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    Last Updated: 01/09/2026

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    MediFind found 71 doctor with experience in Sotos Syndrome near The United Kingdom. Of these, 59 are Experienced, 9 are Advanced and 3 are Distinguished.

    Location
    LocationClose
    71 providers found
      Distinguished in Sotos Syndrome
      Distinguished in Sotos Syndrome
      //ror.org/04fx4cs28Tavistock And Portman NHS Foundation Trust, 
      London, ENG, GB 

      Chloe Lane practices in London, United Kingdom. Ms. Lane is rated as a Distinguished expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Gigantism, Autism Spectrum Disorder, and Russell-Silver Dwarfism.

      Distinguished in Sotos Syndrome
      Distinguished in Sotos Syndrome
      University Park, 
      Nottingham, ENG, GB 

      Megan Freeth practices in Nottingham, United Kingdom. Ms. Freeth is rated as a Distinguished expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Autism Spectrum Disorder, Gigantism, and Williams Syndrome.

      Distinguished in Sotos Syndrome
      Distinguished in Sotos Syndrome
      Exeter, ENG, GB 

      Alison Foster practices in Exeter, United Kingdom. Ms. Foster is rated as a Distinguished expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Weaver Syndrome, Gigantism, and Camptodactyly Fibrous Tissue Hyperplasia Skeletal Dysplasia.

      Learn about our expert tiers
      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      St George's University Of London, 
      London, ENG, GB 

      Katrina Brown-Tatton practices in London, United Kingdom. Ms. Brown-Tatton is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Weaver Syndrome, Sotos Syndrome, Macroglossia, and Micrognathia.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Birmingham, ENG, GB 

      Trevor Cole practices in Birmingham, United Kingdom. Mr. Cole is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Weaver Syndrome, Cytochrome P450 Oxidoreductase Deficiency, Sotos Syndrome, and Intersex.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Cathedral Court, 1 Vicar Lane, S1 2LT, 
      Sheffield, ENG, GB 

      Elizabeth Milne practices in Sheffield, United Kingdom. Ms. Milne is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Autism Spectrum Disorder, Juvenile Primary Osteoporosis, and Gigantism.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome

      Great Ormond Street Hospital For Children

      London, ENG, GB 

      Felice D'arco practices in London, United Kingdom. Ms. D'arco is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Cortical Dysplasia, Branchiootorenal Syndrome, Branchio-Oculo-Facial Syndrome (BOFS), and Sotos Syndrome.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Queen Square, 
      London, ENG, GB 

      Kshitij Mankad practices in London, United Kingdom. Mankad is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Their top areas of expertise are Dandy-Walker Syndrome, Cortical Dysplasia, Posterior Fossa Tumor, Selective Mutism, and Rhizotomy.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      London, ENG, GB 

      Jo Van Herwegen practices in London, United Kingdom. Ms. Van Herwegen is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Williams Syndrome, Down Syndrome, Sotos Syndrome, and Autism Spectrum Disorder.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Sheffield, ENG, GB 

      Meena Balasubramanian practices in Sheffield, United Kingdom. Ms. Balasubramanian is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Osteogenesis Imperfecta, Carpenter Syndrome, Hydrocephalus Skeletal Anomalies, and Recessive Chondrodysplasia Punctata 1.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Glasgow, SCT, GB 

      Shelagh Joss practices in Glasgow, United Kingdom. Ms. Joss is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Hypotonia, Achalasia Microcephaly Syndrome, Microcephaly, and Cortical Dysplasia.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Cambridge, ENG, GB 

      Ruth Armstrong practices in Cambridge, United Kingdom. Ms. Armstrong is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Multiple Endocrine Neoplasia Type 2, Sotos Syndrome, Brachyolmia, and Multiple Endocrine Neoplasia.

      Hywel C. Williams
      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      University Park, 
      Nottingham, ENG, GB 

      Hywel Williams practices in Nottingham, United Kingdom. Mr. Williams is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Atopic Dermatitis, Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, and Pyoderma Gangrenosum.

      Wolf Reik
      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Hills Road, 
      Cambridge, ENG, GB 

      Wolf Reik practices in Cambridge, United Kingdom. Mr. Reik is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Cerebral Hypoxia, Sotos Syndrome, and Gigantism.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      London, ENG, GB 

      Harriet Smith practices in London, United Kingdom. Ms. Smith is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Tinnitus, Sotos Syndrome, Developmental Expressive Language Disorder, and Gigantism.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      London, ENG, GB 

      Daniel Herranz-Martin practices in London, United Kingdom. Mr. Herranz-Martin is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Sotos Syndrome and Gigantism.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Belfast, NIR, GB 

      Colin Leonard practices in Belfast, United Kingdom. Mr. Leonard is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Cholesteatoma, Sotos Syndrome, Croup, Schwannoma, and Mastoidectomy.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome

      Great Ormond Street Hospital For Children

      London, ENG, GB 

      Manuela Cerbone practices in London, United Kingdom. Ms. Cerbone is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Septo-Optic Dysplasia, Hypothyroidism, Hypopituitarism, Neurohypophyseal Diabetes Insipidus, and Hormone Replacement Therapy (HRT).

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Charterhouse Square, 
      London, ENG, GB 

      Marta Korbonits practices in London, United Kingdom. Ms. Korbonits is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Hypothalamic Tumor, Pituitary Tumor, Gigantism, Hormone Replacement Therapy (HRT), and Oophorectomy.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome

      Great Ormond Street Hospital For Children NHS Trust

      London, ENG, GB 

      Mehul Dattani practices in London, United Kingdom. Mr. Dattani is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Septo-Optic Dysplasia, Hypopituitarism, Growth Hormone Deficiency (GHD), Hormone Replacement Therapy (HRT), and Pancreatectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 71

      Last Updated: 01/09/2026

      What is the definition of Sotos Syndrome?

      Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development of mental and movement abilities. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin.  In addition, the outside corners of the eyes may point downward (down-slanting palpebral fissures). This facial appearance is most notable in early childhood. Affected infants and children tend to grow quickly; they are significantly taller than their siblings and peers and have an unusually large head. However, adult height is usually in the normal range.

      When should I see a Sotos Syndrome doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sotos Syndrome doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Sotos Syndrome doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sotos Syndrome doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sotos Syndrome doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sotos Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sotos Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sotos Syndrome doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sotos Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sotos Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sotos Syndrome doctors in The United Kingdom?

      Look for the filter feature on the left side of the Sotos Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sotos Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sotos Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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