The 20 Best Trisomy 13 Doctors Near Me in Michigan, US

Find the Top Trisomy 13 Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 59 doctor with experience in Trisomy 13 near Michigan, US. Of these, 35 are Experienced and 24 are Advanced.

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59 providers found
    Advanced in Trisomy 13
    Pediatric Pulmonology
    Advanced in Trisomy 13
    Pediatric Pulmonology

    Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    9+ years
    Languages Spoken:
    English
    Accepting New Patients

    Carolyn Dress is a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 9 years. Dr. Dress is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Trisomy 13, Duchenne Muscular Dystrophy, and Spinal Muscular Atrophy Type 2. Dr. Dress is board certified in American Board Of Pediatrics and American Board Of Pediatrics. Dr. Dress is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine

    Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5301, 
    Grand Rapids, MI 
    Experience:
    14+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jennifer Curtis is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 14 years. Dr. Curtis is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Trisomy 13, Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Curtis is board certified in American Board Of Pediatrics, American Board Of Pediatrics, and American Board Of Pediatrics. Dr. Curtis is currently accepting new patients.

    Advanced in Trisomy 13
    Advanced in Trisomy 13

    Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

    100 Michigan Street Northeast, Floor 3W, 
    Grand Rapids, MI 
    Experience:
    10+ years
    Languages Spoken:
    English

    Mary Reinoehl is a Neonatologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 10 years. Dr. Reinoehl is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Trisomy 13, Wolf-Hirschhorn Syndrome, Atresia of Small Intestine, and Gastroschisis. Dr. Reinoehl is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Learn about our expert tiers
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Caren Goldberg is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Goldberg is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Mitral Atresia, Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Aneurysm Repair, and Patent Foramen Ovale Repair. Dr. Goldberg is board certified in Pediatric Cardiology.

    Advanced in Trisomy 13
    Cardiology | Pediatrics | Pediatric Cardiology
    Advanced in Trisomy 13
    Cardiology | Pediatrics | Pediatric Cardiology

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1, Level 2, 
    Brighton, MI 
    Experience:
    10+ years
    Languages Spoken:
    English

    Michael Joynt is a Pediatrics specialist and an Internal Medicine provider practicing medicine in Brighton, Michigan. He has been practicing medicine for over 10 years. Dr. Joynt is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Isthmian Coarctation, Coarctation of the Aorta, Patent Foramen Ovale Repair, and Aneurysm Repair. Dr. Joynt is board certified in Pediatric Cardiology and Pediatrics.

    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine

    Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5301, 
    Grand Rapids, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Bradd Hemker is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Hemker is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Trisomy 13, Wildervanck Syndrome, Aase Syndrome, and CHARGE Syndrome. Dr. Hemker is board certified in American Board Of Pediatrics, American Board Of Pediatrics, and American Board Of Pediatrics. Dr. Hemker is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Carlen Fifer is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Fifer is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Tetralogy of Fallot, Lithotripsy, and Septoplasty. Dr. Fifer is board certified in Pediatric Cardiology.

    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics

    Northville Health Center

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
    Languages Spoken:
    English

    Jesse Hansen is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Northville, Michigan. Dr. Hansen is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Trisomy 18, Patent Foramen Ovale Repair, and Aneurysm Repair. Dr. Hansen is board certified in Pediatric Cardiology and Pediatrics.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    Corewell Health Pediatric Neurodevelopmental - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    12+ years
    Languages Spoken:
    English

    Megan Quist is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Quist is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial. Dr. Quist is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in Trisomy 13
    Pediatric Neurology | Family Medicine
    Experienced in Trisomy 13
    Pediatric Neurology | Family Medicine

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Seth Devries is a Pediatric Neurologist and a Family Medicine provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Devries is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Absence Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy in Children. Dr. Devries is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2017 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2015. Dr. Devries is currently accepting new patients.

    Experienced in Trisomy 13
    Neurology | Pediatric Neurology
    Experienced in Trisomy 13
    Neurology | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    17+ years
    Languages Spoken:
    English, French
    Accepting New Patients

    Alexandra Shaw is a Neurologist and a Pediatric Neurologist practicing medicine in Royal Oak, Michigan. She has been practicing medicine for over 17 years. Dr. Shaw is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy Juvenile Absence, Absence Seizure, and Generalized Tonic-Clonic Seizure. Dr. Shaw is board certified in American Board Of Psychiatry And Neurology and American Board Of Psychiatry And Neurology. Dr. Shaw is currently accepting new patients.

