The 20 Best Stiff Person Syndrome Doctors in The United States

Find the Top Stiff Person Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 2288 doctor with experience in Stiff Person Syndrome near The United States. Of these, 2012 are Experienced, 230 are Advanced, 31 are Distinguished and 11 are Elite.

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2,288 providers found
    Elite in Stiff Person Syndrome
    Elite in Stiff Person Syndrome

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English
    Offers Telehealth

    Neurologist Scott Newsome specializes in the care of patients with neuroimmunological and neuroinflammatory disorders of the central nervous system. He works within the Division of Neuroimmunology and Neurological Infections at The Johns Hopkins Hospital, and has special interest in evaluating and treating patients with multiple sclerosis, transverse myelitis, neuromyelitis optica and stiff person syndrome. After completing fellowship training, Dr. Newsome joined the Johns Hopkins Multiple Sclerosis and Transverse Myelitis Centers, and he is the director of the Johns Hopkins Neurosciences Consultation and Infusion Center and the Stiff Person Syndrome Center. He is also director of the Johns Hopkins Neuroimmunology and Neurological Infectious Disease Fellowship Program and co-director of the Multiple Sclerosis Experimental Therapeutics Program. Dr. Newsome received his medical degree from the New York College of Osteopathic Medicine, with honors. During his neurology residency, he was awarded the Golden Apple Outstanding Resident Teaching Award, and later was chosen to be chief resident. He subsequently completed a fellowship in neuroimmunology at The Johns Hopkins Hospital with the support of a Sylvia Lawry Physician Fellowship Award from the National Multiple Sclerosis Society. Identifying and testing novel therapies and therapeutic strategies for multiple sclerosis and other neuroimmunological disorders is Dr. Newsome’s main research focus. Other research endeavors include validating the use of new quantitative clinical outcome measures and imaging techniques in multiple sclerosis and identifying risk factors of disease onset and severity, response to treatment and long-term outcomes in neuroimmunological disorders. An adviser for the National Multiple Sclerosis Society and a member of the Miller-Coulson Academy of Clinical Excellence, Dr. Newsome has also served as president of the Consortium of Multiple Sclerosis Centers. Dr. Newsome is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Stiff Person Syndrome, Multiple Sclerosis (MS), Transverse Myelitis, and Relapsing Multiple Sclerosis (RMS). Dr. Newsome is board certified in American Board Of Psychiatry And Neurology.

    Elite in Stiff Person Syndrome
    Neurology | Neuromusculoskeletal Medicine | Neurosurgery
    Elite in Stiff Person Syndrome
    Neurology | Neuromusculoskeletal Medicine | Neurosurgery

    Vickie & Jack Farber Institute For Neuroscience - Honickman Center

    1101 Chestnut Street, Floor 10, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marinos Dalakas is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Philadelphia, Pennsylvania. Dr. Dalakas is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Stiff Person Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, Hereditary Hyperekplexia, Chronic Polyradiculoneuritis, and Laminectomy. Dr. Dalakas is board certified in Neurology. Dr. Dalakas is currently accepting new patients.

    Elite in Stiff Person Syndrome
    Neurology | Neuromusculoskeletal Medicine
    Elite in Stiff Person Syndrome
    Neurology | Neuromusculoskeletal Medicine

    Vickie & Jack Farber Institute For Neuroscience - Honickman Center

    1101 Chestnut Street, Floor 10, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Goran Rakocevic is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Philadelphia, Pennsylvania. Dr. Rakocevic is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Stiff Person Syndrome, Inclusion Body Myositis, Myasthenia Gravis, and Spinal and Bulbar Muscular Atrophy. Dr. Rakocevic is board certified in Neuromuscular Medicine and Neurology. Dr. Rakocevic is currently accepting new patients.

    Learn about our expert tiers
    Elite in Stiff Person Syndrome
    Elite in Stiff Person Syndrome

    Johns Hopkins University

    600 N Wolf St, 
    Baltimore, MD 
    Languages Spoken:
    English

    Peter Calabresi is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Calabresi is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Optic Neuritis, Relapsing Multiple Sclerosis (RMS), and CACH Syndrome.

    Elite in Stiff Person Syndrome
    Neurology
    Elite in Stiff Person Syndrome
    Neurology

    UW Medicine Northwest

    1550 N 115th St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Yujie Wang is a Neurologist practicing medicine in Seattle, Washington. Dr. Wang is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Stiff Person Syndrome, Hereditary Hyperekplexia, Acute Cerebellar Ataxia, and Multiple Sclerosis (MS).

    Elite in Stiff Person Syndrome
    Elite in Stiff Person Syndrome

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Andrew Mckeon is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Mckeon is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Encephalitis, Stiff Person Syndrome, Opsoclonus-Myoclonus Syndrome, and Transverse Myelitis.

