The 20 Best Sandhoff Disease Doctors Near Me in Bethesda, MD

Find the Top Sandhoff Disease Experts and Specialists

The 20 Best Sandhoff Disease Doctors near Bethesda, MD

Last Updated: 02/22/2026

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MediFind found 9 doctor with experience in Sandhoff Disease near Bethesda, MD. Of these, 4 are Advanced, 4 are Experienced and 1 are Elite.

Location
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9 providers found
    Elite in Sandhoff Disease
    Medical Genetics
    Elite in Sandhoff Disease
    Medical Genetics
    111 Michigan Ave Nw, 
    Washington, DC 
     (5.9 miles away)
    Languages Spoken:
    English

    Cynthia Tifft is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

    Advanced in Sandhoff Disease
    Radiology
    Advanced in Sandhoff Disease
    Radiology

    Office

    9000 Rockville Pike # 1C351, 
    Bethesda, MD 
     (0.4 miles away)
    Languages Spoken:
    English

    Eva Baker is a Radiologist in Bethesda, Maryland. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are GM1 Gangliosidosis, Sandhoff Disease, Neurofibromatosis, and RASopathies.

    Advanced in Sandhoff Disease
    Neurology
    Advanced in Sandhoff Disease
    Neurology

    National Institutes Of Health

    10 Center Dr Bldg 10CRC, 
    Bethesda, MD 
     (0.4 miles away)
    Languages Spoken:
    English

    Tanya Lehky is a Neurologist in Bethesda, Maryland. Dr. Lehky is rated as an Advanced provider by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Giant Axonal Neuropathy, Chediak-Higashi Syndrome, Peripheral Neuropathy, and Sandhoff Disease.

    Learn about our expert tiers
    Advanced in Sandhoff Disease
    Pediatric Neurology
    Advanced in Sandhoff Disease
    Pediatric Neurology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (3.3 miles away)
    Languages Spoken:
    English

    Maria Acosta is a Pediatric Neurologist in Silver Spring, Maryland. Dr. Acosta is rated as an Advanced provider by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are GM1 Gangliosidosis, Neurofibromatosis, Sandhoff Disease, and Autism Spectrum Disorder.

    Advanced in Sandhoff Disease
    Family Medicine
    Advanced in Sandhoff Disease
    Family Medicine

    Office

    6121 Montrose Rd, 
    Rockville, MD 
     (5.0 miles away)
    Languages Spoken:
    English

    Sareena Brown is a primary care provider, practicing in Family Medicine in Rockville, Maryland. Dr. Brown is rated as an Advanced provider by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Tay-Sachs Disease, Sandhoff Disease, Low Sodium Level, and Raynaud Phenomenon.

    Experienced in Sandhoff Disease
    Experienced in Sandhoff Disease
    35-2a1000 35 Convent Dr, Msc 3705, 
    Bethesda, MD 
     (0.4 miles away)
    Languages Spoken:
    English

    Kenneth Fischbeck is a Neurologist in Bethesda, Maryland. Dr. Fischbeck is rated as an Experienced provider by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, and Progressive Myoclonic Epilepsy.

    Experienced in Sandhoff Disease
    Medical Genetics | Pediatrics
    Experienced in Sandhoff Disease
    Medical Genetics | Pediatrics
    10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
    Bethesda, MD 
     (0.4 miles away)
    Languages Spoken:
    English

    William Gahl is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Gahl is rated as an Experienced provider by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

    Experienced in Sandhoff Disease
    Medical Genetics
    Experienced in Sandhoff Disease
    Medical Genetics
    351a213 Convent Dr, 
    Bethesda, MD 
     (1.4 miles away)
    Languages Spoken:
    English

    Ellen Sidransky is a Medical Genetics provider in Bethesda, Maryland. Dr. Sidransky is rated as an Experienced provider by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Gaucher Disease, Gaucher Disease Type 2, Gaucher Disease Type 3, and Farber Lipogranulomatosis.

    Experienced in Sandhoff Disease
    Experienced in Sandhoff Disease

    Office

    110 Irving St NW Rm 2A-44, 
    Washington, DC 
     (4.9 miles away)
    Languages Spoken:
    English

    Christopher Grunseich is a Neurologist in Washington, Washington, D.c.. Dr. Grunseich is rated as an Experienced provider by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Showing 1-9 of 9

    Last Updated: 02/22/2026

    What is the definition of Sandhoff Disease?

    Sandhoff disease is a rare inherited disorder that progressively destroys nerve cells (neurons) in the brain and spinal cord (central nervous system). This condition is classified into three major types based on the age at which signs and symptoms first appear: infantile, juvenile, and adult.

    When should I see a Sandhoff Disease doctor near Bethesda, MD?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Sandhoff Disease doctor near Bethesda, MD?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Sandhoff Disease doctors near Bethesda, MD?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Sandhoff Disease doctors near Bethesda, MD?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Sandhoff Disease doctor near Bethesda, MD?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sandhoff Disease doctor search results page. 

    Why is it important to get a second opinion from a different Sandhoff Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Sandhoff Disease doctor near Bethesda, MD?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Sandhoff Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Sandhoff Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Sandhoff Disease doctors near Bethesda, MD?

    Look for the filter feature on the left side of the Sandhoff Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Sandhoff Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Sandhoff Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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