The 20 Best Stickler Syndrome Doctors Near Me in Massachusetts, US

Find the Top Stickler Syndrome Experts and Specialists

The 20 Best Stickler Syndrome Doctors in Massachusetts, US

Last Updated: 02/22/2026

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MediFind found 55 doctor with experience in Stickler Syndrome near Massachusetts, US. Of these, 40 are Experienced and 15 are Advanced.

Location
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55 providers found
    Jose E. Monroy
    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, Shapiro 5th Floor, 
    Boston, MA 
    Languages Spoken:
    English, Italian, Spanish

    Jose Monroy is an Ophthalmologist in Boston, Massachusetts. Dr. Monroy is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Micropthalmia Associated with Colobomatous Cyst, Lenz Microphthalmia Syndrome, Microphthalmia, Cataract Removal, and Myringotomy.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Mass Eye And Ear, Longwood Eye Care

    800 Huntington Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Nimesh Patel is an Ophthalmologist in Boston, Massachusetts. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Retinal Detachment, Endophthalmitis, Late-Onset Retinal Degeneration, Cone-Rod Dystrophy, and Cataract Removal.

    Jennifer P. Mullon
    Experienced in Stickler Syndrome
    Experienced in Stickler Syndrome

    Lexington Eye Associates, Inc

    21 Worthen Road, 
    Lexington, MA 
    Languages Spoken:
    English, French

    Jennifer Mullon is an Ophthalmologist in Lexington, Massachusetts. Dr. Mullon is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Strabismus, Oculomotor Apraxia Cogan Type, Amblyopia, and Esotropia.

    Learn about our expert tiers
    Experienced in Stickler Syndrome
    Experienced in Stickler Syndrome

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Helen Lyon is a Pediatrics provider in Boston, Massachusetts. Dr. Lyon is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), DOOR Syndrome, and Beare-Stevenson Cutis Gyrata Syndrome.

    Experienced in Stickler Syndrome
    Medical Genetics
    Experienced in Stickler Syndrome
    Medical Genetics

    Beth Israel Deaconess Hospital - Plymouth

    275 Sandwich Street, 
    Plymouth, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Jodi Hoffman is a Medical Genetics provider in Plymouth, Massachusetts. Dr. Hoffman is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Bosma Arhinia Microphthalmia Syndrome, Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Ehlers-Danlos Syndrome (EDS).

    Experienced in Stickler Syndrome
    Ophthalmology
    Experienced in Stickler Syndrome
    Ophthalmology
    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Julius Oatts is an Ophthalmologist in Boston, Massachusetts. Dr. Oatts is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Strabismus, Trabeculectomy, and Cataract Removal.

    Advanced in Stickler Syndrome
    Medical Genetics
    Advanced in Stickler Syndrome
    Medical Genetics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Olaf Bodamer is a Medical Genetics provider in Boston, Massachusetts. Dr. Bodamer is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Kabuki Syndrome, Niemann-Pick Disease, Classic Galactosemia, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

    Advanced in Stickler Syndrome
    Pediatrics | Medical Genetics
    Advanced in Stickler Syndrome
    Pediatrics | Medical Genetics
    300 Longwood Ave, Fegan 10, 
    Boston, MA 
    Languages Spoken:
    English

    Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
    Experience:
    44+ years
    Languages Spoken:
    English

    Shizuo Mukai is an Ophthalmologist in Boston, Massachusetts. Dr. Mukai has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Retinal Detachment, Retinoblastoma, Von Hippel-Lindau (VHL) Syndrome, Sturge-Weber Syndrome, and Vitrectomy.

    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    850 Harrison Ave Fl 6, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Aya Abu-El is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Abu-El is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Coffin-Lowry Syndrome, Kabuki Syndrome, Stickler Syndrome, and 3MC Syndrome. Dr. Abu-El is currently accepting new patients.

    Advanced in Stickler Syndrome
    Advanced in Stickler Syndrome

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Deborah Vanderveen is a Pediatrics provider in Boston, Massachusetts. Dr. Vanderveen is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Congenital Cataract, Strabismus, Retinopathy of Prematurity, Cataract Removal, and Trabeculectomy.

    Advanced in Stickler Syndrome
    Pediatrics
    Advanced in Stickler Syndrome
    Pediatrics

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Anne Fulton is a Pediatrics provider in Boston, Massachusetts. Dr. Fulton is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Retinopathy of Prematurity, X-Linked Congenital Stationary Night Blindness, Retinopathy Pigmentary Mental Retardation, and Stargardt Macular Degeneration.

    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, AEC Syndrome, and EEC Syndrome. Dr. Tan is currently accepting new patients.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Ryan Gise is an Ophthalmologist in Boston, Massachusetts. Dr. Gise is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Papilledema, Increased Intracranial Pressure, Strabismus, and Amblyopia.

    Advanced in Stickler Syndrome
    Family Medicine
    Advanced in Stickler Syndrome
    Family Medicine

    Office

    1250 Hancock St Fl 3, 
    Quincy, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Tu-mai Tran is a primary care provider, practicing in Family Medicine in Quincy, Massachusetts. Dr. Tran is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are 3MC Syndrome, Galactosialidosis, Borjeson-Forssman-Lehmann Syndrome, and Stickler Syndrome.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Melanie Kazlas is an Ophthalmologist in Boston, Massachusetts. Dr. Kazlas is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Esotropia, Strabismus, Amblyopia, and Brown Syndrome.

    Advanced in Stickler Syndrome
    Pediatric Neurology
    Advanced in Stickler Syndrome
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    David Urion is a Pediatric Neurologist in Boston, Massachusetts. Dr. Urion is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. His top areas of expertise are Hydranencephaly, Lissencephaly 1, Lissencephaly, and Joubert Syndrome.

    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Bharti Gangwani is an Ophthalmologist in Boston, Massachusetts. Dr. Gangwani is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Amblyopia, Hyperferritinemia-Cataract Syndrome, Strabismus, Anton Syndrome, and Cataract Removal.

    Felicia Chu
    Experienced in Stickler Syndrome
    Neurology
    Experienced in Stickler Syndrome
    Neurology

    UMass Memorial Medical Center - University Campus

    55 Lake Avenue North, 
    Worcester, MA 
    Experience:
    21+ years
    Languages Spoken:
    English
    Offers Telehealth

    Felicia Chu is a Neurologist in Worcester, Massachusetts. Dr. Chu has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. Her top areas of expertise are Epilepsy, Seizures, Memory Loss, and Generalized Tonic-Clonic Seizure.

    Showing 1-20 of 55

    Last Updated: 02/22/2026

    What is the definition of Stickler Syndrome?

    Stickler syndrome is a group of hereditary conditions that are characterized by a distinctive facial appearance, eye abnormalities, hearing loss, and joint problems. These signs and symptoms vary widely among affected individuals, even among members of the same family.

    When should I see a Stickler Syndrome doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Stickler Syndrome doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Stickler Syndrome doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Stickler Syndrome doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Stickler Syndrome doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stickler Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Stickler Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Stickler Syndrome doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Stickler Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Stickler Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Stickler Syndrome doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Stickler Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Stickler Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Stickler Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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