The 20 Best Shwachman-Diamond Syndrome Doctors Near Me

Find the Top Shwachman-Diamond Syndrome Experts and Specialists

The 20 Best Shwachman-Diamond Syndrome Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 2329 doctor with experience in Shwachman-Diamond Syndrome. Of these, 2030 are Experienced, 246 are Advanced, 45 are Distinguished and 7 are Elite.

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2,329 providers found
    Elite in Shwachman-Diamond Syndrome
    Hematology | Oncology
    Elite in Shwachman-Diamond Syndrome
    Hematology | Oncology

    Office

    3333 Burnet Ave # 7015, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Stella Davies is a Hematologist and an Oncologist in Cincinnati, Ohio. Dr. Davies is rated as an Elite provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Congenital Aplastic Anemia, Fanconi Anemia, Shwachman-Diamond Syndrome, Bone Marrow Transplant, and Bone Graft.

    Simone N. Cesaro
    Elite in Shwachman-Diamond Syndrome
    Elite in Shwachman-Diamond Syndrome

    Policlinico GB Rossi

    Verona, IT 

    Simone Cesaro practices in Verona, Italy. Ms. Cesaro is rated as an Elite expert by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Infantile Neutropenia, Hemophagocytic Lymphohistiocytosis, Bone Marrow Transplant, and Bone Graft.

    Timothy F. Goggins
    Advanced in Shwachman-Diamond Syndrome
    Hematology | Oncology
    Advanced in Shwachman-Diamond Syndrome
    Hematology | Oncology

    Vince Lombardi Cancer Clinic

    W180N11070 River Ln, 
    Germantown, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Timothy Goggins is a Hematologist and an Oncologist in Germantown, Wisconsin. Dr. Goggins is rated as an Advanced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Non-Hodgkin Lymphoma, Colorectal Cancer, Familial Colorectal Cancer, and Testicular Yolk Sac Tumor.

    Learn about our expert tiers
    Elite in Shwachman-Diamond Syndrome
    Hematology | Oncology
    Elite in Shwachman-Diamond Syndrome
    Hematology | Oncology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Kasiani Myers is a Hematologist and an Oncologist in Cincinnati, Ohio. Dr. Myers is rated as an Elite provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Congenital Aplastic Anemia, Fanconi Anemia, Aplastic Anemia, and Bone Marrow Transplant.

    Elite in Shwachman-Diamond Syndrome
    Hematology | Oncology
    Elite in Shwachman-Diamond Syndrome
    Hematology | Oncology

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Akiko Shimamura is a Hematologist and an Oncologist in Boston, Massachusetts. Dr. Shimamura is rated as an Elite provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Aplastic Anemia, Aase Syndrome, Familial Multiple Lipomatosis, and Bone Marrow Transplant.

    Elite in Shwachman-Diamond Syndrome
    Elite in Shwachman-Diamond Syndrome

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Elissa Furutani is a Pediatrics provider in Boston, Massachusetts. Dr. Furutani is rated as an Elite provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Familial Multiple Lipomatosis, Aase Syndrome, and Fanconi Anemia.

    Elite in Shwachman-Diamond Syndrome
    Elite in Shwachman-Diamond Syndrome
    Verona, IT 

    Marco Cipolli practices in Verona, Italy. Mr. Cipolli is rated as an Elite expert by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Cystic Fibrosis, Exocrine Pancreatic Insufficiency, Shwachman-Diamond Syndrome, Familial Multiple Lipomatosis, and Osteotomy.

    Elite in Shwachman-Diamond Syndrome
    Elite in Shwachman-Diamond Syndrome
    Verona, IT 

    Valentino Bezzerri practices in Verona, Italy. Mr. Bezzerri is rated as an Elite expert by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Shwachman-Diamond Syndrome, Familial Multiple Lipomatosis, Exocrine Pancreatic Insufficiency, and Cystic Fibrosis.

    Ibrahim N. Nakhoul
    Experienced in Shwachman-Diamond Syndrome
    Experienced in Shwachman-Diamond Syndrome

    Ballad Health Cancer Center

    2202 North John B. Dennis Highway, Suite 100, 
    Kingsport, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Nakhoul is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Colorectal Cancer, Lung Cancer, Familial Colorectal Cancer, and Pleuropulmonary Blastoma.

