The 20 Best Trisomy 13 Doctors Near Me in Indiana, US

Find the Top Trisomy 13 Experts and Specialists

The 20 Best Trisomy 13 Doctors in Indiana, US

Last Updated: 02/22/2026

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MediFind found 23 doctor with experience in Trisomy 13 near Indiana, US. Of these, 14 are Experienced and 9 are Advanced.

Location
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23 providers found
    Experienced in Trisomy 13
    Pediatric Cardiology
    Experienced in Trisomy 13
    Pediatric Cardiology

    Office

    11590 N Meridian St Ste 300, 
    Carmel,, IN 
    Languages Spoken:
    English

    Marcus Schamberger is a Pediatric Cardiologist in Carmel,, Indiana. Dr. Schamberger is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Pulmonary Valves Agenesis, Pulmonary Atresia, Double Inlet Left Ventricle, and Transposition of the Great Arteries.

    Experienced in Trisomy 13
    Pediatric Cardiology
    Experienced in Trisomy 13
    Pediatric Cardiology

    Office

    621 Memorial Dr Ste 612, 
    South Bend, IN 
    Languages Spoken:
    English

    Umesh Dyamenahalli is a Pediatric Cardiologist in South Bend, Indiana. Dr. Dyamenahalli is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, Right Ventricle Hypoplasia, and Gastrostomy.

    Experienced in Trisomy 13
    Neonatology | Obstetrics and Gynecology
    Experienced in Trisomy 13
    Neonatology | Obstetrics and Gynecology

    Office

    705 Riley Hospital Dr Ste 4300, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Offers Telehealth

    Hiba Mustafa is a Neonatologist and an Obstetrics and Gynecologist in Indianapolis, Indiana. Dr. Mustafa is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Twin-To-Twin Transfusion Syndrome, Anemia, Intrauterine Growth Restriction, Salpingo-Oophorectomy, and Endoscopy.

    Learn about our expert tiers
    Experienced in Trisomy 13
    Pediatric Cardiology
    Experienced in Trisomy 13
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Experience:
    10+ years
    Languages Spoken:
    English

    Sabena Hussain is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Hussain has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Sinus of Valsalva Aneurysm, Interrupted Aortic Arch, Hypoplastic Left Heart Syndrome (HLHS), and Becker Muscular Dystrophy.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Lauren Castaneda is a Pediatrics provider in Indianapolis, Indiana. Dr. Castaneda is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Ribbing Disease, Camurati-Engelmann Disease, Asthma in Children, and Trisomy 13.

    Experienced in Trisomy 13
    Pediatric Cardiology
    Experienced in Trisomy 13
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis,, IN 
    Languages Spoken:
    English

    Jacqueline Maiers is a Pediatric Cardiologist in Indianapolis,, Indiana. Dr. Maiers is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Isthmian Coarctation, and Coarctation of the Aorta.

    Advanced in Trisomy 13
    Palliative Medicine
    Advanced in Trisomy 13
    Palliative Medicine

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Dominic Nardi is a Palliative Medicine provider in Indianapolis, Indiana. Dr. Nardi is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Trisomy 13, Omphalocele, Gliomatosis Cerebri, and Gastroschisis.

    Advanced in Trisomy 13
    Medical Genetics | Pediatrics
    Advanced in Trisomy 13
    Medical Genetics | Pediatrics
    550 University Blvd, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Gabrielle Geddes is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Geddes is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Costello Syndrome, Hemihyperplasia, RASopathies, Birt-Hogg-Dube Syndrome, and Gastrostomy. Dr. Geddes is currently accepting new patients.

    Advanced in Trisomy 13
    Palliative Medicine
    Advanced in Trisomy 13
    Palliative Medicine

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Jessica Zavadil is a Palliative Medicine provider in Indianapolis, Indiana. Dr. Zavadil is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Omphalocele, Zellweger Syndrome, and Pediatric Low-Grade Glioma (pLGG).

    Advanced in Trisomy 13
    Advanced in Trisomy 13

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Patrick Clements is a Pediatrics provider in Indianapolis, Indiana. Dr. Clements is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Trisomy 13, Jaundice, Polydactyly, and Hypoplasia of the Tibia with Polydactyly.

    Advanced in Trisomy 13
    Palliative Medicine
    Advanced in Trisomy 13
    Palliative Medicine

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Kari Kendall is a Palliative Medicine provider in Indianapolis, Indiana. Dr. Kendall is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Omphalocele, Gliomatosis Cerebri, and Gastroschisis.

