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    Last Updated: 01/09/2026

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    MediFind found 552 doctor with experience in Stormorken Syndrome. Of these, 430 are Experienced, 102 are Advanced, 18 are Distinguished and 2 are Elite.

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    552 providers found
      Elite in Stormorken Syndrome
      Elite in Stormorken Syndrome
      Illkirch-graffenstaden, FR 

      Johann Bohm practices in Illkirch-graffenstaden, France. Bohm is rated as an Elite expert by MediFind in the treatment of Stormorken Syndrome. Their top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Stormorken Syndrome.

      Elite in Stormorken Syndrome
      Elite in Stormorken Syndrome
      Illkirch-graffenstaden, FR 

      Roberto Rojas-Silva practices in Illkirch-graffenstaden, France. Mr. Rojas-Silva is rated as an Elite expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Stormorken Syndrome
      Family Medicine
      Experienced in Stormorken Syndrome
      Family Medicine

      Texas Health Physicians Group

      1001 Buckingham Rd, Suite 110, 
      Richardson, TX 
      Languages Spoken:
      English
      Offers Telehealth

      Richard Townsend is a primary care provider, practicing in Family Medicine in Richardson, Texas. Dr. Townsend is rated as an Experienced provider by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Vitamin D Deficiency, Gilbert Syndrome, High Cholesterol, and Nephrosclerosis.

      Learn about our expert tiers
      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Inserm U1258, Cnrs UMR7104, Université De Strasbourg 1 Rue Laurent Fries Illkirch 67404 France Centre De Référence Neuromusculaire Du CHU Hautepierre, 
      Strasbourg, FR 

      Jocelyn Laporte practices in Strasbourg, France. Ms. Laporte is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. Her top areas of expertise are X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Oslo, NO 

      Doriana Misceo practices in Oslo, Norway. Ms. Misceo is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. Her top areas of expertise are Stormorken Syndrome, Hypotonia, Micrognathia, and Progressive External Ophthalmoplegia.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Oslo, NO 

      Eirik Frengen practices in Oslo, Norway. Mr. Frengen is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, Achalasia Microcephaly Syndrome, Microcephaly, and Cat Eye Syndrome.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Oslo, NO 

      Asbjorn Holmgren practices in Oslo, Norway. Holmgren is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. Their top areas of expertise are Stormorken Syndrome, Allan-Herndon-Dudley Syndrome, Primary Ciliary Dyskinesia (PCD), and Primary Lateral Sclerosis.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Oslo, NO 

      Thilini Gamage practices in Oslo, Norway. Gamage is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. Their top areas of expertise are Stormorken Syndrome and Splenomegaly.

      Distinguished in Stormorken Syndrome
      Hematology Oncology | Hematology | Oncology
      Distinguished in Stormorken Syndrome
      Hematology Oncology | Hematology | Oncology
      274 Clear Sky Ct, 
      Clarksville, TN 
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Jigar Shah is a Hematologist Oncology specialist and a Hematologist in Clarksville, Tennessee. Dr. Shah is rated as a Distinguished provider by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Protein C Deficiency, Hereditary Resistance to Anti-Vitamin K, Congenital Antithrombin 3 Deficiency, and Protein S Deficiency. Dr. Shah is currently accepting new patients.

      Distinguished in Stormorken Syndrome
      Internal Medicine
      Distinguished in Stormorken Syndrome
      Internal Medicine

      Soma Medical Center PA 6

      3580 Lake Worth Rd, 
      Palm Springs, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Rafael Baez is a primary care provider, practicing in Internal Medicine in Palm Springs, Florida. Dr. Baez is rated as a Distinguished provider by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Diabetic Neuropathy, Scott Syndrome, Stormorken Syndrome, and Type 2 Diabetes (T2D). Dr. Baez is currently accepting new patients.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Amiens, FR 

      Gilles Morin practices in Amiens, France. Mr. Morin is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, 1p36 Deletion Syndrome, Nephrocalcinosis, and Acromicric Dysplasia.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Vienna, AT 

      Petr Rathner practices in Vienna, Austria. Mr. Rathner is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, Junctional Epidermolysis Bullosa, and Migraine.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Linz, AT 

      Marc Fahrner practices in Linz, Austria. Mr. Fahrner is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, Migraine, and Tubular Aggregate Myopathy.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Via Bovio 6, 
      Novara, IT 

      Beatrice Riva practices in Novara, Italy. Ms. Riva is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. Her top areas of expertise are Stormorken Syndrome, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Oslo, NO 

      William Louch practices in Oslo, Norway. Mr. Louch is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, Heart Failure, Heart Attack, and Low Potassium Level.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Oslo, NO 

      Geir Tjonnfjord practices in Oslo, Norway. Tjonnfjord is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. Their top areas of expertise are Autoimmune Hemolytic Anemia, Chronic B-Cell Leukemia (CBCL), Chronic Lymphocytic Leukemia (CLL), Stormorken Syndrome, and Bone Marrow Transplant.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      As, NO 

      Gjermund Gunnes practices in As, Norway. Gunnes is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. Their top areas of expertise are Stormorken Syndrome and Splenomegaly.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Milan, IT 

      Maurizio Moggio practices in Milan, Italy. Mr. Moggio is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Pompe Disease, Limb-Girdle Muscular Dystrophy, and Stormorken Syndrome.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Ceske Budejovice, JC, CZ 

      Norbert Muller practices in Ceske Budejovice, Czech Republic. Mr. Muller is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, Junctional Epidermolysis Bullosa, and Migraine.

      Distinguished in Stormorken Syndrome
      Distinguished in Stormorken Syndrome
      Linz, AT 

      Christoph Romanin practices in Linz, Austria. Mr. Romanin is rated as a Distinguished expert by MediFind in the treatment of Stormorken Syndrome. His top areas of expertise are Stormorken Syndrome, Tubular Aggregate Myopathy, Migraine, and X-Linked Myotubular Myopathy.

      Showing 1-20 of 552

      Last Updated: 01/09/2026

      What is the definition of Stormorken Syndrome?

      Stormorken syndrome is a rare condition that affects many body systems. Affected individuals usually have thrombocytopenia, in which there are abnormally low numbers of blood cells called platelets. Platelets are involved in normal blood clotting; a shortage of platelets typically results in easy bruising and abnormal bleeding. In addition, affected individuals often have a muscle disorder, called tubular aggregate myopathy, that leads to muscle weakness. Another feature of Stormorken syndrome is permanent constriction of the pupils of the eyes (miosis), which may be caused by abnormalities in the muscles that control the size of the pupils. Other features include lack of a functioning spleen (asplenia), scaly skin (ichthyosis), headaches, and difficulty with reading and spelling (dyslexia).

      When should I see a Stormorken Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Stormorken Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Stormorken Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Stormorken Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Stormorken Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stormorken Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Stormorken Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Stormorken Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Stormorken Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Stormorken Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Stormorken Syndrome doctors near me?

      Look for the filter feature on the left side of the Stormorken Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Stormorken Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Stormorken Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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