    Jamal G. Maatouk
    Experienced in Shwachman-Diamond Syndrome
    Experienced in Shwachman-Diamond Syndrome

    Tennessee Oncology, PLLC

    378 Marketplace Blvd, Ste 6, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Maatouk is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Thrombocytopenia, Paget Disease of the Breast, Adult Immune Thrombocytopenia, and Hemangioma Thrombocytopenia Syndrome.

    David A. Gass
    Experienced in Shwachman-Diamond Syndrome
    Hematology | Oncology
    Experienced in Shwachman-Diamond Syndrome
    Hematology | Oncology

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Gass is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Gass is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Infantile Neutropenia, Brain Stem Cancer, and Glioma. Dr. Gass is currently accepting new patients.

    Demet G. Yasar
    Experienced in Shwachman-Diamond Syndrome
    Experienced in Shwachman-Diamond Syndrome

    Vince Lombardi Cancer Clinic

    2845 Greenbrier Rd, Ste 250, 
    Green Bay, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Demet Yasar is a Hematologist in Green Bay, Wisconsin. Dr. Yasar is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Small Cell Lung Cancer (SCLC), Lung Cancer, Pleuropulmonary Blastoma, and Myelodysplastic Syndrome (MDS).

    Asheesh Shipstone
    Experienced in Shwachman-Diamond Syndrome
    Hematology | Oncology
    Experienced in Shwachman-Diamond Syndrome
    Hematology | Oncology

    Ballad Health Cancer Center

    2202 North John B. Dennis Highway, Suite 100, 
    Kingsport, TN 
    Languages Spoken:
    English

    . Dr. Shipstone is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Adult Immune Thrombocytopenia, Colorectal Cancer, Hemangioma Thrombocytopenia Syndrome, and Thrombocytopenia.

    Adrianna Vlachos
    Distinguished in Shwachman-Diamond Syndrome
    Hematology | Pediatric Hematology Oncology
    Distinguished in Shwachman-Diamond Syndrome
    Hematology | Pediatric Hematology Oncology

    Johns Hopkins All Children's Outpatient Care, St. Petersburg

    Saint Petersburg, FL 
    Languages Spoken:
    English, Greek
    Offers Telehealth

    Dr. Vlachos is the chief of hematology in the Johns Hopkins All Children’s Hospital Cancer & Blood Disorders Institute in St. Petersburg, Florida, and professor of pediatrics (PAR) in the Johns Hopkins University School of Medicine. She joined the hospital staff in 2024. She was previously professor of pediatrics at Zucker School of Medicine at Hofstra/Northwell and attending physician in hematology/oncology at Cohen Children’s Medical Center/Northwell Health, where she was head of the Bone Marrow Failure Program and head of the pediatric hematology/oncology trials office. Dr. Vlachos is internationally known for clinical care and expertise in bone marrow failure syndromes and her transformational research in Diamond Blackfan anemia (DBA) syndrome, a rare inherited bone marrow failure syndrome. Dr. Vlachos is the founder and has directed the Diamond Blackfan Anemia Registry (DBAR) of North America since its inception in 1991. She is the principal investigator and co-investigator on multiple grants funded by the National Institute of Health and the Centers for Disease Control and Prevention. She has published numerous articles on her research findings and has been invited to author papers and book chapters on bone marrow failure syndromes and DBA. Dr. Vlachos is a member of the Medical and Scientific Advisory Board for the Shwachman-Diamond Syndrome Registry, is a member of the Scientific Advisory Board for the Diamond Blackfan Anemia Foundation and holds a position on the Scientific Program Committee for Bone Marrow Failure of the American Society of Hematology. She earned her medical degree from New York Medical College in Valhalla, New York. She completed her residency in pediatrics at North Shore University Hospital in Manhasset, New York. She then completed a clinical fellowship in bone marrow transplantation at North Shore University Hospital, followed by a fellowship in pediatric hematology-oncology and bone marrow transplantation at Mount Sinai Medical Center in New York. Videos Bone Marrow Failure Syndrome Expert Dr. Adrianna Vlachos at Johns Hopkins All Children’s. Dr. Vlachos is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Aplastic Anemia, and Transient Erythroblastopenia of Childhood.