    Advanced in Trisomy 13
    Pediatric Neurology
    Advanced in Trisomy 13
    Pediatric Neurology

    Office

    11590 N Meridian St Ste 300, 
    Carmel, IN 
    Languages Spoken:
    English

    Bittu Majmudar is a Pediatric Neurologist in Carmel, Indiana. Dr. Majmudar is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Bilateral Perisylvian Polymicrogyria, Joubert Syndrome, Hydranencephaly, and Polymicrogyria.

    Advanced in Trisomy 13
    Medical Genetics | Pediatrics
    Advanced in Trisomy 13
    Medical Genetics | Pediatrics

    Iu Health Medical Group LLC

    1701 N Senate Ave, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Erin Conboy is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Conboy is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Hereditary Multiple Osteochondromas, Clouston Syndrome, Ectodermal Dysplasias, and Early Infantile Epileptic Encephalopathy. Dr. Conboy is currently accepting new patients.

    Advanced in Trisomy 13
    Neonatology | Pediatrics
    Advanced in Trisomy 13
    Neonatology | Pediatrics

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Jayme Allen is a Neonatologist and a Pediatrics provider in Indianapolis, Indiana. Dr. Allen is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Gastroschisis, Atresia of Small Intestine, Omphalocele, and Colonic Atresia.

    Advanced in Trisomy 13
    Intensive Care Medicine | Anesthesiology | Pediatrics
    Advanced in Trisomy 13
    Intensive Care Medicine | Anesthesiology | Pediatrics

    University Pediatric Associates Inc

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Colin Rogerson is an Intensive Care Medicine specialist and an Anesthesiologist in Indianapolis, Indiana. Dr. Rogerson is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Trisomy 13, Cerebral Hypoxia, Omphalocele, and Bone Marrow Aspiration. Dr. Rogerson is currently accepting new patients.

    Sarah Bauer
    Experienced in Trisomy 13
    Pediatric Pulmonology
    Experienced in Trisomy 13
    Pediatric Pulmonology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Sarah Bauer is a Pediatric Pulmonologist in Indianapolis, Indiana. Dr. Bauer is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Bronchopulmonary Dysplasia, Subglottic Stenosis, Stridor, and Cerebral Hypoxia.

    Experienced in Trisomy 13
    Neonatology | Pediatrics
    Experienced in Trisomy 13
    Neonatology | Pediatrics

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Paulomi Chaudhry is a Neonatologist and a Pediatrics provider in Indianapolis, Indiana. Dr. Chaudhry is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Omphalocele, Gastroschisis, Colonic Atresia, Atresia of Small Intestine, and Thymectomy.

    Experienced in Trisomy 13
    Palliative Medicine
    Experienced in Trisomy 13
    Palliative Medicine

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Offers Telehealth

    Lauren Jacobs is a Palliative Medicine provider in Indianapolis, Indiana. Dr. Jacobs is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Zellweger Syndrome, Trisomy 13, and Omphalocele.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    IU Health Arnett Hospital

    5165 McCarty Ln, 
    Lafayette, IN 
    Languages Spoken:
    English

    Osayame Ekhaguere is a Pediatrics provider in Lafayette, Indiana. Dr. Ekhaguere is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Gastroschisis, Omphalocele, Colonic Atresia, and Atresia of Small Intestine.

    Experienced in Trisomy 13
    Developmental and Behavioral Pediatrics | Pediatrics
    Experienced in Trisomy 13
    Developmental and Behavioral Pediatrics | Pediatrics

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Abigail Klemsz is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Klemsz is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Orofaciodigital Syndrome 6, Coach Syndrome, Lissencephaly 2, Gastrostomy, and Adenoidectomy.

    Showing 1-20 of 23

    Last Updated: 02/22/2026

    What is the definition of Trisomy 13?

    Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.

    When should I see a Trisomy 13 doctor in Indiana, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Trisomy 13 doctor in Indiana, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Trisomy 13 doctors in Indiana, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Trisomy 13 doctors in Indiana, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Trisomy 13 doctor in Indiana, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Trisomy 13 doctor search results page. 

    Why is it important to get a second opinion from a different Trisomy 13 doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Trisomy 13 doctor in Indiana, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Trisomy 13 doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Trisomy 13 doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Trisomy 13 doctors in Indiana, US?

    Look for the filter feature on the left side of the Trisomy 13 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Trisomy 13 doctor that offers video calls?

    Look for the filter feature on the left-side of the Trisomy 13 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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