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    Last Updated: 01/09/2026

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    MediFind found 44 doctor with experience in Sotos Syndrome near Germany. Of these, 41 are Experienced and 3 are Advanced.

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    44 providers found
      Advanced in Sotos Syndrome

      Anna S. Jauch
      Advanced in Sotos Syndrome

      Anna S. Jauch
      Heidelberg, BW, DE 

      Anna Jauch practices in Heidelberg, Germany. Ms. Jauch is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Multiple Myeloma, Primary Amyloidosis, Smoldering Multiple Myeloma, Sotos Syndrome, and Bone Marrow Transplant.

      Advanced in Sotos Syndrome

      Katrin Hinderhofer
      Advanced in Sotos Syndrome

      Katrin Hinderhofer
      Heidelberg, BW, DE 

      Katrin Hinderhofer practices in Heidelberg, Germany. Ms. Hinderhofer is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Toriello-Carey Syndrome, Pulmonary Hypertension, Premature Ovarian Failure, and Hypertension.

      Advanced in Sotos Syndrome

      Ute Moog
      Advanced in Sotos Syndrome

      Ute Moog
      Heidelberg, BW, DE 

      Ute Moog practices in Heidelberg, Germany. Ms. Moog is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Toriello-Carey Syndrome, Oculocerebrocutaneous Syndrome, Mosaicism, and SHORT Syndrome.

      Learn about our expert tiers
      Experienced in Sotos Syndrome

      Jasmina Comic
      Experienced in Sotos Syndrome

      Jasmina Comic
      Munich, BY, DE 

      Jasmina Comic practices in Munich, Germany. Ms. Comic is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Alport Syndrome, Sotos Syndrome, VACTERL Association, and Focal Segmental Glomerulosclerosis.

      Experienced in Sotos Syndrome

      Eva C. Schwaibold
      Experienced in Sotos Syndrome

      Eva C. Schwaibold
      Heidelberg, BW, DE 

      Eva Schwaibold practices in Heidelberg, Germany. Ms. Schwaibold is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Congenital Contractures, Arthrogryposis Multiplex Congenita, and Papular Mucinosis.

      Experienced in Sotos Syndrome

      Sabine Derr-Grasshoff
      Experienced in Sotos Syndrome

      Sabine Derr-Grasshoff
      Frankfurt Am Main, HE, DE 

      Sabine Derr-Grasshoff practices in Frankfurt Am Main, Germany. Ms. Derr-Grasshoff is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are VACTERL Association, Imperforate Anus, Tracheoesophageal Fistula, and Gastrointestinal Fistula.

      Experienced in Sotos Syndrome

      Theresa Brunet
      Experienced in Sotos Syndrome

      Theresa Brunet
      Munich, BY, DE 

      Theresa Brunet practices in Munich, Germany. Ms. Brunet is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Hypotonia, Stereotypic Movement Disorder, Lethal Congenital Contracture Syndrome, and Klippel-Feil Syndrome.

      Experienced in Sotos Syndrome

      Erik Tilch
      Experienced in Sotos Syndrome

      Erik Tilch
      Munich, BY, DE 

      Erik Tilch practices in Munich, Germany. Mr. Tilch is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Restless Legs Syndrome, VACTERL Association, Sotos Syndrome, and Movement Disorders.

      Experienced in Sotos Syndrome

      Kristian W. Pajtler
      Experienced in Sotos Syndrome

      Kristian W. Pajtler
      Heidelberg, BW, DE 

      Kristian Pajtler practices in Heidelberg, Germany. Pajtler is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Their top areas of expertise are Ependymoma, Gliomatosis Cerebri, Glioma, Brain Tumor, and Tissue Biopsy.

      Experienced in Sotos Syndrome

      Katharina Vill
      Experienced in Sotos Syndrome

      Katharina Vill
      Dr. Von Haunersches Kinderspital, 
      Munich, BY, DE 

      Katharina Vill practices in Munich, Germany. Ms. Vill is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 3, and Thrombectomy.

      Experienced in Sotos Syndrome

      Jasmin Beygo
      Experienced in Sotos Syndrome

      Jasmin Beygo
      Essen, NW, DE 

      Jasmin Beygo practices in Essen, Germany. Ms. Beygo is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Macroglossia, Gigantism, Beckwith-Wiedemann Syndrome, and Angelman Syndrome.

