The 20 Best Robinow Syndrome Doctors Near Me in Houston, TX

Find the Top Robinow Syndrome Experts and Specialists

The 20 Best Robinow Syndrome Doctors near Houston, TX

Last Updated: 02/22/2026

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MediFind found 4 doctor with experience in Robinow Syndrome near Houston, TX. Of these, 2 are Experienced, 1 are Advanced and 1 are Distinguished.

Location
LocationClose
4 providers found
    Jennifer E. Posey
    Experienced in Robinow Syndrome
    Medical Genetics
    Experienced in Robinow Syndrome
    Medical Genetics

    Baylor College Of Medicine - Molec & Human Gen

    6701 Fannin St, Cc1610, 
    Houston, TX 
     (4.1 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    In my clinical practice, I see adult patients with diagnosed or suspected genetic disease. This includes both chromosomal abnormalities, as well as single gene disorders. I see patients with a variety of disorders, including Tuberous Sclerosis, Neurofibromatosis, connective tissue disease including Ehlers-Danlos syndrome and Marfan syndrome, and familial cancer syndromes. I have a particular clinical interest in patients with cardiopulmonary disease. As a physician-scientist, I have a research focus on postural orthostatic hypotension (POTS) and pulmonary artery hypertension (PAH). Dr. Posey is rated as an Experienced provider by MediFind in the treatment of Robinow Syndrome. Her top areas of expertise are Hypotonia, Microcephaly, Achalasia Microcephaly Syndrome, and Cortical Dysplasia.

    Distinguished in Robinow Syndrome
    Pediatrics
    Distinguished in Robinow Syndrome
    Pediatrics

    Office

    6701 Fannin St Ste 1560, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    James Lupski is a Pediatrics provider in Houston, Texas. Dr. Lupski is rated as a Distinguished provider by MediFind in the treatment of Robinow Syndrome. His top areas of expertise are Potocki-Lupski Syndrome, Hypotonia, Smith-Magenis Syndrome, and Microcephaly.

    Advanced in Robinow Syndrome
    Medical Genetics | Pediatrics
    Advanced in Robinow Syndrome
    Medical Genetics | Pediatrics
    1504 Taub Loop, 
    Houston, TX 
     (3.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Lorraine Potocki is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Potocki is rated as an Advanced provider by MediFind in the treatment of Robinow Syndrome. Her top areas of expertise are Potocki-Lupski Syndrome, Smith-Magenis Syndrome, Hypotonia, and Trisomy 17 Mosaicism. Dr. Potocki is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Robinow Syndrome
    Medical Genetics | Pediatrics
    Experienced in Robinow Syndrome
    Medical Genetics | Pediatrics

    UT Physicians

    6410 Fannin St, Suite 604, 
    Houston, TX 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Hope Northrup is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Northrup is rated as an Experienced provider by MediFind in the treatment of Robinow Syndrome. Her top areas of expertise are Cortical Dysplasia, Epilepsy in Children, Phenylketonuria (PKU), and Spasmus Nutans. Dr. Northrup is currently accepting new patients.

    Showing 1-4 of 4

    Last Updated: 02/22/2026

    What is the definition of Robinow Syndrome?

    Robinow syndrome is a rare disorder that affects the development of many parts of the body, particularly the skeleton. The types of Robinow syndrome can be distinguished by the severity of their signs and symptoms and by their pattern of inheritance: autosomal recessive or autosomal dominant.

    When should I see a Robinow Syndrome doctor near Houston, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Robinow Syndrome doctor near Houston, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Robinow Syndrome doctors near Houston, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Robinow Syndrome doctors near Houston, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Robinow Syndrome doctor near Houston, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Robinow Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Robinow Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Robinow Syndrome doctor near Houston, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Robinow Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Robinow Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Robinow Syndrome doctors near Houston, TX?

    Look for the filter feature on the left side of the Robinow Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Robinow Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Robinow Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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