The 20 Best Sotos Syndrome Doctors in Germany

Find the Top Sotos Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 43 doctor with experience in Sotos Syndrome near Germany. Of these, 40 are Experienced and 3 are Advanced.

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43 providers found
    Advanced in Sotos Syndrome

    Anna S. Jauch
    Advanced in Sotos Syndrome

    Anna S. Jauch
    Referral may be required
    Heidelberg, BW, DE 

    Anna Jauch practices practicing medicine in Heidelberg, Germany. Ms. Jauch is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Multiple Myeloma, Primary Amyloidosis, Smoldering Multiple Myeloma, Sotos Syndrome, and Bone Marrow Transplant.

    Advanced in Sotos Syndrome

    Ute Moog
    Advanced in Sotos Syndrome

    Ute Moog
    Referral may be required
    Heidelberg, BW, DE 

    Ute Moog practices practicing medicine in Heidelberg, Germany. Ms. Moog is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Toriello-Carey Syndrome, Oculocerebrocutaneous Syndrome, Mosaicism, and Cerebellar Hypoplasia.

    Advanced in Sotos Syndrome

    Katrin Hinderhofer
    Advanced in Sotos Syndrome

    Katrin Hinderhofer
    Referral may be required
    Heidelberg, BW, DE 

    Katrin Hinderhofer practices practicing medicine in Heidelberg, Germany. Ms. Hinderhofer is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Toriello-Carey Syndrome, Pulmonary Hypertension, Premature Ovarian Failure, and Hypertension.

    Learn about our expert tiers
    Experienced in Sotos Syndrome

    Jasmina Comic
    Experienced in Sotos Syndrome

    Jasmina Comic
    Referral may be required
    Munich, BY, DE 

    Jasmina Comic practices practicing medicine in Munich, Germany. Ms. Comic is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Alport Syndrome, Sotos Syndrome, VACTERL Association, and Focal Segmental Glomerulosclerosis.

    Experienced in Sotos Syndrome

    Eva C. Schwaibold
    Experienced in Sotos Syndrome

    Eva C. Schwaibold
    Referral may be required
    Heidelberg, BW, DE 

    Eva Schwaibold practices practicing medicine in Heidelberg, Germany. Ms. Schwaibold is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her clinical expertise encompasses Sotos Syndrome, Congenital Contractures, Arthrogryposis Multiplex Congenita, and Scleromyxedema.

    Experienced in Sotos Syndrome

    Erik Tilch
    Experienced in Sotos Syndrome

    Erik Tilch
    Referral may be required
    Munich, BY, DE 

    Erik Tilch practices practicing medicine in Munich, Germany. Mr. Tilch is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Restless Legs Syndrome, VACTERL Association, Sotos Syndrome, and Focal Dystonia.

    Experienced in Sotos Syndrome

    Kristian W. Pajtler
    Experienced in Sotos Syndrome

    Kristian W. Pajtler
    Referral may be required
    Heidelberg, BW, DE 

    Kristian Pajtler practices practicing medicine in Heidelberg, Germany. Pajtler is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. They are also highly rated in 12 other conditions, according to our data. Their clinical expertise encompasses Ependymoma, Gliomatosis Cerebri, Glioma, Brain Tumor, and Tissue Biopsy.

    Experienced in Sotos Syndrome

    Sabine Derr-Grasshoff
    Experienced in Sotos Syndrome

    Sabine Derr-Grasshoff
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Sabine Derr-Grasshoff practices practicing medicine in Frankfurt Am Main, Germany. Ms. Derr-Grasshoff is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses VACTERL Association, Imperforate Anus, Sotos Syndrome, and Gastrointestinal Fistula.

    Experienced in Sotos Syndrome

    Katharina Vill
    Experienced in Sotos Syndrome

    Katharina Vill
    Referral may be required
    Dr. Von Haunersches Kinderspital, 
    Munich, BY, DE 

    Katharina Vill practices practicing medicine in Munich, Germany. Ms. Vill is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 3, and Thrombectomy.

    Experienced in Sotos Syndrome

    Frank-mattias M. Schafer
    Experienced in Sotos Syndrome

    Frank-mattias M. Schafer
    Referral may be required
    Hospital St. Hedwig Of The Order Of St. John Of God, 
    Regensburg, BY, DE 

    Frank-mattias Schafer practices practicing medicine in Regensburg, Germany. Schafer is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses VACTERL Association, Exstrophy of the Bladder, Mixed Gonadal Dysgenesis, Reconstructive Urology Surgery, and Endoscopy.

