The 20 Best Stiff Skin Syndrome Doctors in The United States

Find the Top Stiff Skin Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 7075 doctor with experience in Stiff Skin Syndrome near The United States. Of these, 6328 are Experienced, 692 are Advanced and 55 are Distinguished.

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7,075 providers found
    Experienced in Stiff Skin Syndrome
    Plastic Surgery
    Experienced in Stiff Skin Syndrome
    Plastic Surgery

    ETSU Physicians & Associates- Surgery

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Haynes is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His clinical expertise encompasses Familial Partial Lipodystrophy, Congenital Generalized Lipodystrophy, BRCA Positive Breast Cancer, and HER2 Negative Breast Cancer. Dr. Haynes is board certified in American Board Of Plastic Surgery.

    Experienced in Stiff Skin Syndrome
    Pediatric Surgery
    Experienced in Stiff Skin Syndrome
    Pediatric Surgery

    ETSU Physicians & Associates- Pediatric Surgery

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Infantile Pyloric Stenosis, Pilonidal Sinus Disease, Retroperitoneal Inflammation, and Undescended Testicle. Dr. Taylor is board certified in American Board Of Surgery.

    Experienced in Stiff Skin Syndrome
    General Surgery
    Experienced in Stiff Skin Syndrome
    General Surgery

    SOFHA Surgical Group

    2333 Knob Creek Rd, Ste 16, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Hodge is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Hernia, Gallbladder Disease, Cholecystitis, Colostomy, and Gastrostomy. Dr. Hodge is board certified in American Board Of Surgery.

    Learn about our expert tiers
    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    2290 Sacramento Street, 
    Vallejo, CA 
    Languages Spoken:
    English
    Accepting New Patients

    John Geisse is a Dermatologist practicing medicine in Vallejo, California. Dr. Geisse is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, Bazex Syndrome, and Hereditary Mucoepithelial Dysplasia. Dr. Geisse is currently accepting new patients.

    Distinguished in Stiff Skin Syndrome
    Distinguished in Stiff Skin Syndrome
    1500 E Medical Center Dr # 1910, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Johann Gudjonsson, MD, PhD is the Arthur C. Curtis Professor of Molecular Skin Immunology and the Frances and Kenneth Eisenberg Emerging Scholar of the Taubman Medical Research Institute. A graduate of the University of Iceland Medical School, he completed his internship and dermatology residency training at the University of Michigan. Dr. Gudjonsson has served on the faculty of the University of Michigan Department of Dermatology since 2008. He provides general medical dermatology patient care at the University of Michigan Taubman Center and maintains clinical and research interests in inflammatory and autoimmune disorders involving the skin.Dr. Gudjonsson came to the U-M in 2003 as part of an innovative research residency training program. Building upon investigative dermatology training completed in Iceland, Dr. Gudjonsson has been performing basic immunological and genetic work on psoriasis at the U-M. Dr. Gudjonsson's primary research focus is basic immunological and genetic research on psoriasis, with projects directed at improving the diagnosis and treatment of psoriasis. He received the 2007 Young Investigator Award from the American Academy of Dermatology, was named the 2018 Rising Star Lecturer for the Society for Investigative Dermatology and was recipient of the American Skin Association Research Achievement Award in Psoriasis in 2021. Dr. Gudjonsson's research has been supported by research awards from the National Institutes of Health (NIH), the American Skin Association, Dermatology Foundation, Doris Duke Foundation, among others. Dr. Gudjonsson is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Psoriasis, Darier Disease, Benign Chronic Pemphigus, Cutaneous Lupus Erythematosus (CLE), and Vitrectomy. Dr. Gudjonsson is board certified in Dermatology.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    33100 Cleveland Clinic Blvd, 
    Avon, OH 
    Experience:
    66+ years
    Languages Spoken:
    English
    Offers Telehealth

    Wilma Bergfeld is a Dermatologist practicing medicine in Avon, Ohio. She has been practicing medicine for over 66 years. Dr. Bergfeld is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. She is also highly rated in 74 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Hypotrichosis, Graham-Little-Piccardi-Lassueur Syndrome, Alopecia Areata, Squamous Cell Skin Carcinoma, and Osteotomy. Dr. Bergfeld is board certified in American Board Of Dermatology, 1974.

