The 20 Best Sengers Syndrome Doctors in France

Find the Top Sengers Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 14 doctor with experience in Sengers Syndrome near France. Of these, 13 are Experienced and 1 are Distinguished.

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14 providers found
    Distinguished in Sengers Syndrome

    Agnes Rotig
    Distinguished in Sengers Syndrome

    Agnes Rotig
    Referral may be required
    Paris, FR 

    Agnes Rotig practices practicing medicine in Paris, France. Ms. Rotig is rated as a Distinguished expert by MediFind in the treatment of Sengers Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Mitochondrial Complex 1 Deficiency, Leigh Syndrome, Lactic Acidosis, and Sengers Syndrome.

    Experienced in Sengers Syndrome

    Odile Tanguy-Boespflug
    Experienced in Sengers Syndrome

    Odile Tanguy-Boespflug
    Referral may be required
    Paris, FR 

    Odile Tanguy-Boespflug practices practicing medicine in Paris, France. Ms. Tanguy-Boespflug is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Leukodystrophy, Spastic Paraplegia Type 2, Spinal Muscular Atrophy (SMA), and Pelizaeus-Merzbacher Disease.

    Experienced in Sengers Syndrome

    Simon Samaan
    Experienced in Sengers Syndrome

    Simon Samaan
    Referral may be required
    Frepillon, FR 

    Simon Samaan practices practicing medicine in Frepillon, France. Mr. Samaan is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Leukodystrophy, Sengers Syndrome, Pol 3-Related Leukodystrophy, and CACH Syndrome.

    Learn about our expert tiers
    Experienced in Sengers Syndrome

    Imen Dorboz
    Experienced in Sengers Syndrome

    Imen Dorboz
    Referral may be required
    Paris, FR 

    Imen Dorboz practices practicing medicine in Paris, France. Dorboz is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses CACH Syndrome, Leukodystrophy, Sengers Syndrome, and Congenital Cataract.

    Experienced in Sengers Syndrome

    Sophie Ayciriex
    Experienced in Sengers Syndrome

    Sophie Ayciriex
    Referral may be required
    Lyon, FR 

    Sophie Ayciriex practices practicing medicine in Lyon, France. Ms. Ayciriex is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. Her clinical expertise encompasses Sengers Syndrome, Pantothenate Kinase-Associated Neurodegeneration, Barth Syndrome, and UPJ Obstruction.

    Experienced in Sengers Syndrome

    Pascale Marcorelles
    Experienced in Sengers Syndrome

    Pascale Marcorelles
    Referral may be required

    CHRU Brest

    Brest, FR 

    Pascale Marcorelles practices practicing medicine in Brest, France. Ms. Marcorelles is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Adenosine Monophosphate Deaminase Deficiency, Caudal Duplication, Glycogen Storage Disease Type 7, and Distal Arthrogryposis Type 6.

    Experienced in Sengers Syndrome

    Laurence Hubert
    Experienced in Sengers Syndrome

    Laurence Hubert
    Referral may be required
    Paris, FR 

    Laurence Hubert practices practicing medicine in Paris, France. Mr. Hubert is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. His clinical expertise encompasses Sengers Syndrome, Lissencephaly, Trimethylaminuria, and Epilepsy in Children.

    Experienced in Sengers Syndrome

    Abdelhamid Slama
    Experienced in Sengers Syndrome

    Abdelhamid Slama
    Referral may be required
    Paris, FR 

    Abdelhamid Slama practices practicing medicine in Paris, France. Mr. Slama is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Mitochondrial Complex 1 Deficiency, Mitochondrial Complex 3 Deficiency, Sengers Syndrome, and Adrenal Cancer.

    Experienced in Sengers Syndrome

    Pierre Rustin
    Experienced in Sengers Syndrome

    Pierre Rustin
    Referral may be required
    Paris, FR 

    Pierre Rustin practices practicing medicine in Paris, France. Mr. Rustin is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Mitochondrial Complex 1 Deficiency, Cytochrome C Oxidase Deficiency, Sengers Syndrome, and Hereditary Ataxia.

    Experienced in Sengers Syndrome

    Claude Besmond
    Experienced in Sengers Syndrome

    Claude Besmond
    Referral may be required
    Paris, FR 

    Claude Besmond practices practicing medicine in Paris, France. Mr. Besmond is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Thyroid Dysgenesis, Micrognathia, Sengers Syndrome, and Myoclonic Epilepsy.

    Experienced in Sengers Syndrome

    Agnes Delahodde
    Experienced in Sengers Syndrome

    Agnes Delahodde
    Referral may be required
    Gif-sur-yvette, FR 

    Agnes Delahodde practices practicing medicine in Gif-sur-yvette, France. Ms. Delahodde is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Optic Nerve Atrophy, Sengers Syndrome, Coenzyme Q Cytochrome C Reductase Deficiency, and Pyruvate Dehydrogenase Deficiency.

    Experienced in Sengers Syndrome

    Catherine Sarret
    Experienced in Sengers Syndrome

    Catherine Sarret
    Referral may be required
    Clermont-ferrand, FR 

    Catherine Sarret practices practicing medicine in Clermont-ferrand, France. Ms. Sarret is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Allan-Herndon-Dudley Syndrome, Hypomelanosis of Ito, Spinal Muscular Atrophy Type 1, Gastrostomy, and Deep Brain Stimulation.

    Experienced in Sengers Syndrome

    Florence Prunier-Piron
    Experienced in Sengers Syndrome

    Florence Prunier-Piron
    Referral may be required
    Gif-sur-yvette, FR 

    Florence Prunier-Piron practices practicing medicine in Gif-sur-yvette, France. Ms. Prunier-Piron is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. Her clinical expertise encompasses Sengers Syndrome, Cerebellar Hypoplasia, Barth Syndrome, and Hypotonia.

    Experienced in Sengers Syndrome

    Magalie Barth
    Experienced in Sengers Syndrome

    Magalie Barth
    Referral may be required
    Angers, FR 

    Magalie Barth practices practicing medicine in Angers, France. Ms. Barth is rated as an Experienced expert by MediFind in the treatment of Sengers Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Behr Syndrome, Aicardi-Goutieres Syndrome, Mitochondrial Complex 1 Deficiency, and Primary Carnitine Deficiency.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-14 of 14

    Last Updated: 06/30/2026

    What is the definition of Sengers Syndrome?

    Sengers syndrome is a rare autosomal recessive mitochondrial (cells that create energy) depletion disorder that causes a loss of function of the acylglycerol kinase (AGK) gene that is responsible for maintaining mitochondrial DNA, resulting in infants that are born with congenital cataracts, hypertrophic cardiomyopathy (thickening of heart muscle; HOCM), skeletal myopathy, and lactic acidosis.

    When should I see a Sengers Syndrome doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Sengers Syndrome doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Sengers Syndrome doctor in France?

    You can find a Sengers Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Sengers Syndrome doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Sengers Syndrome doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Sengers Syndrome doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sengers Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Sengers Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Sengers Syndrome doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Sengers Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Sengers Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Sengers Syndrome doctors in France?

    Look for the filter feature on the left side of the Sengers Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Sengers Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Sengers Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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