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    Last Updated: 01/09/2026

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    MediFind found 1604 doctor with experience in Shwachman-Diamond Syndrome near The United States. Of these, 1401 are Experienced, 172 are Advanced, 27 are Distinguished and 3 are Elite.

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    1,604 providers found
      Elite in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology
      Elite in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Kasiani Myers is a Pediatric Hematologist Oncology provider in Cincinnati, Ohio. Dr. Myers is rated as an Elite provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Congenital Aplastic Anemia, Fanconi Anemia, Aplastic Anemia, and Bone Marrow Transplant.

      Elite in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology
      Elite in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Akiko Shimamura is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Shimamura is rated as an Elite provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Aplastic Anemia, Aase Syndrome, Familial Multiple Lipomatosis, and Bone Marrow Transplant.

      Elite in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology
      Elite in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology
      450 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Elissa Furutani is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Furutani is rated as an Elite provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Familial Multiple Lipomatosis, Aase Syndrome, and Chronic Graft Versus Host Disease (cGvHD).

      Learn about our expert tiers
      Carlos M. De Castro Iii
      Advanced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology
      Advanced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology

      Duke Blood Cancer Center

      2400 Pratt St, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Carlos De Castro Iii is a Hematologist Oncology specialist and a Hematologist in Durham, North Carolina. Dr. De Castro Iii is rated as an Advanced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Acute Myeloblastic Leukemia without Maturation, Acute Myeloid Leukemia (AML), and Bone Marrow Aspiration. Dr. De Castro Iii is currently accepting new patients.

      Timothy F. Goggins
      Advanced in Shwachman-Diamond Syndrome
      Hematology | Oncology
      Advanced in Shwachman-Diamond Syndrome
      Hematology | Oncology

      Vince Lombardi Cancer Clinic

      W180N11070 River Ln, 
      Germantown, WI 
      Languages Spoken:
      English
      Offers Telehealth

      Timothy Goggins is a Hematologist and an Oncologist in Germantown, Wisconsin. Dr. Goggins is rated as an Advanced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Non-Hodgkin Lymphoma, Colorectal Cancer, Familial Colorectal Cancer, and Testicular Yolk Sac Tumor.

      Advanced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Oncology
      Advanced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Oncology

      Temple Faculty Practice Plan Inc

      3401 N Broad St, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Henry Fung is a Hematologist Oncology specialist and a Hematologist in Philadelphia, Pennsylvania. Dr. Fung is rated as an Advanced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Hodgkin Lymphoma, Classical Hodgkin Lymphoma, Large-Cell Immunoblastic Lymphoma, Bone Marrow Transplant, and Bone Marrow Aspiration.

      Firas El Chaer
      Experienced in Shwachman-Diamond Syndrome
      Hematology | Hematology Oncology | Oncology
      Experienced in Shwachman-Diamond Syndrome
      Hematology | Hematology Oncology | Oncology

      Baptist Health Medical Group Oncology LLC

      8900 N Kendall Dr, 
      Miami, FL 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Firas El Chaer is a Hematologist and a Hematologist Oncology provider in Miami, Florida. Dr. El Chaer is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Myelodysplastic Syndrome (MDS), Childhood Acute Myeloid Leukemia, Acute Myeloblastic Leukemia with Maturation, Bone Marrow Aspiration, and Bone Marrow Transplant. Dr. El Chaer is currently accepting new patients.

      Taewoong Choi
      Experienced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Transplant Surgery
      Experienced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Transplant Surgery

      Duke Blood Cancer Center

      2400 Pratt St, 
      Durham, NC 
      Languages Spoken:
      English, Korean
      Accepting New Patients
      Offers Telehealth

      Taewoong Choi is a Hematologist Oncology specialist and a Hematologist in Durham, North Carolina. Dr. Choi is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Multiple Myeloma, Smoldering Multiple Myeloma, Monoclonal Gammopathy of Undetermined Significance (MGUS), Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Choi is currently accepting new patients.

      David A. Gass
      Experienced in Shwachman-Diamond Syndrome
      Hematology | Oncology
      Experienced in Shwachman-Diamond Syndrome
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Gass is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Gass is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Brain Tumor, Brain Stem Cancer, Agranulocytosis, and Glioma. Dr. Gass is currently accepting new patients.

      Demet G. Yasar
      Experienced in Shwachman-Diamond Syndrome
      Experienced in Shwachman-Diamond Syndrome

      Vince Lombardi Cancer Clinic

      2845 Greenbrier Rd, Ste 250, 
      Green Bay, WI 
      Languages Spoken:
      English
      Offers Telehealth

      Demet Yasar is a Hematologist in Green Bay, Wisconsin. Dr. Yasar is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Myelodysplastic Syndrome (MDS), Thrombocytopenia, ALK-Positive Non-Small Cell Lung Cancer, and Schnitzler Syndrome.

