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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Schinzel-Giedion Syndrome near Netherlands. Of these, 13 are Experienced, 3 are Distinguished and 1 are Advanced.

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    17 providers found
      Distinguished in Schinzel-Giedion Syndrome

      Bregje W. Van Bon
      Distinguished in Schinzel-Giedion Syndrome

      Bregje W. Van Bon

      Radboudumc

      Nijmegen, GE, NL 

      Bregje Van Bon practices in Nijmegen, Netherlands. Van Bon is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Schinzel-Giedion Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), 1p36 Deletion Syndrome, and Fountain Syndrome.

      Distinguished in Schinzel-Giedion Syndrome

      Simon E. Fisher
      Distinguished in Schinzel-Giedion Syndrome

      Simon E. Fisher
      Nijmegen, GE, NL 

      Simon Fisher practices in Nijmegen, Netherlands. Mr. Fisher is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Developmental Reading Disorder, Apraxia, Autism Spectrum Disorder, Schinzel-Giedion Syndrome, and Splenectomy.

      Distinguished in Schinzel-Giedion Syndrome

      Bert A. De Vries
      Distinguished in Schinzel-Giedion Syndrome

      Bert A. De Vries

      Radboudumc

      Nijmegen, GE, NL 

      Bert De Vries practices in Nijmegen, Netherlands. Mr. De Vries is rated as a Distinguished expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are 1p36 Deletion Syndrome, Coffin-Siris Syndrome, Schinzel-Giedion Syndrome, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, and Deep Brain Stimulation.

      Learn about our expert tiers
      Advanced in Schinzel-Giedion Syndrome

      Rocio Hidalgo-Acuna
      Advanced in Schinzel-Giedion Syndrome

      Rocio Hidalgo-Acuna
      Nijmegen, GE, NL 

      Rocio Hidalgo-Acuna practices in Nijmegen, Netherlands. Ms. Hidalgo-Acuna is rated as an Advanced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, Neu Laxova Syndrome, and Townes-Brocks Syndrome.

      Experienced in Schinzel-Giedion Syndrome

      Arianna Vino
      Experienced in Schinzel-Giedion Syndrome

      Arianna Vino
      Nijmegen, GE, NL 

      Arianna Vino practices in Nijmegen, Netherlands. Ms. Vino is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Schinzel-Giedion Syndrome, Apraxia, and Autism Spectrum Disorder.

      Experienced in Schinzel-Giedion Syndrome

      Alexander Hoischen
      Experienced in Schinzel-Giedion Syndrome

      Alexander Hoischen
      Nijmegen, GE, NL 

      Alexander Hoischen practices in Nijmegen, Netherlands. Mr. Hoischen is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Robinow Syndrome, Primary Immunodeficiency (PID), Genital Dwarfism, and Cutis Laxa.

      Experienced in Schinzel-Giedion Syndrome

      Sarah A. Graham
      Experienced in Schinzel-Giedion Syndrome

      Sarah A. Graham
      Nijmegen, GE, NL 

      Sarah Graham practices in Nijmegen, Netherlands. Ms. Graham is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 1 (TRPS1) and Schinzel-Giedion Syndrome.

      Experienced in Schinzel-Giedion Syndrome

      Joris A. Veltman
      Experienced in Schinzel-Giedion Syndrome

      Joris A. Veltman
      Amsterdam, NH, NL 

      Joris Veltman practices in Amsterdam, Netherlands. Mr. Veltman is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Mosaicism, Smith-Magenis Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), and Schinzel-Giedion Syndrome.

      Experienced in Schinzel-Giedion Syndrome

      Marloes Steehouwer
      Experienced in Schinzel-Giedion Syndrome

      Marloes Steehouwer
      Nijmegen, GE, NL 

      Marloes Steehouwer practices in Nijmegen, Netherlands. Steehouwer is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Genital Dwarfism, Robinow Syndrome, Trichorhinophalangeal Syndrome Type 1 (TRPS1), and Townes-Brocks Syndrome.

      Experienced in Schinzel-Giedion Syndrome

      Joery Den Hoed
      Experienced in Schinzel-Giedion Syndrome

      Joery Den Hoed
      Nijmegen, GE, NL 

      Joery Den Hoed practices in Nijmegen, Netherlands. Den Hoed is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Schinzel-Giedion Syndrome and Autism Spectrum Disorder.