      Experienced in Sotos Syndrome

      Melanie S. Brugger
      Experienced in Sotos Syndrome

      Melanie S. Brugger
      Munich, BY, DE 

      Melanie Brugger practices in Munich, Germany. Ms. Brugger is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, West Syndrome, Lethal Congenital Contracture Syndrome, and Primary Lateral Sclerosis.

      Experienced in Sotos Syndrome

      Udo Rolle
      Experienced in Sotos Syndrome

      Udo Rolle
      Frankfurt Am Main, HE, DE 

      Udo Rolle practices in Frankfurt Am Main, Germany. Rolle is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Their top areas of expertise are Omphalocele, Atresia of Small Intestine, Umbilical Hernia, Appendectomy, and Gastrostomy.

      Experienced in Sotos Syndrome

      Ekkehart Jenetzky
      Experienced in Sotos Syndrome

      Ekkehart Jenetzky
      Mainz, RP, DE 

      Ekkehart Jenetzky practices in Mainz, Germany. Jenetzky is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Their top areas of expertise are Imperforate Anus, Exstrophy of the Bladder, VACTERL Association, Thrombectomy, and Reconstructive Urology Surgery.

      Experienced in Sotos Syndrome

      Stefan M. Pfister
      Experienced in Sotos Syndrome

      Stefan M. Pfister
      Heidelberg, BW, DE 

      Stefan Pfister practices in Heidelberg, Germany. Mr. Pfister is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Ependymoma, Medulloblastoma, Brain Tumor, Gliomatosis Cerebri, and Tissue Biopsy.

      Experienced in Sotos Syndrome

      Eberhard Schmiedeke
      Experienced in Sotos Syndrome

      Eberhard Schmiedeke
      Bremen, HB, DE 

      Eberhard Schmiedeke practices in Bremen, Germany. Mr. Schmiedeke is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Imperforate Anus, VACTERL Association, Exstrophy of the Bladder, Tracheoesophageal Fistula, and Reconstructive Urology Surgery.

      Experienced in Sotos Syndrome

      Oliver Stegle
      Experienced in Sotos Syndrome

      Oliver Stegle
      Heidelberg, BW, DE 

      Oliver Stegle practices in Heidelberg, Germany. Mr. Stegle is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Medulloblastoma, Sotos Syndrome, Embryonal Tumor with Multilayered Rosettes, and Bardet-Biedl Syndrome.

      Experienced in Sotos Syndrome

      Michael Zech
      Experienced in Sotos Syndrome

      Michael Zech
      Munich, BY, DE 

      Michael Zech practices in Munich, Germany. Mr. Zech is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Drug Induced Dyskinesia, Focal Dystonia, Movement Disorders, Deep Brain Stimulation, and Gastrostomy.

      Experienced in Sotos Syndrome

      Michaela Gessner
      Experienced in Sotos Syndrome

      Michaela Gessner
      Tuebingen, BW, DE 

      Michaela Gessner practices in Tuebingen, Germany. Ms. Gessner is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Nephrocalcinosis, Polycystic Kidney Disease, Bardet-Biedl Syndrome, and Nephrectomy.

      Experienced in Sotos Syndrome

      Peter M. Krawitz
      Experienced in Sotos Syndrome

      Peter M. Krawitz
      Bonn, NW, DE 

      Peter Krawitz practices in Bonn, Germany. Mr. Krawitz is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Glucose Phosphate Isomerase Deficiency, Fryns Syndrome, Crouzon Syndrome, and KBG Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 44

      Last Updated: 01/09/2026

      What is the definition of Sotos Syndrome?

      Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development of mental and movement abilities. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin.  In addition, the outside corners of the eyes may point downward (down-slanting palpebral fissures). This facial appearance is most notable in early childhood. Affected infants and children tend to grow quickly; they are significantly taller than their siblings and peers and have an unusually large head. However, adult height is usually in the normal range.

      When should I see a Sotos Syndrome doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sotos Syndrome doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Sotos Syndrome doctor in Germany?

      You can find a Sotos Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Sotos Syndrome doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sotos Syndrome doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sotos Syndrome doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sotos Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sotos Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sotos Syndrome doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sotos Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sotos Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sotos Syndrome doctors in Germany?

      Look for the filter feature on the left side of the Sotos Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sotos Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sotos Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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