The 20 Best Refsum Disease Doctors Near Me in Minneapolis, MN

Find the Top Refsum Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 7 doctor with experience in Refsum Disease near Minneapolis, MN. Of these, 7 are Experienced.

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7 providers found
    Experienced in Refsum Disease
    Neuroradiology | Pediatric Radiology | Radiology
    Experienced in Refsum Disease
    Neuroradiology | Pediatric Radiology | Radiology
    Referral may be required

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Nascene is a Pediatric Radiologist and a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Refsum Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Spinal Muscular Atrophy Type 2, X-Linked Infantile Spinal Muscular Atrophy, Posterior Fossa Decompression, and Osteotomy. Dr. Nascene is board certified in Neuroradiology: American Board Of Radiology, 2013 and Diagnostic Radiology: American Board Of Radiology, 2008.

    Experienced in Refsum Disease
    Family Medicine
    Experienced in Refsum Disease
    Family Medicine

    Hutchinson Health Clinic

    3 Century Ave SE, 
    Hutchinson, MN 
    Languages Spoken:
    English
    Accepting New Patients

    As a family medicine physician, I care for people of all ages, including newborns, pediatrics, adolescents and teens and adults throughout their life. I find caring for the whole family across generations very rewarding. I like to get to know my patients well and learn about their lives as it often affects their health. Dr. Byron is rated as an Experienced provider by MediFind in the treatment of Refsum Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Byron is board certified in American Board Of Family Medicine. Dr. Byron is currently accepting new patients.

    Experienced in Refsum Disease
    Infectious Disease
    Experienced in Refsum Disease
    Infectious Disease
    Referral may be required

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jason Baker is an Infectious Disease provider practicing medicine in Minneapolis, Minnesota. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of Refsum Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses HIV/AIDS, Myelitis, AIDS Dysmorphic Syndrome, and AIDS Dementia Complex.

    Learn about our expert tiers
    Experienced in Refsum Disease
    Pediatrics | Pediatric Hematology Oncology
    Experienced in Refsum Disease
    Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Journey Pediatric Specialty Clinic

    2450 Riverside Avenue, Building 9 EAST, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Troy Lund is a Pediatrics specialist and a Pediatric Hematologist Oncology provider practicing medicine in Minneapolis, Minnesota. Dr. Lund is rated as an Experienced provider by MediFind in the treatment of Refsum Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Aspartylglucosaminuria, Glucose-6-Phosphate Dehydrogenase Deficiency, and Bone Marrow Transplant. Dr. Lund is board certified in Pediatric Hematology-Oncology: American Board Of Pediatrics, 2011 and Pediatrics: American Board Of Pediatrics, 2007. Dr. Lund is currently accepting new patients.

    Experienced in Refsum Disease
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Experienced in Refsum Disease
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Center For Pediatric Blood And Marrow Transplant And Celluar Therapy

    Journey Clinic Riverside East 9th, Floor 2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Paul Orchard is a Pediatrics specialist and a Pediatric Hematologist Oncology provider practicing medicine in Minneapolis, Minnesota. Dr. Orchard is rated as an Experienced provider by MediFind in the treatment of Refsum Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Adrenal Insufficiency Pediatric, Metachromatic Leukodystrophy, Bone Marrow Transplant, and Osteotomy. Dr. Orchard is currently accepting new patients.

    Experienced in Refsum Disease
    Experienced in Refsum Disease
    Referral may be required

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Shernan Holtan is a Hematologist practicing medicine in Minneapolis, Minnesota. Dr. Holtan is rated as an Experienced provider by MediFind in the treatment of Refsum Disease. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Graft Versus Host Disease (GvHD), Chronic Graft Versus Host Disease (cGvHD), Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration.

    Experienced in Refsum Disease
    Hematology | Oncology
    Experienced in Refsum Disease
    Hematology | Oncology
    Referral may be required

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jakub Tolar is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Tolar is rated as an Experienced provider by MediFind in the treatment of Refsum Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Dyskeratosis Congenita, Fanconi Anemia, Congenital Aplastic Anemia, Bone Marrow Transplant, and Osteotomy.

    Showing 1-7 of 7

    Last Updated: 06/30/2026

    What is the definition of Refsum Disease?

    Refsum disease is an inherited condition that causes vision loss, absence of the sense of smell (anosmia), and a variety of other signs and symptoms.

    When should I see a Refsum Disease doctor near Minneapolis, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Refsum Disease doctor near Minneapolis, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Refsum Disease doctors near Minneapolis, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Refsum Disease doctors near Minneapolis, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Refsum Disease doctor near Minneapolis, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Refsum Disease doctor search results page. 

    Why is it important to get a second opinion from a different Refsum Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Refsum Disease doctor near Minneapolis, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Refsum Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Refsum Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Refsum Disease doctors near Minneapolis, MN?

    Look for the filter feature on the left side of the Refsum Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Refsum Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Refsum Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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