Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
Status: Recruiting
Location: See all (11) locations...
Study Type: Observational
SUMMARY
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:
• Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
• Receiving care at a clinical center that uses Epic as its EHR.
• Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
Locations
United States
California
University of California, Irvine
RECRUITING
Irvine
Stanford University
RECRUITING
Palo Alto
California Pacific Medical Center
RECRUITING
San Francisco
Florida
University of Miami
RECRUITING
Miami
Kansas
University of Kansas Medical Center
RECRUITING
Kansas City
Minnesota
Hennepin County Medical Center
RECRUITING
Minneapolis
North Carolina
Duke University
RECRUITING
Durham
Wake Forest University
RECRUITING
Winston-salem
New York
Columbia University
RECRUITING
New York
Oregon
Providence Health & Services
RECRUITING
Portland
Texas
University of Texas San Antonio Health Science Center
RECRUITING
San Antonio
Contact Information
Primary
Michael Benatar, MBChB, MS, DPhil
projectcreate@miami.edu
1-844-837-1031
Backup
Jessica Hernandez
projectcreate@miami.edu
1-844-837-1031
Time Frame
Start Date: 2018-02-15
Estimated Completion Date: 2027-06
Participants
Target number of participants: 1200
Treatments
Affected
Affected with ALS or a related disorder.
Authors
Related Therapeutic Areas
Sponsors
Collaborators: National Center for Advancing Translational Sciences (NCATS), Muscular Dystrophy Association, National Institutes of Health (NIH), National Institute of Neurological Disorders and Stroke (NINDS)
Leads: University of Miami