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    Last Updated: 10/30/2025

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    MediFind found 276 doctor with experience in Schinzel-Giedion Syndrome. Of these, 228 are Experienced, 28 are Advanced, 19 are Distinguished and 1 are Elite.

    Location
    LocationClose
    276 providers found
      Elite in Schinzel-Giedion Syndrome
      Elite in Schinzel-Giedion Syndrome
      Monza, IT 

      Rocco Piazza practices in Monza, Italy. Mr. Piazza is rated as an Elite expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Schinzel-Giedion Syndrome, Anaplastic Large Cell Lymphoma, Chronic Myelogenous Leukemia (CML), Trichorhinophalangeal Syndrome Type 1 (TRPS1), and Bone Marrow Transplant.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Southampton, ENG, GB 

      Andrew Chase practices in Southampton, United Kingdom. Mr. Chase is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Philadelphia-Negative Chronic Myeloid Leukemia, and Chronic Myelogenous Leukemia (CML).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Southampton, ENG, GB 

      William Tapper practices in Southampton, United Kingdom. Mr. Tapper is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Breast Cancer, Philadelphia-Negative Chronic Myeloid Leukemia, and Mastectomy.

      Learn about our expert tiers
      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Vania Broccoli practices in Milan, Italy. Ms. Broccoli is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Myoclonic Epilepsy, and Wolfram Syndrome.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Federica Banfi practices in Milan, Italy. Ms. Banfi is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Hairy Cell Leukemia (HCL), and Focal or Multifocal Malformations in Neuronal Migration.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Montreal, QC, CA 

      Lilit Antonyan practices in Montreal, Canada. Ms. Antonyan is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Lesch-Nyhan Syndrome, and FOXG1 Syndrome.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Luca Mologni practices in Milan, Italy. Mr. Mologni is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Anaplastic Large Cell Lymphoma, T-Cell Lymphoma, Schinzel-Giedion Syndrome, and Non-Hodgkin Lymphoma.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Harrow, ENG, GB 

      Nuala Summerfield practices in Harrow, United Kingdom. Ms. Summerfield is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, Cardiomyopathy, and Hypertrophic Cardiomyopathy (HCM).

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome

      Radboudumc

      Nijmegen, GE, NL 

      Bregje Van Bon practices in Nijmegen, Netherlands. Van Bon is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), 1p36 Deletion Syndrome, and Fountain Syndrome.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Luca Massimino practices in Milan, Italy. Mr. Massimino is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Viral Gastroenteritis, Endoscopy, and Colonoscopy.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Alessandro Sessa practices in Milan, Italy. Mr. Sessa is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), and Focal or Multifocal Malformations in Neuronal Migration.

      Distinguished in Schinzel-Giedion Syndrome
      Internal Medicine
      Distinguished in Schinzel-Giedion Syndrome
      Internal Medicine

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hans Kim is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Greig Cephalopolysyndactyly Syndrome, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Craniofacial-Deafness-Hand Syndrome, and Ascher Syndrome. Dr. Kim is currently accepting new patients.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Mattia Zaghi practices in Milan, Italy. Zaghi is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), and Hereditary Ataxia.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome

      Radboudumc

      Nijmegen, GE, NL 

      Bert De Vries practices in Nijmegen, Netherlands. Mr. De Vries is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are 1p36 Deletion Syndrome, Coffin-Siris Syndrome, Schinzel-Giedion Syndrome, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, and Deep Brain Stimulation.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Istanbul, TR 

      Umut Altunoglu practices in Istanbul, Turkey. Mr. Altunoglu is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Aarskog Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Intersex, and Facial Paralysis.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Nijmegen, GE, NL 

      Simon Fisher practices in Nijmegen, Netherlands. Mr. Fisher is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Developmental Reading Disorder, Apraxia, Autism Spectrum Disorder, Schinzel-Giedion Syndrome, and Splenectomy.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      50 Flemington Rd, 
      Parkville, VIC, AU 

      Angela Morgan practices in Parkville, Australia. Ms. Morgan is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Dysarthria, Developmental Expressive Language Disorder, Apraxia, and Schinzel-Giedion Syndrome.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Alicia Rubio practices in Milan, Italy. Ms. Rubio is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, Hallervorden-Spatz Disease, and Pantothenate Kinase-Associated Neurodegeneration.

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Montreal, QC, CA 

      Carl Ernst practices in Montreal, Canada. Mr. Ernst is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Lesch-Nyhan Syndrome, Schinzel-Giedion Syndrome, Autism Spectrum Disorder, and Trichorhinophalangeal Syndrome Type 1 (TRPS1).

      Distinguished in Schinzel-Giedion Syndrome
      Distinguished in Schinzel-Giedion Syndrome
      Milan, IT 

      Edoardo Bellini practices in Milan, Italy. Mr. Bellini is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Wolfram Syndrome, and Diabetes Insipidus (DI).

      Showing 1-20 of 276

      Last Updated: 10/30/2025

      What is the definition of Schinzel-Giedion Syndrome?

      Schinzel-Giedion syndrome is a severe condition that is apparent at birth and affects many body systems. Signs and symptoms of this condition include distinctive facial features, neurological problems, and organ and bone abnormalities. Because of their serious health problems, most affected individuals do not survive past childhood.

      When should I see a Schinzel-Giedion Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Schinzel-Giedion Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Schinzel-Giedion Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Schinzel-Giedion Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Schinzel-Giedion Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Schinzel-Giedion Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Schinzel-Giedion Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Schinzel-Giedion Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Schinzel-Giedion Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Schinzel-Giedion Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Schinzel-Giedion Syndrome doctors near me?

      Look for the filter feature on the left side of the Schinzel-Giedion Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Schinzel-Giedion Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Schinzel-Giedion Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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