    Distinguished in Stiff Skin Syndrome
    Distinguished in Stiff Skin Syndrome
    9500 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Fernandez is a Dermatologist practicing medicine in Cleveland, Ohio. Dr. Fernandez is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 93 other conditions, according to our data. His clinical expertise encompasses Dermatomyositis, Pyoderma Gangrenosum, Acute Febrile Neutrophilic Dermatosis, and Cutaneous Lupus Erythematosus (CLE). Dr. Fernandez is board certified in American Board Of Dermatology, 2011.

    Distinguished in Stiff Skin Syndrome
    Distinguished in Stiff Skin Syndrome
    9500 Euclid Ave, 
    Cleveland, OH 
    Experience:
    29+ years
    Languages Spoken:
    English

    Melissa Piliang is a Dermatologist practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 29 years. Dr. Piliang is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. She is also highly rated in 68 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Hypotrichosis, Graham-Little-Piccardi-Lassueur Syndrome, Alopecia Areata, and Basal Cell Skin Cancer. Dr. Piliang is board certified in American Board Of Dermatology, 2006.

    Experienced in Stiff Skin Syndrome
    Pediatric Surgery
    Experienced in Stiff Skin Syndrome
    Pediatric Surgery

    ETSU Physicians & Associates- Pediatric Surgery

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Feltis is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Diastasis Recti, Cystic Adenomatoid Malformation of Lung, Urachal Cyst, and Pilonidal Sinus Disease. Dr. Feltis is board certified in American Board Of Surgery.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    11100 Euclid Ave # Wearn319, 
    Cleveland, OH 
    Languages Spoken:
    English

    Kord Honda is a Dermatologist practicing medicine in Cleveland, Ohio. Dr. Honda is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 79 other conditions, according to our data. His clinical expertise encompasses Melanoma, Erythroderma, Nakajo-Nishimura Syndrome, and Stiff Skin Syndrome.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    34213 Pacific Coast Hwy, 
    Dana Point, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Maryam Moinfar is a Dermatologist practicing medicine in Dana Point, California. Dr. Moinfar is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses Nakajo-Nishimura Syndrome, Acrogeria, Gottron Type, Congenital Hypotrichosis Milia, and Stiff Skin Syndrome.

    Distinguished in Stiff Skin Syndrome
    Distinguished in Stiff Skin Syndrome

    Regenerative Aesthetics And Dermatology

    25200 La Paz Rd Ste 210, 
    Laguna Hills, CA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Mahsa Abdollahi is a Dermatologist practicing medicine in Laguna Hills, California. She has been practicing medicine for over 18 years. Dr. Abdollahi is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses Acrogeria, Gottron Type, Bazex Syndrome, Stiff Skin Syndrome, and Nakajo-Nishimura Syndrome.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    2221 Balfour Rd # A, 
    Brentwood, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Beer is a Dermatologist practicing medicine in Brentwood, California. Dr. Beer is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Erythroderma, Sunburn, Nakajo-Nishimura Syndrome, and Acrogeria, Gottron Type.

    Distinguished in Stiff Skin Syndrome
    Dermatology | Gastroenterology
    Distinguished in Stiff Skin Syndrome
    Dermatology | Gastroenterology
    297 W Artesia St # A, 
    Pomona, CA 
    Languages Spoken:
    English

    Christopher Harper is a Dermatologist and a Gastroenterologist practicing medicine in Pomona, California. Dr. Harper is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Nakajo-Nishimura Syndrome, Bazex Syndrome, Acrogeria, Gottron Type, and Congenital Hypotrichosis Milia.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology

    Dermatopathology Laboratory

    222 E 41st St Fl 25, 
    New York, NY 
    Languages Spoken:
    English

    Adam Rubin is a Dermatologist practicing medicine in New York, New York. Dr. Rubin is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Bowen's Disease, Stiff Skin Syndrome, Lichen Planus, Basal Cell Skin Cancer, and Thymectomy.