    Elite in Stiff Person Syndrome
    Elite in Stiff Person Syndrome

    Neurology - Inc

    729 S Arapeen Dr, 
    Salt Lake City, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Stacey Clardy is a Neurologist practicing medicine in Salt Lake City, Utah. Dr. Clardy is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Encephalitis, Stiff Person Syndrome, Neurosarcoidosis, and Anti-NMDA Receptor Encephalitis. Dr. Clardy is board certified in American Board Of Psychiatry And Neurology. Dr. Clardy is currently accepting new patients.

    Elite in Stiff Person Syndrome
    Elite in Stiff Person Syndrome

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Sean Pittock is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Pittock is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Transverse Myelitis, Optic Neuritis, Neuromyelitis Optica, and Encephalitis.

    Elite in Stiff Person Syndrome
    Elite in Stiff Person Syndrome

    University Of Colorado Hospital Authority

    1635 Aurora Ct, 
    Aurora, CO 
    Languages Spoken:
    English
    Offers Telehealth

    Amanda Piquet is a Neurologist practicing medicine in Aurora, Colorado. Dr. Piquet is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Encephalitis, Stiff Person Syndrome, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis.

    Elite in Stiff Person Syndrome
    Family Medicine
    Elite in Stiff Person Syndrome
    Family Medicine

    Kootenai Health Inc

    1919 Lincoln Way, Suite 315, 
    Coeur D Alene, ID 
    Languages Spoken:
    English

    Michael Comisac is a primary care provider, practicing in Family Medicine in Coeur D Alene, Idaho. Dr. Comisac is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Stiff Person Syndrome, Pernicious Anemia, Muscle Spasms, and Vitamin B12 Deficiency Anemia.

    Elite in Stiff Person Syndrome
    Elite in Stiff Person Syndrome

    UVA Health University Medical Center

    1215 Lee St, 
    Charlottesville, VA 
    Languages Spoken:
    English

    Alexandra Simpson is a Neurologist practicing medicine in Charlottesville, Virginia. Dr. Simpson is rated as an Elite provider by MediFind in the treatment of Stiff Person Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Stiff Person Syndrome, Hereditary Hyperekplexia, Multiple Sclerosis (MS), and Transverse Myelitis.

    Advanced in Stiff Person Syndrome
    Advanced in Stiff Person Syndrome

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Lee is board certified in American Board Of Psychiatry & Neurology.

    Advanced in Stiff Person Syndrome
    Advanced in Stiff Person Syndrome

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Eaton is rated as an Advanced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Frontotemporal Dementia, Multiple Sclerosis (MS), Stiff Person Syndrome, and Neuronal Intranuclear Inclusion Disease (NIID). Dr. Eaton is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Stiff Person Syndrome
    Experienced in Stiff Person Syndrome

    Rampart Clinic Neurology & Neuro-Ophthalmology

    130 Rampart Way, Suite 150, 
    Denver, CO 
    Experience:
    11+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Datar was raised in Colorado Springs. After earning his undergraduate degree in biology at the University of Notre Dame in South Bend, Indiana, Dr. Datar attended Creighton University in Omaha, Nebraska, receiving both a master's degree in clinical anatomy and a medical degree. Dr. Datar then completed his neurology residency at Loyola University Medical Center in Chicago before training as a neuroimmunology fellow with an emphasis on multiple sclerosis at Northwestern University. Dr. Datar’s clinical interest is centered around multiple sclerosis.“I strive to provide a patient-centered collaborative approach that focuses on physical, mental, and emotional health. My patients should know that communication and punctuality are very important to me.”In his free time, he enjoys staying active by going to the gym, playing basketball and football, and spending time with his family. Dr. Datar is rated as an Experienced provider by MediFind in the treatment of Stiff Person Syndrome. His clinical expertise encompasses Migraine, Migraine with Brainstem Aura, Relapsing Multiple Sclerosis (RMS), and Multiple Sclerosis (MS). Dr. Datar is board certified in American Board Of Psychiatry And Neurology. Dr. Datar is currently accepting new patients.

    Experienced in Stiff Person Syndrome
    Experienced in Stiff Person Syndrome

    St. Vincent Neurosurgery

    1041 North 29th Street, 
    Billings, MT 
    Experience:
    47+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Javier Echeverri is a Neurologist practicing medicine in Billings, Montana. He has been practicing medicine for over 47 years. Dr. Echeverri is rated as an Experienced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Essential Tremor, Parkinson's Disease, Movement Disorders, Epilepsy with Myoclonic-Atonic Seizures, and Deep Brain Stimulation. Dr. Echeverri is currently accepting new patients.

    Experienced in Stiff Person Syndrome
    Experienced in Stiff Person Syndrome

    Advocate Medical Group Neurology

    1875 Dempster St, Ste 625/660, 
    Park Ridge, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Fahey is a Sleep Medicine provider practicing medicine in Park Ridge, Illinois. Dr. Fahey is rated as an Experienced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Headache, Seizures, Memory Loss, and Autosomal Dominant Partial Epilepsy with Auditory Features. Dr. Fahey is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Stiff Person Syndrome
    Oncology | Hematology Oncology | Hematology
    Experienced in Stiff Person Syndrome
    Oncology | Hematology Oncology | Hematology

    Abingdon Physician Partners - Regional Cancer Center At Johnston Memorial Hospital

    16000 Johnston Memorial Drive, 
    Abingdon, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Anthony DeSalvo, MD, believes the best care comes from both science and compassion, especially during life's most difficult moments. He chose to specialize in oncology because it's rapidly advancing field that allows him to support patients when they need it most. After an internal medicine rotation, he explored several career paths but felt a strong connection to oncology and the opportunity it provides to make a meaningful difference. Originally from upstate New York, Dr. DeSalvo first came to the Appalachian Highlands to attend Virginia Tech and fell in love with the region. He was drawn back by the honesty and faith of the people here. In his free time, he enjoys restoring his pre-Civil War farmhouse, hiking and swimming. Dr. Desalvo is rated as an Experienced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Inflammatory Breast Cancer, Paget Disease of the Breast, Angiosarcoma, and Childhood Iron Deficiency Anemia. Dr. Desalvo is board certified in American Board Of Internal Medicine.

    Experienced in Stiff Person Syndrome
    Experienced in Stiff Person Syndrome

    Reading Hospital

    420 South 5th Avenue, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Khoshnoodi is rated as an Experienced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Miller-Fisher Syndrome, Guillain-Barre Syndrome, and Chronic Polyradiculoneuritis. Dr. Khoshnoodi is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Stiff Person Syndrome
    Experienced in Stiff Person Syndrome

    Ballad Health Medical Associates Neurology

    1406 Tusculum Boulevard, Suite 1200, 
    Greeneville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Hyder is rated as an Experienced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Generalized Tonic-Clonic Seizure, Seizures, Parkinson's Disease, and Movement Disorders. Dr. Hyder is board certified in  .

    Experienced in Stiff Person Syndrome
    Experienced in Stiff Person Syndrome

    Rampart Clinic Neurology & Neuro-Ophthalmology

    130 Rampart Way, Suite 150, 
    Denver, CO 
    Experience:
    15+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Kung was born and raised in Arlington, Texas and completed his undergraduate studies at Rice University in Houston. He attended medical school at Washington University in St. Louis, Missouri. After obtaining his medical degree, Dr. Kung stayed at Washington University for residency training in Adult Neurology and fellowship training in both Epilepsy and Neuro-Ophthalmology. Dr. Kung is board certified in Neurology and Epilepsy and has a special interest in seeing patients with refractory headaches, dizziness and brain injury. He also uses Botox to treat patients with chronic migraine.“I will invest the time that it takes to take care of you.”Outside of the office, Dr. Kung enjoys spending time with family and friends, playing with his children, and working on his indoor climbing skills. Dr. Kung is rated as an Experienced provider by MediFind in the treatment of Stiff Person Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Migraine, Epilepsy, Seizures, and Optic Neuritis. Dr. Kung is board certified in American Board Of Psychiatry And Neurology. Dr. Kung is currently accepting new patients.

    Showing 1-20 of 2,288

    Last Updated: 04/28/2026

    What is the definition of Stiff Person Syndrome?

    Stiff person syndrome (SPS) is a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord. Symptoms may include extreme muscle stiffness, rigidity and painful spasms in the trunk and limbs, severely impairing mobility. Spasms can generate enough force to fracture bone. People with SPS often have heightened sensitivity to noise, sudden movements, and emotional distress, which can set off muscle spasms. Persistent symptoms can lead to abnormal posturing of the spine, such as being hunched over. The syndrome affects twice as many women as men. SPS is caused by increased muscle activity due to decreased inhibition of the central nervous system. It is thought to have an autoimmune component and is often associated with diabetes, as well as other autoimmune diseases such as thyroiditis, vitiligo, and pernicious anemia. It may be diagnosed after having various tests including blood tests (such as for glutamic acid decarboxylase (GAD) antibodies which is elevated in about 2 in 3 people with SPS), a lumbar puncture, and electromyography.

    When should I see a Stiff Person Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Stiff Person Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Stiff Person Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Stiff Person Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Stiff Person Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stiff Person Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Stiff Person Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Stiff Person Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Stiff Person Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Stiff Person Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Stiff Person Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Stiff Person Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Stiff Person Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Stiff Person Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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