    Experienced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Experienced in Trisomy 13
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    I grew up in a working class family in a small town in Illinois. Caring for children was the primary goal that steered me into a medical career. My pediatric and cardiology training were at St Louis Children's Hospital / Washington University. I trained for two years in pediatric electrophysiology under Professor J. Philip Saul at the Medical University of South Carolina. My wife and I love living in Ann Arbor and have two school age boys. I have been the Cubmaster of a local pack for over 5 years and enjoy volunteering my time to help children outside of the hospital. My free time is spent as the family cook and in activities with my children. Dr. Lapage is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Block, Arrhythmias, Congenital Heart Disease (CHD), Cardiac Ablation, and Heart Transplant. Dr. Lapage is board certified in Pediatric Cardiology and Pediatrics.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    U Of M Pediatric Critical Care Special Services

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Erica Andrist is a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Andrist is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her clinical expertise encompasses Trisomy 13, Cri-Du-Chat Syndrome, Urea Cycle Disorders (UCD), DiGeorge Syndrome, and Adenoidectomy. Dr. Andrist is board certified in Pediatric Critical Care Medicine and Pediatrics.

    Experienced in Trisomy 13
    Pediatric Neurology
    Experienced in Trisomy 13
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Experienced in Trisomy 13
    Pediatric Pulmonology
    Experienced in Trisomy 13
    Pediatric Pulmonology

    Helen DeVos Children's Hospital Pulmonary And Sleep Medicine

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    40+ years
    Languages Spoken:
    English
    Accepting New Patients

    Susan Millard is a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 40 years. Dr. Millard is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Exocrine Pancreatic Insufficiency, Cystic Fibrosis, and Vocal Cord Dysfunction. Dr. Millard is board certified in American Board Of Pediatrics, Pediatric Pulmonology - 1992. Dr. Millard is currently accepting new patients.

    Experienced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Experienced in Trisomy 13
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    David Bradley is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Bradley is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Transposition of the Great Arteries, Tetralogy of Fallot, Congenital Heart Block, and Hypoplastic Left Heart Syndrome (HLHS).

    Experienced in Trisomy 13
    Pediatric Cardiology
    Experienced in Trisomy 13
    Pediatric Cardiology

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Experience:
    10+ years
    Languages Spoken:
    English

    Patrick Connell is a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. He has been practicing medicine for over 10 years. Dr. Connell is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Block, Wolff-Parkinson-White Syndrome, Inappropriate Sinus Tachycardia (IST), and Familial Ventricular Tachycardia. Dr. Connell is board certified in Pediatric Cardiology and Pediatrics.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Experienced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Experienced in Trisomy 13
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Albert Rocchini is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Rocchini is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Ventricular Septal Defects, Patent Foramen Ovale Repair, and Stent Placement.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    Corewell Health William Beaumont University Hospital Pediatric Genetics

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Campbell is a Pediatrics provider practicing medicine in Royal Oak, Michigan. She has been practicing medicine for over 10 years. Dr. Campbell is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Increased Head Circumference, Delayed Growth, Congenital Athymia, and Acromesomelic Dysplasia Campailla Martinelli Type. Dr. Campbell is board certified in American Board Of Pediatrics. Dr. Campbell is currently accepting new patients.

    Showing 1-20 of 59

    Last Updated: 04/28/2026

    What is the definition of Trisomy 13?

    Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.

    When should I see a Trisomy 13 doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Trisomy 13 doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Trisomy 13 doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Trisomy 13 doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Trisomy 13 doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Trisomy 13 doctor search results page. 

    Why is it important to get a second opinion from a different Trisomy 13 doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Trisomy 13 doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Trisomy 13 doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Trisomy 13 doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Trisomy 13 doctors in Michigan, US?

    Look for the filter feature on the left side of the Trisomy 13 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Trisomy 13 doctor that offers video calls?

    Look for the filter feature on the left-side of the Trisomy 13 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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