      Experienced in Schinzel-Giedion Syndrome

      Pelagia Deriziotis
      Experienced in Schinzel-Giedion Syndrome

      Pelagia Deriziotis
      Nijmegen, GE, NL 

      Pelagia Deriziotis practices in Nijmegen, Netherlands. Ms. Deriziotis is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Increased Head Circumference, Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, and Cortical Dysplasia.

      Experienced in Schinzel-Giedion Syndrome

      Alice S. Brooks
      Experienced in Schinzel-Giedion Syndrome

      Alice S. Brooks

      Erasmus MC

      Rotterdam, ZH, NL 

      Alice Brooks practices in Rotterdam, Netherlands. Ms. Brooks is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Intestinal Pseudo-Obstruction, 1p36 Deletion Syndrome, Hirschsprung Disease, and Berdon Syndrome.

      Experienced in Schinzel-Giedion Syndrome

      Christian Gilissen
      Experienced in Schinzel-Giedion Syndrome

      Christian Gilissen

      Radboud UMC

      Nijmegen, GE, NL 

      Christian Gilissen practices in Nijmegen, Netherlands. Mr. Gilissen is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. His top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Horseshoe Kidney, and Leber Congenital Amaurosis.

      Experienced in Schinzel-Giedion Syndrome

      Gokberk Alagoz
      Experienced in Schinzel-Giedion Syndrome

      Gokberk Alagoz
      Nijmegen, GE, NL 

      Gokberk Alagoz practices in Nijmegen, Netherlands. Alagoz is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Schinzel-Giedion Syndrome and Developmental Reading Disorder.

      Experienced in Schinzel-Giedion Syndrome

      Sipko Van Dam
      Experienced in Schinzel-Giedion Syndrome

      Sipko Van Dam
      Groningen, GR, NL 

      Sipko Van Dam practices in Groningen, Netherlands. Van Dam is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Trichorhinophalangeal Syndrome Type 1 (TRPS1), Schinzel-Giedion Syndrome, and Type 2 Diabetes (T2D).

      Experienced in Schinzel-Giedion Syndrome

      Ingrid H. Van De Laar
      Experienced in Schinzel-Giedion Syndrome

      Ingrid H. Van De Laar
      Rotterdam, ZH, NL 

      Ingrid Van De Laar practices in Rotterdam, Netherlands. Ms. Van De Laar is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), Thoracic Aortic Aneurysm, and Hypotonia.

      Experienced in Schinzel-Giedion Syndrome

      Marjolijn C. Jongmans
      Experienced in Schinzel-Giedion Syndrome

      Marjolijn C. Jongmans
      Utrecht, UT, NL 

      Marjolijn Jongmans practices in Utrecht, Netherlands. Jongmans is rated as an Experienced expert by MediFind in the treatment of Schinzel-Giedion Syndrome. Their top areas of expertise are Familial Wilms Tumor 2, Congenital Radioulnar Synostosis, Turcot Syndrome, and Wilms Tumor.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Schinzel-Giedion Syndrome?

      Schinzel-Giedion syndrome is a severe condition that is apparent at birth and affects many body systems. Signs and symptoms of this condition include distinctive facial features, neurological problems, and organ and bone abnormalities. Because of their serious health problems, most affected individuals do not survive past childhood.

      When should I see a Schinzel-Giedion Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Schinzel-Giedion Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Schinzel-Giedion Syndrome doctor in Netherlands?

      You can find a Schinzel-Giedion Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      Schinzel-Giedion Syndrome doctor near Philadelphia, PA
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      Schinzel-Giedion Syndrome doctor near Boston, MA
      Schinzel-Giedion Syndrome doctor near Dallas, TX
      Schinzel-Giedion Syndrome doctor near San Jose, CA

      How does MediFind rank Schinzel-Giedion Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Schinzel-Giedion Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Schinzel-Giedion Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Schinzel-Giedion Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Schinzel-Giedion Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Schinzel-Giedion Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Schinzel-Giedion Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Schinzel-Giedion Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Schinzel-Giedion Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the Schinzel-Giedion Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Schinzel-Giedion Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Schinzel-Giedion Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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