    Ali-reza Golshayan
    Distinguished in Shwachman-Diamond Syndrome
    Hematology | Oncology
    Distinguished in Shwachman-Diamond Syndrome
    Hematology | Oncology

    Atrium Health Levine Cancer Institute, A Facility Of Carolinas Medical Center

    2610 Aberdeen Blvd., 
    Gastonia, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ali-reza Golshayan is a Hematologist and an Oncologist in Gastonia, North Carolina. Dr. Golshayan is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Fanconi Anemia, Ataxia-Pancytopenia Syndrome, Shwachman-Diamond Syndrome, Pure Red Cell Aplasia, and Lymphadenectomy. Dr. Golshayan is currently accepting new patients.

    Morgan L. Mclemore
    Distinguished in Shwachman-Diamond Syndrome
    Hematology Oncology
    Distinguished in Shwachman-Diamond Syndrome
    Hematology Oncology

    Emory Hemophilia Of Georgia

    550 Peachtree Street Northeast, MedicalOfficeTower, 
    Atlanta, GA 
    Experience:
    36+ years
    Languages Spoken:
    English
    Offers Telehealth

    Morgan Mclemore is a Hematologist Oncology provider in Atlanta, Georgia. Dr. Mclemore has been practicing medicine for over 36 years and is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Sickle Cell Disease, Hemoglobinopathy, Fanconi Anemia, Bone Marrow Aspiration, and Splenectomy.

    Seth Corey
    Distinguished in Shwachman-Diamond Syndrome
    Pediatric Hematology Oncology
    Distinguished in Shwachman-Diamond Syndrome
    Pediatric Hematology Oncology
    9500 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English

    Seth Corey is a Pediatric Hematologist Oncology provider in Cleveland, Ohio. Dr. Corey is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Infantile Neutropenia, Shwachman-Diamond Syndrome, Familial Multiple Lipomatosis, and Wiskott-Aldrich Syndrome.

    Eleny C. Romanos
    Distinguished in Shwachman-Diamond Syndrome
    Pediatric Hematology Oncology | Pediatrics
    Distinguished in Shwachman-Diamond Syndrome
    Pediatric Hematology Oncology | Pediatrics

    Northwell Health Florina Cancer Center

    475 Seaview Avenue, 
    Staten Island, NY 
    Languages Spoken:
    English

    Eleny Romanos-Sirakis, MD, MS, FAAP is a board-certified specialist in pediatric hematology/oncology and is the Director of Pediatric Hematology and Oncology at Staten Island University Hospital (SIUH). She has advanced and expanded the care for patients undergoing evaluation and treatment for cancer and blood disorders at SIUH. She provides comprehensive care to patients from infancy to 21 years of age. Dr. Romanos provides clinical evaluations and treatments for a wide variety of hematology and oncology concerns, including anemia, low or high white blood cell counts, low or high platelet counts, bleeding disorders, clotting disorders, sickle cell disease, thalassemia, hemoglobinopathies, enlarged lymph nodes, bone tumors, histiocytosis, leukemia, lymphoma, and solid tumors.Dr. Romanos came to SIUH from NYU Langone Medical Center in Manhattan, where she specialized in pediatric cancers and blood disorders. She brings this expertise to Staten Island and provides this high-quality specialty care locally, removing the need for patients to leave Staten Island for evaluations and treatments. She understands that all children have unique needs and is dedicated to providing personalized care to meet the individualized needs of her patients and their entire families. She has specialized and extensive training in the care of children with special needs; Dr Romanos and her entire team work to ensure that the needs of each family are met in this personalized approach to treating each child. Families' specific needs or requests should be communicated to the office staff when scheduling appointments; every effort will be made to accommodate each patient and family.Providing optimal care and assessments, while maximizing patient and family quality of life, is of highest priority for Dr. Romanos. She has additional training in pediatric pain management and was actively involved in developing the SIUH Pediatric Comfort Campaign to minimize pain for children undergoing procedures and improve overall pain management for pediatric patients. She is committed to education and research at SIUH; she is actively involved in further advancing research at SIUH as the chair of the pediatric research and scholarship committee. She is also an active committee member of the American Society of Pediatric Hematology/Oncology and the American Academy of Pediatrics.Dr. Romanos is a native New Yorker and is dedicated to providing personalized and high-quality care to all of her patients. Dr. Romanos is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Infantile Neutropenia, Sickle Cell Disease, and Febrile Neutropenia.

