The 20 Best Schinzel-Giedion Syndrome Doctors in Netherlands

Find the Top Schinzel-Giedion Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 15 doctor with experience in Schinzel-Giedion Syndrome near Netherlands. Of these, 11 are Experienced, 3 are Advanced and 1 are Distinguished.

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15 providers found
    Distinguished in Schinzel-Giedion Syndrome
    Distinguished in Schinzel-Giedion Syndrome

    Radboudumc

    Nijmegen, GE, NL 

    Bregje Van Bon practices practicing medicine in Nijmegen, Netherlands. Van Bon is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), 1p36 Deletion Syndrome, and Frontometaphyseal Dysplasia.

    Advanced in Schinzel-Giedion Syndrome
    Advanced in Schinzel-Giedion Syndrome

    Radboudumc

    Nijmegen, GE, NL 

    Bert De Vries practices practicing medicine in Nijmegen, Netherlands. Mr. De Vries is rated as an Advanced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses 1p36 Deletion Syndrome, Coffin-Siris Syndrome, Miller Syndrome, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, and Deep Brain Stimulation.

    Advanced in Schinzel-Giedion Syndrome
    Advanced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Simon Fisher practices practicing medicine in Nijmegen, Netherlands. Mr. Fisher is rated as an Advanced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Developmental Reading Disorder, Apraxia, Autism Spectrum Disorder, Increased Head Circumference, and Splenectomy.

    Learn about our expert tiers
    Advanced in Schinzel-Giedion Syndrome
    Advanced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Rocio Hidalgo-Acuna practices practicing medicine in Nijmegen, Netherlands. Ms. Hidalgo-Acuna is rated as an Advanced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, Neu Laxova Syndrome, and Townes-Brocks Syndrome.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Arianna Vino practices practicing medicine in Nijmegen, Netherlands. Ms. Vino is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her clinical expertise encompasses Schinzel-Giedion Syndrome, Apraxia, and Autism Spectrum Disorder.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Alexander Hoischen practices practicing medicine in Nijmegen, Netherlands. Mr. Hoischen is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Robinow Syndrome, Primary Immunodeficiency (PID), Genital Dwarfism, and Cutis Laxa.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome

    Erasmus MC

    Rotterdam, ZH, NL 

    Alice Brooks practices practicing medicine in Rotterdam, Netherlands. Ms. Brooks is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Intestinal Pseudo-Obstruction, 1p36 Deletion Syndrome, Hirschsprung Disease, and Berdon Syndrome.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Utrecht, UT, NL 

    Marjolijn Jongmans practices practicing medicine in Utrecht, Netherlands. Jongmans is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Familial Wilms Tumor 2, Congenital Radioulnar Synostosis, Turcot Syndrome, and Wilms Tumor.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome

    Radboud UMC

    Nijmegen, GE, NL 

    Christian Gilissen practices practicing medicine in Nijmegen, Netherlands. Mr. Gilissen is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Horseshoe Kidney, and Leber Congenital Amaurosis.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Joery Den Hoed practices practicing medicine in Nijmegen, Netherlands. Den Hoed is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their clinical expertise encompasses Schinzel-Giedion Syndrome and Autism Spectrum Disorder.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Pelagia Deriziotis practices practicing medicine in Nijmegen, Netherlands. Ms. Deriziotis is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Increased Head Circumference, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, and Cortical Dysplasia.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome

    Ziekenhuis Groep Twente

    Almelo, OV, NL 

    Joris Veltman practices practicing medicine in Almelo, Netherlands. Mr. Veltman is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Mosaicism, Smith-Magenis Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), and Infertility.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Marloes Steehouwer practices practicing medicine in Nijmegen, Netherlands. Steehouwer is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Genital Dwarfism, Robinow Syndrome, Townes-Brocks Syndrome, and Trichorhinophalangeal Syndrome Type 1 (TRPS1).

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Nijmegen, GE, NL 

    Gokberk Alagoz practices practicing medicine in Nijmegen, Netherlands. Alagoz is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their clinical expertise encompasses Schinzel-Giedion Syndrome and Developmental Reading Disorder.

    Experienced in Schinzel-Giedion Syndrome
    Experienced in Schinzel-Giedion Syndrome
    Groningen, GR, NL 

    Sipko Van Dam practices practicing medicine in Groningen, Netherlands. Van Dam is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their clinical expertise encompasses Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, and Type 2 Diabetes (T2D).

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-15 of 15

    Last Updated: 04/28/2026

    What is the definition of Schinzel-Giedion Syndrome?

    Schinzel-Giedion syndrome is a severe condition that is apparent at birth and affects many body systems. Signs and symptoms of this condition include distinctive facial features, neurological problems, and organ and bone abnormalities. Because of their serious health problems, most affected individuals do not survive past childhood.

    When should I see a Schinzel-Giedion Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Schinzel-Giedion Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Schinzel-Giedion Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Schinzel-Giedion Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Schinzel-Giedion Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Schinzel-Giedion Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Schinzel-Giedion Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Schinzel-Giedion Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Schinzel-Giedion Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Schinzel-Giedion Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Schinzel-Giedion Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the Schinzel-Giedion Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Schinzel-Giedion Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Schinzel-Giedion Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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