    Experienced in Sotos Syndrome

    Udo Rolle
    Experienced in Sotos Syndrome

    Udo Rolle
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Udo Rolle practices practicing medicine in Frankfurt Am Main, Germany. Rolle is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. They are also highly rated in 14 other conditions, according to our data. Their clinical expertise encompasses Omphalocele, Umbilical Hernia, Atresia of Small Intestine, Appendectomy, and Gastrostomy.

    Experienced in Sotos Syndrome

    Ekkehart Jenetzky
    Experienced in Sotos Syndrome

    Ekkehart Jenetzky
    Referral may be required
    Mainz, RP, DE 

    Ekkehart Jenetzky practices practicing medicine in Mainz, Germany. Jenetzky is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Imperforate Anus, Exstrophy of the Bladder, Epispadias, Thrombectomy, and Ileostomy.

    Experienced in Sotos Syndrome

    Stefan M. Pfister
    Experienced in Sotos Syndrome

    Stefan M. Pfister
    Referral may be required
    Heidelberg, BW, DE 

    Stefan Pfister practices practicing medicine in Heidelberg, Germany. Mr. Pfister is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Medulloblastoma, Ependymoma, Brain Tumor, Gliomatosis Cerebri, and Tissue Biopsy.

    Experienced in Sotos Syndrome

    Nataliya Di Donato
    Experienced in Sotos Syndrome

    Nataliya Di Donato
    Referral may be required
    Hannover, NI, DE 

    Nataliya Di Donato practices practicing medicine in Hannover, Germany. Ms. Di Donato is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Lissencephaly, Focal or Multifocal Malformations in Neuronal Migration, Cortical Dysplasia, and Subcortical Band Heterotopia.

    Experienced in Sotos Syndrome

    Oliver Stegle
    Experienced in Sotos Syndrome

    Oliver Stegle
    Referral may be required
    Heidelberg, BW, DE 

    Oliver Stegle practices practicing medicine in Heidelberg, Germany. Mr. Stegle is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His clinical expertise encompasses Medulloblastoma, Sotos Syndrome, Embryonal Tumor with Multilayered Rosettes, and Bardet-Biedl Syndrome.

    Experienced in Sotos Syndrome

    Michael Zech
    Experienced in Sotos Syndrome

    Michael Zech
    Referral may be required
    Munich, BY, DE 

    Michael Zech practices practicing medicine in Munich, Germany. Mr. Zech is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Focal Dystonia, Movement Disorders, Deep Brain Stimulation, and Gastrostomy.

    Experienced in Sotos Syndrome

    Michaela Gessner
    Experienced in Sotos Syndrome

    Michaela Gessner
    Referral may be required
    Munich, BY, DE 

    Michaela Gessner practices practicing medicine in Munich, Germany. Ms. Gessner is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Nephrocalcinosis, Polycystic Kidney Disease, Kidney Transplant, and Nephrectomy.

    Experienced in Sotos Syndrome

    Jasmin Beygo
    Experienced in Sotos Syndrome

    Jasmin Beygo
    Referral may be required
    Essen, NW, DE 

    Jasmin Beygo practices practicing medicine in Essen, Germany. Ms. Beygo is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Macroglossia, Gigantism, Beckwith-Wiedemann Syndrome, and Angelman Syndrome.

    Experienced in Sotos Syndrome

    Melanie S. Brugger
    Experienced in Sotos Syndrome

    Melanie S. Brugger
    Referral may be required
    Munich, BY, DE 

    Melanie Brugger practices practicing medicine in Munich, Germany. Ms. Brugger is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Lethal Congenital Contracture Syndrome, West Syndrome, and Primary Lateral Sclerosis.

    Experienced in Sotos Syndrome

    Anke Widenmann
    Experienced in Sotos Syndrome

    Anke Widenmann
    Referral may be required
    Stuttgart, BW, DE 

    Anke Widenmann practices practicing medicine in Stuttgart, Germany. Ms. Widenmann is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Esophageal Atresia, Tracheoesophageal Fistula, VACTERL Association, and Sotos Syndrome.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 43

    Last Updated: 06/30/2026

    What is the definition of Sotos Syndrome?

    Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development of mental and movement abilities. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin.  In addition, the outside corners of the eyes may point downward (down-slanting palpebral fissures). This facial appearance is most notable in early childhood. Affected infants and children tend to grow quickly; they are significantly taller than their siblings and peers and have an unusually large head. However, adult height is usually in the normal range.

    When should I see a Sotos Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Sotos Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Sotos Syndrome doctor in Germany?

    You can find a Sotos Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Sotos Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Sotos Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Sotos Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sotos Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Sotos Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Sotos Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Sotos Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Sotos Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Sotos Syndrome doctors in Germany?

    Look for the filter feature on the left side of the Sotos Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Sotos Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Sotos Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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