      Michael K. Keng
      Experienced in Shwachman-Diamond Syndrome
      Hematology | Oncology
      Experienced in Shwachman-Diamond Syndrome
      Hematology | Oncology

      University Of Virginia Physicians Group

      1240 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Michael Keng is a Hematologist and an Oncologist in Charlottesville, Virginia. Dr. Keng is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Acute Myeloblastic Leukemia without Maturation, Bone Marrow Aspiration, and Bone Marrow Transplant. Dr. Keng is currently accepting new patients.

      Adrianna Vlachos
      Distinguished in Shwachman-Diamond Syndrome
      Hematology | Pediatric Hematology Oncology
      Distinguished in Shwachman-Diamond Syndrome
      Hematology | Pediatric Hematology Oncology

      Johns Hopkins All Children's Outpatient Care, St. Petersburg

      Saint Petersburg, FL 
      Languages Spoken:
      English, Greek
      Offers Telehealth

      Dr. Vlachos is the chief of hematology in the Johns Hopkins All Children’s Hospital Cancer & Blood Disorders Institute in St. Petersburg, Florida, and professor of pediatrics (PAR) in the Johns Hopkins University School of Medicine. She joined the hospital staff in 2024. She was previously professor of pediatrics at Zucker School of Medicine at Hofstra/Northwell and attending physician in hematology/oncology at Cohen Children’s Medical Center/Northwell Health, where she was head of the Bone Marrow Failure Program and head of the pediatric hematology/oncology trials office. Dr. Vlachos is internationally known for clinical care and expertise in bone marrow failure syndromes and her transformational research in Diamond Blackfan anemia (DBA) syndrome, a rare inherited bone marrow failure syndrome. Dr. Vlachos is the founder and has directed the Diamond Blackfan Anemia Registry (DBAR) of North America since its inception in 1991. She is the principal investigator and co-investigator on multiple grants funded by the National Institute of Health and the Centers for Disease Control and Prevention. She has published numerous articles on her research findings and has been invited to author papers and book chapters on bone marrow failure syndromes and DBA. Dr. Vlachos is a member of the Medical and Scientific Advisory Board for the Shwachman-Diamond Syndrome Registry, is a member of the Scientific Advisory Board for the Diamond Blackfan Anemia Foundation and holds a position on the Scientific Program Committee for Bone Marrow Failure of the American Society of Hematology. She earned her medical degree from New York Medical College in Valhalla, New York. She completed her residency in pediatrics at North Shore University Hospital in Manhasset, New York. She then completed a clinical fellowship in bone marrow transplantation at North Shore University Hospital, followed by a fellowship in pediatric hematology-oncology and bone marrow transplantation at Mount Sinai Medical Center in New York. Videos Bone Marrow Failure Syndrome Expert Dr. Adrianna Vlachos at Johns Hopkins All Children’s. Dr. Vlachos is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Aplastic Anemia, and Transient Erythroblastopenia of Childhood.

      Ali-reza Golshayan
      Distinguished in Shwachman-Diamond Syndrome
      Hematology | Oncology
      Distinguished in Shwachman-Diamond Syndrome
      Hematology | Oncology

      Atrium Health Levine Cancer Institute, A Facility Of Carolinas Medical Center

      2610 Aberdeen Blvd., 
      Gastonia, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ali-reza Golshayan is a Hematologist and an Oncologist in Gastonia, North Carolina. Dr. Golshayan is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Fanconi Anemia, Ataxia-Pancytopenia Syndrome, Shwachman-Diamond Syndrome, Pure Red Cell Aplasia, and Lymphadenectomy. Dr. Golshayan is currently accepting new patients.

      Morgan L. Mclemore
      Distinguished in Shwachman-Diamond Syndrome
      Hematology Oncology
      Distinguished in Shwachman-Diamond Syndrome
      Hematology Oncology

      Emory Hemophilia Of Georgia

      550 Peachtree Street Northeast, MedicalOfficeTower, 
      Atlanta, GA 
      Experience:
      36+ years
      Languages Spoken:
      English
      Offers Telehealth

      Morgan Mclemore is a Hematologist Oncology provider in Atlanta, Georgia. Dr. Mclemore has been practicing medicine for over 36 years and is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Sickle Cell Disease, Hemoglobinopathy, Fanconi Anemia, Bone Marrow Aspiration, and Splenectomy.

      Seth Corey
      Distinguished in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology
      Distinguished in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology
      9500 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English

      Seth Corey is a Pediatric Hematologist Oncology provider in Cleveland, Ohio. Dr. Corey is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Infantile Neutropenia, Shwachman-Diamond Syndrome, Familial Multiple Lipomatosis, and Wiskott-Aldrich Syndrome.

      Eleny C. Romanos
      Distinguished in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology | Pediatrics
      Distinguished in Shwachman-Diamond Syndrome
      Pediatric Hematology Oncology | Pediatrics

      Northwell Health Florina Cancer Center

      475 Seaview Avenue, 
      Staten Island, NY 
      Languages Spoken:
      English

      Eleny Romanos is a Pediatrics specialist and a Pediatric Hematologist Oncology provider in Staten Island, New York. Dr. Romanos is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Shwachman-Diamond Syndrome, Infantile Neutropenia, Sickle Cell Disease, and Febrile Neutropenia.