    Amy Dezern
    Distinguished in Shwachman-Diamond Syndrome
    Oncology | Hematology
    Distinguished in Shwachman-Diamond Syndrome
    Oncology | Hematology

    Sidney Kimmel Comprehensive Cancer Center

    401 North Broadway Street, Weinberg BLDG, Weinberg BLDG, 
    Baltimore, MD 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. DeZern is a Professor of Oncology and Medicine at The Johns Hopkins University School of Medicine. She is active in the Division of Hematology Malignancies, Leukemia Program at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins. Dr. DeZern has expertise in aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, acute myeloid leukemia, and bone marrow transplantation. Dr. DeZern received her medical degree at The Johns Hopkins University School of Medicine. She completed a residency in internal medicine at Johns Hopkins, followed by fellowships in medical oncology and hematology, as well as obtained a Masters in Clinical Investigations at the Bloomberg School of Public health. Dr. DeZern is a member of the American Society of Hematology, the American Society of Clinical Oncology, and the American Society for Transplantation and Cellular Therapy. Dr. DeZern’s principle research activities consist of designing and conducting clinical trials that test investigational new therapies and approaches in the treatment of bone marrow failure (aplastic anemia and myelodysplastic syndromes). She has specific expertise in the use of alternative donor bone marrow transplantation in patients with severe aplastic anemia and trials of novel therapeutics for patients with myelodysplastic syndromes. Additionally, she has taken a rigorous approach to the study of diagnostics and supportive case (such as transfusion practices) in these patient populations. She is or has been the Principal Investigator for a number of multicenter trials in collaboration with the MDS Clinical Research Consortium, the Eastern Co-operative Oncology Group (ECOG)-ACRIN and now the Bone Marrow Trials Clinical Trials Network (BMTCTN). She is the Study Chair for the multi-site BMTCTN study (CHAMP) investigating the role of haploidentical donor transplantation using post-transplantation cyclophosphamide in patients with relapsed several aplastic anemia. Dr. DeZern is the local PI as well as the Deputy Chair for The National MDS Study, a collaborative natural history study of the NHLBI and the NCI. As a clinical investigator with a focus on translation of novel treatments to the clinic, Dr. DeZern’s goal is to improve outcomes for patients with bone marrow failure at the bedside and in her research environment. Dr. Dezern is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), Chronic Myelomonocytic Leukemia (CMML), Bone Marrow Transplant, and Bone Marrow Aspiration.

    Jaroslaw Maciejewski
    Distinguished in Shwachman-Diamond Syndrome
    Distinguished in Shwachman-Diamond Syndrome

    Cleveland Clinic

    8950 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English
    Offers Telehealth

    Jaroslaw Maciejewski is a Hematologist in Cleveland, Ohio. Dr. Maciejewski is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Paroxysmal Cold Hemoglobinuria, Bone Marrow Transplant, and Splenectomy.

    Showing 1-20 of 2,329

    Last Updated: 02/22/2026

    What is the definition of Shwachman-Diamond Syndrome?

    Shwachman-Diamond syndrome is an inherited condition that affects many parts of the body, particularly the bone marrow, pancreas, and bones.

    When should I see a Shwachman-Diamond Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Shwachman-Diamond Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Shwachman-Diamond Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Shwachman-Diamond Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Shwachman-Diamond Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Shwachman-Diamond Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Shwachman-Diamond Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Shwachman-Diamond Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Shwachman-Diamond Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Shwachman-Diamond Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Shwachman-Diamond Syndrome doctors near me?

    Look for the filter feature on the left side of the Shwachman-Diamond Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Shwachman-Diamond Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Shwachman-Diamond Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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