Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 01/09/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 22 doctor with experience in Sotos Syndrome near Netherlands. Of these, 19 are Experienced and 3 are Advanced.

    Location
    LocationClose
    22 providers found
      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Amsterdam, NH, NL 

      Leonie Menke practices in Amsterdam, Netherlands. Ms. Menke is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Marfan Syndrome, Achard Syndrome, Arachnodactyly, and Rubinstein-Taybi Syndrome.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Amsterdam, NH, NL 

      Henriette Van Der Horst practices in Amsterdam, Netherlands. Ms. Van Der Horst is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Vertigo, Insomnia, and Osteoporosis.

      Advanced in Sotos Syndrome
      Advanced in Sotos Syndrome
      Amsterdam, NH, NL 

      Arend Bokenkamp practices in Amsterdam, Netherlands. Mr. Bokenkamp is rated as an Advanced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Schimke Immuno-Osseous Dysplasia, Dent Disease, Lowe Syndrome, Kidney Transplant, and Nephrectomy.

      Learn about our expert tiers
      Carsten R. Lincke
      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome

      Erasmus MC Sophia

      Rotterdam, ZH, NL 

      Carsten Lincke practices in Rotterdam, Netherlands. Mr. Lincke is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Cerebellar Agenesis, Bone Dysplasia Corpus Callosum Agenesis, Sotos Syndrome, and Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2).

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Judith Bosschieter practices in Amsterdam, Netherlands. Ms. Bosschieter is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Bladder Cancer, Non-Muscle Invasive Bladder Cancer, Sotos Syndrome, Cystectomy, and Endoscopy.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Marjolein Weerts practices in Rotterdam, Netherlands. Weerts is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Their top areas of expertise are Sotos Syndrome, Breast Cancer, Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), and Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1).

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Inge Mathijssen practices in Amsterdam, Netherlands. Ms. Mathijssen is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Marshall-Smith Syndrome, Septo-Optic Dysplasia, Arthrogryposis Multiplex Congenita, and Congenital Contractures.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Groningen, GR, NL 

      Paul Mulder practices in Groningen, Netherlands. Mr. Mulder is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Marshall-Smith Syndrome, Cornelia De Lange Syndrome, Septo-Optic Dysplasia, and West Syndrome.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Nazanin Ahmadi practices in Amsterdam, Netherlands. Ms. Ahmadi is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Synovitis, Pulmonary Valve Stenosis, and Hydronephrosis.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Rotterdam, ZH, NL 

      Danielle Veenma practices in Rotterdam, Netherlands. Ms. Veenma is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Diaphragmatic Hernia, Congenital Diaphragmatic Hernia, Craniofrontonasal Dysplasia, and Hernia.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Rotterdam, ZH, NL 

      Saskia Gischler practices in Rotterdam, Netherlands. Ms. Gischler is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Diaphragmatic Hernia, Congenital Diaphragmatic Hernia, Esophageal Atresia, and Meconium Aspiration Syndrome.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Saskia Maas practices in Amsterdam, Netherlands. Ms. Maas is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Macroglossia, Beckwith-Wiedemann Syndrome, Gigantism, Marshall-Smith Syndrome, and Glossectomy.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Yvette Van Ierland practices in Rotterdam, Netherlands. Ms. Van Ierland is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Increased Head Circumference, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Ruvalcaba Syndrome.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Marielle Alders practices in Amsterdam, Netherlands. Ms. Alders is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Van Maldergem Syndrome, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, Blepharophimosis, and Long QT Syndrome.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Leiden, ZH, NL 

      Emilia Bijlsma practices in Leiden, Netherlands. Ms. Bijlsma is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Huntington Disease, Atresia of Small Intestine, Pitt-Hopkins Syndrome, and Marshall-Smith Syndrome.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Leiden, ZH, NL 

      Arie Van Haeringen practices in Leiden, Netherlands. Van Haeringen is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Their top areas of expertise are Coffin-Siris Syndrome, Increased Head Circumference, Macrodactyly of the Foot, and Marshall-Smith Syndrome.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Sylvia Huisman practices in Amsterdam, Netherlands. Ms. Huisman is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Cornelia De Lange Syndrome, Pitt-Hopkins Syndrome, Rubinstein-Taybi Syndrome, and Hyperventilation.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Johanna Van Hagen practices in Amsterdam, Netherlands. Ms. Van Hagen is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Marshall-Smith Syndrome, Septo-Optic Dysplasia, FG Syndrome, and Micrognathia.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Isabelle Hubeek practices in Amsterdam, Netherlands. Ms. Hubeek is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Sotos Syndrome, Gigantism, and Childhood Acute Myeloid Leukemia.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome
      Amsterdam, NH, NL 

      Astrid Plomp practices in Amsterdam, Netherlands. Ms. Plomp is rated as an Experienced expert by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Marshall-Smith Syndrome, Blue Cone Monochromatism, Septo-Optic Dysplasia, and Pseudoxanthoma Elasticum.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 22

      Last Updated: 01/09/2026

      What is the definition of Sotos Syndrome?

      Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development of mental and movement abilities. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin.  In addition, the outside corners of the eyes may point downward (down-slanting palpebral fissures). This facial appearance is most notable in early childhood. Affected infants and children tend to grow quickly; they are significantly taller than their siblings and peers and have an unusually large head. However, adult height is usually in the normal range.

      When should I see a Sotos Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sotos Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Sotos Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sotos Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sotos Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sotos Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sotos Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sotos Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sotos Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sotos Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sotos Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the Sotos Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sotos Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sotos Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy