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    Last Updated: 10/30/2025

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    MediFind found 17 doctor with experience in Spinal Muscular Atrophy (SMA) near Rochester, NY. Of these, 10 are Experienced, 5 are Advanced and 2 are Distinguished.

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    17 providers found
      Distinguished in Spinal Muscular Atrophy (SMA)
      Distinguished in Spinal Muscular Atrophy (SMA)

      University Of Rochester

      738 Library Rd, 
      Rochester, NY 
       (2.1 miles away)
      Languages Spoken:
      English

      Emma Ciafaloni is a Neurologist in Rochester, New York. Dr. Ciafaloni is rated as a Distinguished provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy.

      Distinguished in Spinal Muscular Atrophy (SMA)
      Distinguished in Spinal Muscular Atrophy (SMA)
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Alrabi Tawil is a Neurologist in Rochester, New York. Dr. Tawil is rated as a Distinguished provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Limb-Girdle Muscular Dystrophy Type 2A, and Limb-Girdle Muscular Dystrophy Type 1B.

      Advanced in Spinal Muscular Atrophy (SMA)
      Advanced in Spinal Muscular Atrophy (SMA)

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Chad Heatwole is a Neurologist in Rochester, New York. Dr. Heatwole is rated as an Advanced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

      Learn about our expert tiers
      Advanced in Spinal Muscular Atrophy (SMA)
      Advanced in Spinal Muscular Atrophy (SMA)

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Phillip Mongiovi is a Neurologist in Rochester, New York. Dr. Mongiovi is rated as an Advanced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Peripheral Neuropathy.

      Advanced in Spinal Muscular Atrophy (SMA)
      Physiatry | Neurology
      Advanced in Spinal Muscular Atrophy (SMA)
      Physiatry | Neurology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Peter Creigh is a Physiatrist and a Neurologist in Rochester, New York. Dr. Creigh is rated as an Advanced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Glycogen Storage Disease Type 5, and Spinal Muscular Atrophy (SMA).

      Advanced in Spinal Muscular Atrophy (SMA)
      Advanced in Spinal Muscular Atrophy (SMA)

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      David Herrmann is a Neurologist in Rochester, New York. Dr. Herrmann is rated as an Advanced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Charcot-Marie-Tooth Disease, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Tomaculous Neuropathy.

      Advanced in Spinal Muscular Atrophy (SMA)
      Advanced in Spinal Muscular Atrophy (SMA)
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Charles Thornton is a Neurologist in Rochester, New York. Dr. Thornton is rated as an Advanced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Robert C. Griggs
      Experienced in Spinal Muscular Atrophy (SMA)
      Experienced in Spinal Muscular Atrophy (SMA)

      University Of Rochester Medical Center - School Of Medicine And Dentistry

      601 Elmwood Ave, Box CU 420669, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Robert Griggs is a Neurologist in Rochester, NY. Dr. Griggs is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Familial Periodic Paralysis, and Hyperkalemic Periodic Paralysis.

      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Physician Assistant
      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Physician Assistant

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Johanna Hamel is a Neurologist and a Physician Assistant in Rochester, New York. Ms. Hamel has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). Her top areas of expertise are Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Spinal Muscular Atrophy (SMA).

      Experienced in Spinal Muscular Atrophy (SMA)
      Experienced in Spinal Muscular Atrophy (SMA)

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Benzi Kluger is a Neurologist in Rochester, New York. Dr. Kluger is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Parkinson's Disease, Movement Disorders, Supranuclear Ophthalmoplegia, Progressive Supranuclear Palsy, and Gastrostomy.

      Experienced in Spinal Muscular Atrophy (SMA)
      Pediatric Neurology | Neurology
      Experienced in Spinal Muscular Atrophy (SMA)
      Pediatric Neurology | Neurology

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Inna Hughes is a Pediatric Neurologist and a Neurologist in Rochester, New York. Dr. Hughes is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Susac Syndrome, and Epilepsy.

      Experienced in Spinal Muscular Atrophy (SMA)
      Experienced in Spinal Muscular Atrophy (SMA)

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Eric Logigian is a Neurologist in Rochester, New York. Dr. Logigian is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Meige Syndrome, Drug Induced Dyskinesia, and Multifocal Motor Neuropathy.

      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Pediatrics
      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Pediatrics

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Samuel Mackenzie is a Neurologist and a Pediatrics provider in Rochester, New York. Dr. Mackenzie is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy (SMA).

      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Nurse Practitioner
      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Nurse Practitioner

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Alexis Lizarraga is a Neurologist and a Nurse Practitioner in Rochester, New York. Ms. Lizarraga is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). Her top areas of expertise are Myasthenia Gravis, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in Spinal Muscular Atrophy (SMA)
      Experienced in Spinal Muscular Atrophy (SMA)

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English

      Tyler Rehbein is a Neurologist in Rochester, New York. Dr. Rehbein has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). His top areas of expertise are Charcot-Marie-Tooth Disease, Potassium-Aggravated Myotonia, Isaacs' Syndrome, and Continuous Muscle Fiber Activity Hereditary.

      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Nurse Practitioner
      Experienced in Spinal Muscular Atrophy (SMA)
      Neurology | Nurse Practitioner
      601 Elwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Amy Luce is a Neurologist and a Nurse Practitioner in Rochester, New York. Ms. Luce is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). Her top areas of expertise are Multifocal Motor Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, and Andermann Syndrome.

      Experienced in Spinal Muscular Atrophy (SMA)
      Family Medicine
      Experienced in Spinal Muscular Atrophy (SMA)
      Family Medicine

      Rochester General Hospital

      30 Hagen Dr, Suite 300, 
      Rochester, NY 
       (5.1 miles away)
      Languages Spoken:
      English

      Letitia Devoesick is a primary care provider, practicing in Family Medicine in Rochester, New York. Dr. Devoesick is rated as an Experienced provider by MediFind in the treatment of Spinal Muscular Atrophy (SMA). Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Hypereosinophilic Syndrome, and Acute Eosinophilic Pneumonia.

      Showing 1-17 of 17

      Last Updated: 10/30/2025

      What is the definition of Spinal Muscular Atrophy (SMA)?

      Spinal muscular atrophy (SMA) is a group of disorders of the motor neurons (motor cells). These disorders are passed down through families (inherited) and can appear at any stage of life. The disorder leads to muscle weakness and atrophy.

      When should I see a Spinal Muscular Atrophy (SMA) doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Spinal Muscular Atrophy (SMA) doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Spinal Muscular Atrophy (SMA) doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Spinal Muscular Atrophy (SMA) doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Spinal Muscular Atrophy (SMA) doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Spinal Muscular Atrophy (SMA) doctor search results page. 

      Why is it important to get a second opinion from a different Spinal Muscular Atrophy (SMA) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Spinal Muscular Atrophy (SMA) doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Spinal Muscular Atrophy (SMA) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Spinal Muscular Atrophy (SMA) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Spinal Muscular Atrophy (SMA) doctors near Rochester, NY?

      Look for the filter feature on the left side of the Spinal Muscular Atrophy (SMA) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Spinal Muscular Atrophy (SMA) doctor that offers video calls?

      Look for the filter feature on the left-side of the Spinal Muscular Atrophy (SMA) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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