The 20 Best Stickler Syndrome Doctors Near Me in Boston, MA

Find the Top Stickler Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 51 doctor with experience in Stickler Syndrome near Boston, MA. Of these, 36 are Experienced and 15 are Advanced.

Location
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51 providers found
    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, Shapiro 5th Floor, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English, Italian, Spanish

    Jose Monroy is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Monroy is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Microphthalmia, Microphthalmia with Linear Skin Defects Syndrome, Lenz Microphthalmia Syndrome, Cataract Removal, and Myringotomy. Dr. Monroy is board certified in American Board Of Ophthalmology.

    Experienced in Stickler Syndrome
    Ophthalmology
    Experienced in Stickler Syndrome
    Ophthalmology
    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Julius Oatts is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Oatts is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Ocular Hypertension (OHT), Strabismus, Glaucoma, Trabeculectomy, and Cataract Removal. Dr. Oatts is board certified in American Board Of Ophthalmology - Ophthalmology.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Mass Eye And Ear, Longwood Eye Care

    800 Huntington Avenue, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English

    Nimesh Patel is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Retinal Detachment, Endophthalmitis, Late-Onset Retinal Degeneration, Usher Syndrome Type 2A, and Cataract Removal. Dr. Patel is board certified in Ophthalmology.

    Learn about our expert tiers
    Experienced in Stickler Syndrome
    Experienced in Stickler Syndrome
    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Helen Lyon is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Lyon is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 81 other conditions, according to our data. Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Cockayne Syndrome Type 1, and Manitoba Oculotrichoanal Syndrome. Dr. Lyon is board certified in Clinical Genetics And Genomics.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
     (0.9 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English

    Shizuo Mukai is an Ophthalmologist practicing medicine in Boston, Massachusetts. He has been practicing medicine for over 44 years. Dr. Mukai is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Retinal Detachment, Retinoblastoma, Von Hippel-Lindau (VHL) Syndrome, Sturge-Weber Syndrome, and Vitrectomy.

    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    850 Harrison Ave Fl 6, 
    Boston, MA 
     (1.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Aya Abu-El is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Abu-El is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses 3MC Syndrome, Kabuki Syndrome, Coffin-Lowry Syndrome, and Stickler Syndrome. Dr. Abu-El is currently accepting new patients.

    Advanced in Stickler Syndrome
    Pediatrics | Medical Genetics
    Advanced in Stickler Syndrome
    Pediatrics | Medical Genetics
    300 Longwood Ave, Fegan 10, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Alkuraya is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

    Advanced in Stickler Syndrome
    Medical Genetics
    Advanced in Stickler Syndrome
    Medical Genetics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Olaf Bodamer is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Bodamer is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Microcephaly. Dr. Bodamer is currently accepting new patients.

    Advanced in Stickler Syndrome
    Advanced in Stickler Syndrome

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Deborah Vanderveen is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Vanderveen is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 41 other conditions, according to our data. Her clinical expertise encompasses Congenital Cataract, Strabismus, Retinopathy of Prematurity, Cataract Removal, and Trabeculectomy.

    Advanced in Stickler Syndrome
    Pediatrics
    Advanced in Stickler Syndrome
    Pediatrics

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Anne Fulton is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Fulton is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Retinopathy of Prematurity, X-Linked Congenital Stationary Night Blindness, Retinopathy Pigmentary Mental Retardation, and Stargardt Macular Degeneration.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Ryan Gise is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Gise is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Papilledema, Increased Intracranial Pressure, Strabismus, and Amblyopia.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Melanie Kazlas is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Kazlas is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Esotropia, Strabismus, Amblyopia, and Brown Syndrome.

    Advanced in Stickler Syndrome
    Pediatric Neurology
    Advanced in Stickler Syndrome
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    David Urion is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Urion is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 151 other conditions, according to our data. His clinical expertise encompasses Orofaciodigital Syndrome 6, Coach Syndrome, Agyria Pachygyria Polymicrogyria, and Cerebellar Hypoplasia.

    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 158 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Advanced in Stickler Syndrome
    Ophthalmology
    Advanced in Stickler Syndrome
    Ophthalmology

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Bharti Gangwani is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Gangwani is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Hyperferritinemia-Cataract Syndrome, Strabismus, Anton Syndrome, and Cataract Removal.

    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Advanced in Stickler Syndrome
    Medical Genetics | Pediatrics
    Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Incontinentia Pigmenti, Congenital Athymia, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Tan is currently accepting new patients.

    Experienced in Stickler Syndrome
    Ophthalmology
    Experienced in Stickler Syndrome
    Ophthalmology

    Ophthalmic Consultants Of Boston Inc

    50 Staniford St Ste 600, 
    Boston, MA 
     (0.6 miles away)
    Languages Spoken:
    English

    Jeffrey Heier is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Heier is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Geographic Atrophy, Retinal Vein Occlusion, and Vitrectomy.

    Experienced in Stickler Syndrome
    Ophthalmology
    Experienced in Stickler Syndrome
    Ophthalmology

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
     (0.9 miles away)
    Languages Spoken:
    English

    Lucy Young is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinal Vein Occlusion, and Retinal Artery Occlusion.

    Experienced in Stickler Syndrome
    Pediatrics | Internal Medicine
    Experienced in Stickler Syndrome
    Pediatrics | Internal Medicine
    77 Avenue Louis Pasteur, Nrb 455, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English

    Natasha Frank is a primary care provider, practicing in Pediatrics and Internal Medicine in Boston, Massachusetts. Dr. Frank is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Epidermolysis Bullosa, Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

    Experienced in Stickler Syndrome
    Pediatric Neurology
    Experienced in Stickler Syndrome
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Christopher Elitt is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Elitt is rated as an Experienced provider by MediFind in the treatment of Stickler Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Acrocallosal Syndrome, Aicardi Syndrome, and Corpus Callosum Agenesis.

    Showing 1-20 of 51

    Last Updated: 04/28/2026

    What is the definition of Stickler Syndrome?

    Stickler syndrome is a group of hereditary conditions that are characterized by a distinctive facial appearance, eye abnormalities, hearing loss, and joint problems. These signs and symptoms vary widely among affected individuals, even among members of the same family.

    When should I see a Stickler Syndrome doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Stickler Syndrome doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Stickler Syndrome doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Stickler Syndrome doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Stickler Syndrome doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stickler Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Stickler Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Stickler Syndrome doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Stickler Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Stickler Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Stickler Syndrome doctors near Boston, MA?

    Look for the filter feature on the left side of the Stickler Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Stickler Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Stickler Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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