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Skeletal-Extraskeletal Angiomatosis
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Condition:
Hemangioblastoma
Journal:
Journal of clinical neuroscience : official journal of the Neurosurgical Society of Australasia
Treatment Used:
Linear Accelerator Stereotactic Radiosurgery
Number of Patients:
14
Published —
December 15, 2020
This study tested the safety and efficacy of using linear accelerator stereotactic radiosurgery to treat patients with hemangioblastoma.
Condition:
Gorham-Stout Disease During the Recurrent Meningitis and Cholesteatoma
Journal:
Journal of otolaryngology - head & neck surgery = Le Journal d'oto-rhino-laryngologie et de chirurgie cervico-faciale
Treatment Used:
Conservative Treatment with Infection Control
Number of Patients:
1
Published —
April 18, 2020
This case report describes a 25-year-old male diagnosed with Gorham-Stout disease (bone disorder) with recurrent cerebrospinal leakage after surgery to treat cholesteatoma treated with conservative treatment with infection control.
Condition:
Chylothorax with Unilateral Limb Swelling
Journal:
BMJ case reports
Treatment Used:
Drainage followed by Pleurodesis, Parenteral Nutrition and Radiotherapy
Number of Patients:
1
Published —
February 13, 2020
This case report discusses a 26-month male toddler diagnosed with right chylothorax (lymph fluid in lungs) and Gorham's syndrome treated with drainage of chylothorax followed by pleurodesis, parenteral nutrition and radiotherapy.
Condition:
Gorham-Stout Disease
Journal:
Acta orthopaedica
Treatment Used:
Bisphosphonate Treatment
Number of Patients:
7
Published —
January 14, 2020
In this study, researchers evaluated the outcomes of using bisphosphonate therapy for the treatment of Gorham-Stout disease.
Condition:
Central Nervous System Hemangioblastomas
Journal:
Clinical neurology and neurosurgery
Treatment Used:
Surgical Excision
Number of Patients:
33
Published —
December 06, 2019
This study tested the safety and efficacy of using surgical excision to treat patients aged over 65 years with central nervous system hemangioblastomas.
Condition:
Patients with Lymphatic Anomalies (LAs)
Journal:
Orphanet journal of rare diseases
Treatment Used:
Sirolimus Therapy
Number of Patients:
20
Published —
June 15, 2019
This study examined the effectiveness and safety of sirolimus treatment in patients with progressive lymphatic anomalies (LAs).
Condition:
Gorham Stout Disease (GSD) with Skull-Base Defects
Journal:
International journal of pediatric otorhinolaryngology
Treatment Used:
Surgical Repair
Number of Patients:
6
Published —
June 14, 2019
This case series describes patients with Gorham Stout disease (lymphatic disorder; GSD) with skull-base defects treated with surgical repair.
Condition:
Cystic Cerbellar Hemangioblastoma
Journal:
World neurosurgery
Treatment Used:
Endoscopic Transcranial Surgery
Number of Patients:
2
Published —
March 30, 2019
This study evaluated endoscopic transcranial surgery in patients with cystic cerebellar hemangioblastoma (benign brain tumor).
Condition:
Generalized Lymphatic Anomaly with Gorham-Stout Disease
Journal:
Pediatric blood & cancer
Treatment Used:
Systemic Sirolimus
Number of Patients:
18
Published —
January 24, 2019
This study tested the safety and efficacy of using systemic sirolimus to treat patients with generalized lymphatic anomaly from Gorham-Stout disease.
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