      Amy Dezern
      Distinguished in Shwachman-Diamond Syndrome
      Oncology | Hematology
      Distinguished in Shwachman-Diamond Syndrome
      Oncology | Hematology

      Sidney Kimmel Comprehensive Cancer Center

      401 North Broadway Street, Weinberg BLDG, Weinberg BLDG, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Dr. DeZern is a Professor of Oncology and Medicine at The Johns Hopkins University School of Medicine. She is active in the Division of Hematology Malignancies, Leukemia Program at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins. Dr. DeZern has expertise in aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, acute myeloid leukemia, and bone marrow transplantation. Dr. DeZern received her medical degree at The Johns Hopkins University School of Medicine. She completed a residency in internal medicine at Johns Hopkins, followed by fellowships in medical oncology and hematology, as well as obtained a Masters in Clinical Investigations at the Bloomberg School of Public health. Dr. DeZern is a member of the American Society of Hematology, the American Society of Clinical Oncology, and the American Society for Transplantation and Cellular Therapy. Dr. DeZern’s principle research activities consist of designing and conducting clinical trials that test investigational new therapies and approaches in the treatment of bone marrow failure (aplastic anemia and myelodysplastic syndromes). She has specific expertise in the use of alternative donor bone marrow transplantation in patients with severe aplastic anemia and trials of novel therapeutics for patients with myelodysplastic syndromes. Additionally, she has taken a rigorous approach to the study of diagnostics and supportive case (such as transfusion practices) in these patient populations. She is or has been the Principal Investigator for a number of multicenter trials in collaboration with the MDS Clinical Research Consortium, the Eastern Co-operative Oncology Group (ECOG)-ACRIN and now the Bone Marrow Trials Clinical Trials Network (BMTCTN). She is the Study Chair for the multi-site BMTCTN study (CHAMP) investigating the role of haploidentical donor transplantation using post-transplantation cyclophosphamide in patients with relapsed several aplastic anemia. Dr. DeZern is the local PI as well as the Deputy Chair for The National MDS Study, a collaborative natural history study of the NHLBI and the NCI. As a clinical investigator with a focus on translation of novel treatments to the clinic, Dr. DeZern’s goal is to improve outcomes for patients with bone marrow failure at the bedside and in her research environment. Dr. Dezern is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. Her top areas of expertise are Myelodysplastic Syndrome (MDS), Chronic Myelomonocytic Leukemia (CMML), Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration.

      Jaroslaw Maciejewski
      Distinguished in Shwachman-Diamond Syndrome
      Distinguished in Shwachman-Diamond Syndrome

      Cleveland Clinic

      8950 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Offers Telehealth

      Jaroslaw Maciejewski is a Hematologist in Cleveland, Ohio. Dr. Maciejewski is rated as a Distinguished provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Paroxysmal Cold Hemoglobinuria, Bone Marrow Transplant, and Splenectomy.

      Experienced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Oncology

      Orlando Health Medical Group Inc

      2565 Enterprise Rd, 
      Orange City, FL 
      Languages Spoken:
      English, Hindi, Urdu
      Accepting New Patients
      Offers Telehealth

      Asad Sheikh is a Hematologist Oncology specialist and a Hematologist in Orange City, Florida. Dr. Sheikh is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are ALK-Positive Non-Small Cell Lung Cancer, Lung Adenocarcinoma, Small Cell Lung Cancer (SCLC), and Squamous Cell Lung Carcinoma. Dr. Sheikh is currently accepting new patients.

      Experienced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in Shwachman-Diamond Syndrome
      Hematology Oncology | Hematology | Oncology

      Maine Center For Cancer Medicine And Blood Disorders PA

      2 Independence Dr, 
      Kennebunk, ME 
      Languages Spoken:
      English

      Julio Hajdenberg is a Hematologist Oncology specialist and a Hematologist in Kennebunk, Maine. Dr. Hajdenberg is rated as an Experienced provider by MediFind in the treatment of Shwachman-Diamond Syndrome. His top areas of expertise are Reticulohistiocytoma, Histiocytosis, Factor 5 Deficiency, Prostate Cancer, and Bone Marrow Aspiration.

      Showing 1-20 of 1,604

      Last Updated: 01/09/2026

      What is the definition of Shwachman-Diamond Syndrome?

      Shwachman-Diamond syndrome is an inherited condition that affects many parts of the body, particularly the bone marrow, pancreas, and bones.

      When should I see a Shwachman-Diamond Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Shwachman-Diamond Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Shwachman-Diamond Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Shwachman-Diamond Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Shwachman-Diamond Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Shwachman-Diamond Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Shwachman-Diamond Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Shwachman-Diamond Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Shwachman-Diamond Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Shwachman-Diamond Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Shwachman-Diamond Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Shwachman-Diamond Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Shwachman-Diamond Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Shwachman-Diamond Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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