula Goldenberg is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Goldenberg and is rated as an Advanced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are DiGeorge Syndrome, Trisomy 17 Mosaicism, Potocki-Lupski Syndrome, and Immune Defect due to Absence of Thymus. Dr. Goldenberg is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics

    Florida Clinical Practice Association Inc

    2001 Sw 13th St, 
    Gainesville, FL 
     (260.0 mi)
    Languages Spoken:
    English

    Klaas Wierenga is a Medical Genetics specialist and a Pediatrics provider in Gainesville, Florida. Dr. Wierenga and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are Hypotonia, Smith-Magenis Syndrome, Ehlers-Danlos Syndrome (EDS), and Potocki-Lupski Syndrome.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics

    University Of Miami

    4800 Ne 20th Terrace, 201 Uhealth Cardiology At Ft Lauderdale, 
    Fort Lauderdale, FL 
     (455.9 mi)
    Languages Spoken:
    English, Hebrew, Portuguese, Spanish
    Accepting New Patients
    Offers Telehealth

    Deborah Barbouth is a Medical Genetics specialist and a Pediatrics provider in Fort Lauderdale, Florida. Dr. Barbouth and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Gaucher Disease Type 1, Gaucher Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Splenectomy. Dr. Barbouth is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics
    5131 Dudley Ln, 
    Bethesda, MD 
     (458.6 mi)
    Languages Spoken:
    English

    Maximilian Muenke is a Medical Genetics provider in Bethesda, Maryland. Dr. Muenke and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are Holoprosencephaly, Craniosynostosis, Turner Syndrome, and Micrognathia.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    304 Putnam St, 
    Marietta, OH 
     (466.1 mi)
    Languages Spoken:
    English, German
    Accepting New Patients

    Kim Mcbride is a Medical Genetics specialist and a Pediatrics provider in Marietta, Ohio. Dr. Mcbride and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Mcbride is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Genetics, 
    Philadelphia, PA 
     (560.6 mi)
    Languages Spoken:
    English

    Jeffrey Ming is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Ming and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are Holoprosencephaly, Potocki-Lupski Syndrome, Kabuki Syndrome, and Klinefelter Syndrome.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics

    University Family Physicians, Inc.

    1520 N Senate Ave, Iu Health Physicians, 
    Indianapolis, IN 
     (595.2 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Brett Graham is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Graham and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are MELAS Syndrome, Mitochondrial Complex 1 Deficiency, Hypotonia, and Smith-Magenis Syndrome. Dr. Graham is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics
    622 W 168th St Ph 17, 
    New York, NY 
     (647.3 mi)
    Languages Spoken:
    English

    Jennifer Posey is a Medical Genetics provider in New York, New York. Dr. Posey and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Hypotonia, Microcephaly, Achalasia Microcephaly Syndrome, and Cortical Dysplasia.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    6701 Fannin St, Suite 1560, 
    Houston, TX 
     (937.3 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Lindsay Burrage is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Burrage and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Urea Cycle Disorders (UCD), Hypotonia, Argininosuccinic Aciduria, and Microcephaly. Dr. Burrage is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Pediatrics | Medical Genetics
    Experienced in Potocki-Lupski Syndrome
    Pediatrics | Medical Genetics
    6701 Fannin St, 
    Houston, TX 
     (937.3 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Christine Eng is a Pediatrics specialist and a Medical Genetics provider in Houston, Texas. Dr. Eng and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Hypotonia, Gaucher Disease Type 1, Micrognathia, and Gaucher Disease. Dr. Eng is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    6701 Fannin St, 
    Houston, TX 
     (937.3 mi)
    Languages Spoken:
    English, Urdu
    Accepting New Patients

    Seema Lalani is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Lalani and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Hypotonia, VACTERL Association, GABA-Transaminase Deficiency, and 1p36 Deletion Syndrome. Dr. Lalani is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Pediatrics | Medical Genetics
    Experienced in Potocki-Lupski Syndrome
    Pediatrics | Medical Genetics
    6701 Fannin St, 
    Houston, TX 
     (937.3 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Daryl Scott is a Pediatrics specialist and a Medical Genetics provider in Houston, Texas. Dr. Scott and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. His top areas of expertise are 1p36 Deletion Syndrome, Hernia, Coffin-Siris Syndrome, and Hypotonia. Dr. Scott is currently accepting new patients.

    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    Experienced in Potocki-Lupski Syndrome
    Medical Genetics | Pediatrics
    333 N. Santa Rosa St., 
    San Antonio, TX 
     (1121.0 mi)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Elizabeth Roeder is a Medical Genetics specialist and a Pediatrics provider in San Antonio, Texas. Dr. Roeder and is rated as an Experienced provider by MediFind in the treatment of Potocki-Lupski Syndrome. Her top areas of expertise are Micrognathia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Cornelia De Lange Syndrome, and Smith-Magenis Syndrome. Dr. Roeder is currently accepting new patients.

    Showing 1-19 of 19

    Last Updated: 03/06/2025

    What is the definition of Potocki-Lupski Syndrome?

    Potocki-Lupski syndrome is a condition that results from having an extra copy (duplication) of a small piece of chromosome 17 in each cell. The duplication occurs on the short (p) arm of the chromosome at a position designated p11.2. This condition is also known as 17p11.2 duplication syndrome.

    When should I see a Potocki-Lupski Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Potocki-Lupski Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Potocki-Lupski Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Potocki-Lupski Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Potocki-Lupski Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Potocki-Lupski Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Potocki-Lupski Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Potocki-Lupski Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Potocki-Lupski Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Potocki-Lupski Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Potocki-Lupski Syndrome doctors near me?

    Look for the filter feature on the left side of the Potocki-Lupski Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Potocki-Lupski Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Potocki-Lupski Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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