The 20 Best Trisomy 13 Doctors Near Me in Michigan, US

Find the Top Trisomy 13 Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 59 doctor with experience in Trisomy 13 near Michigan, US. Of these, 38 are Experienced and 21 are Advanced.

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59 providers found
    Advanced in Trisomy 13
    Neonatology | Pediatrics
    Advanced in Trisomy 13
    Neonatology | Pediatrics
    Referral may be required

    C.S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Katie Baughman is a Neonatologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Baughman is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Trisomy 13, Cystic Adenomatoid Malformation of Lung, Omphalocele, and Rotor Syndrome. Dr. Baughman is board certified in Pediatrics and Neonatal Perinatal Medicine. Dr. Baughman is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Neurology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Neurology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Angad Kochar is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Kochar is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Trisomy 13, Seizures, Generalized Tonic-Clonic Seizure, and Lennox-Gastaut Syndrome (LGS). Dr. Kochar is board certified in Neurology W/Spec Qual Child Neuro. Dr. Kochar is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Carey Lumeng is a Pediatric Pulmonologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Lumeng is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Secondary Immunodeficiency (SID), Cystic Fibrosis, Newborn Jaundice, Trisomy 13, and Adenoidectomy. Dr. Lumeng is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Referral may be required

    Corewell Health Pediatric Hospitalists - Grand Rapids

    100 Michigan Street Northeast, Room 280, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Jennifer Curtis is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Grand Rapids, Michigan. Dr. Curtis is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Trisomy 13, Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Curtis is board certified in American Board Of Pediatrics. Dr. Curtis is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Referral may be required

    C.S. Mott Children's Hospital

    1540 E Hospital Dr., Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Patricia Keefer is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Ann Arbor, Michigan. Dr. Keefer is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Trisomy 13, Early Infantile Epileptic Encephalopathy, Koolen De Vries Syndrome, and CHARGE Syndrome. Dr. Keefer is board certified in Pediatrics, Hospice & Palliative Med, and Internal Medicine. Dr. Keefer is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine | Hospital Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine | Hospital Medicine
    Referral may be required

    C.S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    D'anna Saul is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Ann Arbor, Michigan. Dr. Saul is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Trisomy 13, Chediak-Higashi Syndrome, Malnutrition, and Esophageal Perforation. Dr. Saul is board certified in Pediatrics, Pediatric Hospital Medicine, Hospice & Palliative Med, and Internal Medicine. Dr. Saul is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Caren Goldberg is a Pediatric Cardiologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Goldberg is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Tetralogy of Fallot, Aneurysm Repair, and Patent Foramen Ovale Repair. Dr. Goldberg is board certified in Pediatric Cardiology. Dr. Goldberg is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Referral may be required

    Congenital Heart Center

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Jesse Hansen is a Pediatric Cardiologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Hansen is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Trisomy 18, Patent Foramen Ovale Repair, and Aneurysm Repair. Dr. Hansen is board certified in Pediatrics and Pediatric Cardiology. Dr. Hansen is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Neurology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Neurology | Pediatrics
    Referral may be required

    U Of M Neurology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Steven Leber is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Leber is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Seizures, Partial Seizure, and Dihydrolipoamide Dehydrogenase Deficiency. Dr. Leber is currently accepting new patients.

    Advanced in Trisomy 13
    Cardiology | Pediatrics | Pediatric Cardiology
    Advanced in Trisomy 13
    Cardiology | Pediatrics | Pediatric Cardiology
    Referral may be required

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1, Level 2, 
    Brighton, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Joynt is a Cardiologist and a Pediatrics provider practicing medicine in Brighton, Michigan. Dr. Joynt is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Isthmian Coarctation, Coarctation of the Aorta, Patent Foramen Ovale Repair, and Aneurysm Repair. Dr. Joynt is board certified in Pediatrics and Pediatric Cardiology. Dr. Joynt is currently accepting new patients.

