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    Last Updated: 10/30/2025

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    MediFind found 7 doctor with experience in Susac Syndrome near Berlin, DE. Of these, 3 are Advanced, 2 are Distinguished and 2 are Experienced.

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    7 providers found
      Distinguished in Susac Syndrome

      Richard Bergholz
      Distinguished in Susac Syndrome

      Richard Bergholz
      Berlin, BE, DE 

      Richard Bergholz practices in Berlin, Germany. Mr. Bergholz is rated as a Distinguished expert by MediFind in the treatment of Susac Syndrome. His top areas of expertise are Susac Syndrome, Retinal Artery Occlusion, Strabismus, Blue Cone Monochromatism, and Cataract Removal.

      Distinguished in Susac Syndrome

      Jan R. Dorr
      Distinguished in Susac Syndrome

      Jan R. Dorr
      Berlin, BE, DE 

      Jan Dorr practices in Berlin, Germany. Dorr is rated as a Distinguished expert by MediFind in the treatment of Susac Syndrome. Their top areas of expertise are Susac Syndrome, Retinal Artery Occlusion, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Susac Syndrome

      Alexander U. Brandt
      Advanced in Susac Syndrome

      Alexander U. Brandt
      Berlin, BE, DE 

      Alexander Brandt practices in Berlin, Germany. Mr. Brandt is rated as an Advanced expert by MediFind in the treatment of Susac Syndrome. His top areas of expertise are Optic Neuritis, Neuromyelitis Optica, Transverse Myelitis, and Ganglion Cyst.

      Learn about our expert tiers
      Advanced in Susac Syndrome

      Thoralf Niendorf
      Advanced in Susac Syndrome

      Thoralf Niendorf
      Berlin Ultrahigh Field Facility, 
      Berlin, BE, DE 

      Thoralf Niendorf practices in Berlin, Germany. Mr. Niendorf is rated as an Advanced expert by MediFind in the treatment of Susac Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Cerebral Hypoxia, CACH Syndrome, and Susac Syndrome.

      Advanced in Susac Syndrome

      Timm Oberwahrenbrock
      Advanced in Susac Syndrome

      Timm Oberwahrenbrock
      Berlin, BE, DE 

      Timm Oberwahrenbrock practices in Berlin, Germany. Mr. Oberwahrenbrock is rated as an Advanced expert by MediFind in the treatment of Susac Syndrome. His top areas of expertise are Internal Carotid Agenesis, Optic Neuritis, Amaurosis Fugax, and Ganglion Cyst.

      Experienced in Susac Syndrome

      Joseph Kuchling
      Experienced in Susac Syndrome

      Joseph Kuchling
      Berlin, BE, DE 

      Joseph Kuchling practices in Berlin, Germany. Mr. Kuchling is rated as an Experienced expert by MediFind in the treatment of Susac Syndrome. His top areas of expertise are Optic Neuritis, Neuromyelitis Optica, Transverse Myelitis, and Multiple Sclerosis (MS).

      Experienced in Susac Syndrome

      Maja Wiest
      Experienced in Susac Syndrome

      Maja Wiest
      Habelschwerdter Allee 45, 
      Berlin, BE, DE 

      Maja Wiest practices in Berlin, Germany. Ms. Wiest is rated as an Experienced expert by MediFind in the treatment of Susac Syndrome. Her top areas of expertise are Susac Syndrome and Retinal Artery Occlusion.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-7 of 7

      Last Updated: 10/30/2025

      What is the definition of Susac Syndrome?

      Susac syndrome is an autoimmune condition that affects the very small blood vessels in the brain, retina, and inner ear (cochlea). The condition is characterized by three main symptoms: brain disease (encephalopathy), hearing loss, and vision loss. Some people may not have all signs of Susac syndrome, but instead develop only specific combinations of the symptoms. Susac syndrome affects women more than men. The cause of Susac syndrome is still unknown. Diagnosis is based on a clinical exam and imaging tests to look for the specific signs of Susac syndrome.

      When should I see a Susac Syndrome doctor in Berlin, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Susac Syndrome doctor in Berlin, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Susac Syndrome doctor in Berlin, DE?

      You can find a Susac Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Susac Syndrome doctors in Berlin, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Susac Syndrome doctors in Berlin, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Susac Syndrome doctor in Berlin, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Susac Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Susac Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Susac Syndrome doctor in Berlin, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Susac Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Susac Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Susac Syndrome doctors in Berlin, DE?

      Look for the filter feature on the left side of the Susac Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Susac Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Susac Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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