    Distinguished in Stiff Skin Syndrome
    Distinguished in Stiff Skin Syndrome

    Penn Dermatology Perelman

    3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Rosalie Elenitsas is a Dermatologist practicing medicine in Philadelphia, Pennsylvania. Dr. Elenitsas is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. She is also highly rated in 72 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Pigmented Purpuric Dermatosis, Basal Cell Skin Cancer, and Actinic Keratosis. Dr. Elenitsas is board certified in Dermatology - Dermatopathology, 1991 and Dermatology, 1989. Dr. Elenitsas is currently accepting new patients.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    100 Welton Dr, 
    Cumberland, MD 
    Languages Spoken:
    English

    Daniel Herring is a Dermatologist practicing medicine in Cumberland, Maryland. Dr. Herring is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses Pompholyx Eczema, Rosacea, Actinic Keratosis, and Nummular Eczema.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    270 Center Dr # 130, 
    Vernon Hills, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Kavitha Gandhi is a Dermatologist practicing medicine in Vernon Hills, Illinois. Dr. Gandhi is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Seborrheic Keratosis, Warts, Actinic Keratosis, and Nakajo-Nishimura Syndrome. Dr. Gandhi is board certified in American Board Of Dermatology.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    6215 Corporate Dr # 101, 
    Colorado Springs, CO 
    Experience:
    17+ years
    Languages Spoken:
    English

    Michael Leslie is a Dermatologist practicing medicine in Colorado Springs, Colorado. He has been practicing medicine for over 17 years. Dr. Leslie is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 63 other conditions, according to our data. His clinical expertise encompasses Basal Cell Skin Cancer, Actinic Keratosis, Epidermodysplasia Verruciformis, and Warts. Dr. Leslie is board certified in American Board Of Dermatology.

    Distinguished in Stiff Skin Syndrome
    Dermatology
    Distinguished in Stiff Skin Syndrome
    Dermatology
    3450 Wilshire Blvd # 408, 
    Los Angeles, CA 
    Experience:
    30+ years
    Languages Spoken:
    English

    Bruce Park is a Dermatologist practicing medicine in Los Angeles, California. He has been practicing medicine for over 30 years. Dr. Park is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Congenital Hypotrichosis Milia, Bazex Syndrome, Nakajo-Nishimura Syndrome, and Hereditary Mucoepithelial Dysplasia. Dr. Park is board certified in American Board Dermatology.

    Showing 1-20 of 7,075

    Last Updated: 04/28/2026

    What is the definition of Stiff Skin Syndrome?

    Stiff skin syndrome (SSS) is a rare syndrome characterized by hard, thick skin, usually on the entire body. The thickening of the skin can limit joint mobility and causes joints to be stuck in a bent position (flexion contractures). Other signs and symptoms may include excessive hair growth (hypertrichosis), loss of body fat (lipodystrophy), scoliosis, muscle weakness, slow growth, and short stature. Weakness or paralysis of the eye muscles have also been reported. Stiff skin syndrome is caused by genetic changes (changes) in the FBN1 gene and is inherited in an autosomal dominant manner. Diagnosis is based on a clinical evaluation that is consistent with Stiff skin syndrome, and the diagnosis can be confirmed with genetic testing.

    When should I see a Stiff Skin Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Stiff Skin Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Stiff Skin Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Stiff Skin Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Stiff Skin Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Stiff Skin Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Stiff Skin Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Stiff Skin Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Stiff Skin Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Stiff Skin Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Stiff Skin Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Stiff Skin Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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