Healing ALS Registry Observational Study (HAROS)
Status: Recruiting
Location: See location...
Intervention Type: Other, Behavioral, Drug, Dietary supplement
Study Type: Observational
SUMMARY
This is a prospective, observational, online study of people diagnosed with ALS, MND or PLS referred to as HAROS (Healing ALS Registry Observational Study). Participants will enter information into an online ALS registry once per month, including their ALSFRS-R data, certain other symptoms, dietary intake, supplements, medications and other therapies, both conventional and integrative. Participants will also enter the hours spent on optional self-study and free online education. The investigators will assess the effectiveness of various therapies and education by measuring physical outcomes.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Maximum Age: 110
Healthy Volunteers: f
View:
• Diagnosed with ALS, MND or PLS
Locations
United States
Utah
Virtual
RECRUITING
Park City
Contact Information
Primary
Healing ALS Study Administrator
Study@HealingALS.org
1-973-714-4621
Time Frame
Start Date: 2026-01-26
Estimated Completion Date: 2036-03-31
Participants
Target number of participants: 1000
Treatments
ALS/MND less than 3 years since diagnosis
Those diagnosed with ALS, Amyotrophic Lateral Sclerosis or MND, Motor Neuron Disease (other countries) and time since diagnosis is less 3 years, or 36 months, as of the date they join the study.
PLS less than 3 years since diagnosis
Those diagnosed with PLS, Primary Lateral Sclerosis, and time since diagnosis is less 3 years, or 36 months, as of the date they join the study.
ALS/MND 3 years or greater since diagnosis
Those diagnosed with ALS, Amyotrophic Lateral Sclerosis or MND, Motor Neuron Disease (other countries) and time since diagnosis is 3 years or greater as of the date they join the study.
PLS 3 years or greater since diagnosis.
Those diagnosed with PLS, Primary Lateral Sclerosis and time since diagnosis is 3 years or greater as of the date they join the study.
Related Therapeutic Areas
Sponsors
Leads: Healing Advocates Registry and Ministry