    Advanced in Trisomy 13
    Neonatology | Pediatrics
    Advanced in Trisomy 13
    Neonatology | Pediatrics
    Referral may be required

    U Of M Pediatric Neonatology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Kate Stanley is a Neonatologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Stanley is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Trisomy 13, Atresia of Small Intestine, Cystic Adenomatoid Malformation of Lung, and Cardiofaciocutaneous Syndrome. Dr. Stanley is board certified in Pediatrics and Neonatal Perinatal Medicine. Dr. Stanley is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Samya Nasr is a Pediatric Pulmonologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Nasr is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, Jaundice, and Gastrostomy. Dr. Nasr is currently accepting new patients.

    Advanced in Trisomy 13
    Neonatology | Pediatrics
    Advanced in Trisomy 13
    Neonatology | Pediatrics
    Referral may be required

    U Of M Pediatric Neonatology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    Mohammad Attar is a Neonatologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Attar is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Cystic Adenomatoid Malformation of Lung, Trisomy 13, Atresia of Small Intestine, and Myelomeningocele. Dr. Attar is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Referral may be required

    Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5301, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Bradd Hemker is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Grand Rapids, Michigan. Dr. Hemker is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Trisomy 13, Wildervanck Syndrome, Early Infantile Epileptic Encephalopathy, and Microcephaly Deafness Syndrome. Dr. Hemker is board certified in American Board Of Pediatrics. Dr. Hemker is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Carlen Fifer is a Pediatric Cardiologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Fifer is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Tetralogy of Fallot, Lithotripsy, and Septoplasty. Dr. Fifer is board certified in Pediatric Cardiology. Dr. Fifer is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics | Sleep Medicine
    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics | Sleep Medicine
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Hindi, Urdu
    Accepting New Patients

    Fauziya Hassan is a Pediatric Pulmonologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Hassan is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Central Sleep Apnea, Obstructive Sleep Apnea, Congenital Central Hypoventilation Syndrome, Duchenne Muscular Dystrophy, and Adenoidectomy. Dr. Hassan is currently accepting new patients.

    Advanced in Trisomy 13
    Palliative Medicine | Pediatrics
    Advanced in Trisomy 13
    Palliative Medicine | Pediatrics
    Referral may be required

    U Of M Geriatrics

    4260 Plymouth Rd, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Adam Marks is a Palliative Medicine specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Marks is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Opioid Induced Constipation, Trisomy 13, Wildervanck Syndrome, and CHARGE Syndrome. Dr. Marks is board certified in Pediatrics, Hospice & Palliative Med, and Internal Medicine. Dr. Marks is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English, French
    Accepting New Patients

    Thomas Saba is a Pediatric Pulmonologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Saba is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Situs Inversus, Ciliary Dyskinesia-Bronchiectasis, Primary Ciliary Dyskinesia (PCD), and Secondary Immunodeficiency (SID). Dr. Saba is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Pulmonology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Amy Filbrun is a Pediatric Pulmonologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Filbrun is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Congenital Unilateral Pulmonary Hypoplasia, Cystic Fibrosis, Secondary Immunodeficiency (SID), and Newborn Jaundice. Dr. Filbrun is currently accepting new patients.

    Advanced in Trisomy 13
    Palliative Medicine | Pediatrics
    Advanced in Trisomy 13
    Palliative Medicine | Pediatrics
    Referral may be required

    C.S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Nurah Lawal is a Palliative Medicine specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Lawal is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Trisomy 13, Chediak-Higashi Syndrome, Chondrodystrophy, and Tracheal Agenesis. Dr. Lawal is board certified in Pediatrics and Hospice & Palliative Med. Dr. Lawal is currently accepting new patients.

    Showing 1-20 of 59

    Last Updated: 09/26/2026

    What is the definition of Trisomy 13?

    Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.

    When should I see a Trisomy 13 doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Trisomy 13 doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Trisomy 13 doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Trisomy 13 doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Trisomy 13 doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Trisomy 13 doctor search results page. 

    Why is it important to get a second opinion from a different Trisomy 13 doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Trisomy 13 doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Trisomy 13 doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Trisomy 13 doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Trisomy 13 doctors in Michigan, US?

    Look for the filter feature on the left side of the Trisomy 13 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Trisomy 13 doctor that offers video calls?

    Look for the filter feature on the left-side of the Trisomy 13 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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