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    Last Updated: 10/30/2025

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    MediFind found 47 doctor with experience in Trisomy 13 near Ann Arbor, MI. Of these, 25 are Experienced and 22 are Advanced.

    Location
    LocationClose
    47 providers found
      Fauziya Hassan
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr 1st Floor Room, 1b30 University Hosptial, 
      Ann Arbor, MI 
       (1.8 miles away)
      Languages Spoken:
      English, Hindi, Urdu
      Accepting New Patients

      Fauziya Hassan is a Pediatric Pulmonologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Hassan is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Central Sleep Apnea, Obstructive Sleep Apnea, Congenital Central Hypoventilation Syndrome, Duchenne Muscular Dystrophy, and Adenoidectomy. Dr. Hassan is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Trisomy 13
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Angad Kochar is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Kochar is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Trisomy 13, Seizures, Generalized Tonic-Clonic Seizure, and Camptocormism. Dr. Kochar is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Carey Lumeng is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Ann Arbor, Michigan. Dr. Lumeng is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Secondary Immunodeficiency (SID), Cystic Fibrosis, Newborn Jaundice, Trisomy 13, and Adenoidectomy. Dr. Lumeng is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Trisomy 13
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Trisomy 13
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Carlen Fifer is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Fifer is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Tetralogy of Fallot, Lithotripsy, and Septoplasty.

      Advanced in Trisomy 13
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Advanced in Trisomy 13
      Pediatric Otolaryngology | Pediatrics | Otolaryngology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Marc Thorne is a Pediatric Otolaryngologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Thorne is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Hearing Loss, Aural Polyps, Infant Hearing Loss, Myringotomy, and Adenoidectomy. Dr. Thorne is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics
      1500 East Medical Center Dr, 6th Floor C.s. Mott Children's Hospital, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Amy Filbrun is a Pediatric Pulmonologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Filbrun is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Congenital Unilateral Pulmonary Hypoplasia, Cystic Fibrosis, Secondary Immunodeficiency (SID), and Newborn Jaundice. Dr. Filbrun is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine | Hospital Medicine
      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine | Hospital Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Patricia Keefer is a Pediatrics specialist and a Palliative Medicine provider in Ann Arbor, Michigan. Dr. Keefer is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Microcephaly Deafness Syndrome, Early Infantile Epileptic Encephalopathy, and Koolen De Vries Syndrome. Dr. Keefer is currently accepting new patients.

      Advanced in Trisomy 13
      Palliative Medicine | Hospital Medicine | Pediatrics
      Advanced in Trisomy 13
      Palliative Medicine | Hospital Medicine | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      D'anna Saul is a Palliative Medicine specialist and a Hospital Medicine provider in Ann Arbor, Michigan. Dr. Saul is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Chediak-Higashi Syndrome, Malnutrition, and Esophageal Perforation. Dr. Saul is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine
      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Nurah Lawal is a Pediatrics specialist and a Palliative Medicine provider in Ann Arbor, Michigan. Dr. Lawal is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Chediak-Higashi Syndrome, Chondrodystrophy, and Tracheal Agenesis.

      Advanced in Trisomy 13
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Trisomy 13
      Neurology | Pediatrics | Pediatric Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Laurel Reed is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Reed is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Absence Seizure. Dr. Reed is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Trisomy 13
      Pediatric Cardiology | Cardiology | Pediatrics
      1500 East Medical Center Dr, 11th Floor C.s. Mott Childrens Hospital Room 661, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Caren Goldberg is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Goldberg is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Mitral Atresia, Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Aneurysm Repair, and Patent Foramen Ovale Repair. Dr. Goldberg is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Cardiology | Pediatrics | Cardiology
      Advanced in Trisomy 13
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Michael Joynt is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Joynt has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Congenital Heart Disease (CHD), Coarctation of the Aorta, Isthmian Coarctation, Patent Foramen Ovale Repair, and Aneurysm Repair. Dr. Joynt is currently accepting new patients.

      Advanced in Trisomy 13
      Palliative Medicine | Geriatrics | Pediatrics
      Advanced in Trisomy 13
      Palliative Medicine | Geriatrics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Adam Marks is a Palliative Medicine specialist and a Geriatrics provider in Ann Arbor, Michigan. Dr. Marks is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Opioid Induced Constipation, Trisomy 13, Koolen De Vries Syndrome, and Microcephaly Deafness Syndrome. Dr. Marks is currently accepting new patients.

      Advanced in Trisomy 13
      Neonatology | Pediatrics
      Advanced in Trisomy 13
      Neonatology | Pediatrics
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Katie Baughman is a Neonatologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Baughman is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Cystic Adenomatoid Malformation of Lung, Omphalocele, and Rotor Syndrome. Dr. Baughman is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Neurology | Pediatrics
      Advanced in Trisomy 13
      Pediatric Neurology | Pediatrics
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Steven Leber is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Leber is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Myoclonic Epilepsy, Seizures, Partial Seizure, and Dihydrolipoamide Dehydrogenase Deficiency. Dr. Leber is currently accepting new patients.

      Advanced in Trisomy 13
      Neonatology | Pediatrics
      Advanced in Trisomy 13
      Neonatology | Pediatrics
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kate Stanley is a Neonatologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Stanley is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Atresia of Small Intestine, Cystic Adenomatoid Malformation of Lung, and Cardiofaciocutaneous Syndrome. Dr. Stanley is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Samya Nasr is a Pediatric Pulmonologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Nasr is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, Jaundice, and Gastrostomy. Dr. Nasr is currently accepting new patients.

      Advanced in Trisomy 13
      Neonatology | Pediatrics
      Advanced in Trisomy 13
      Neonatology | Pediatrics
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Mohammad Attar is a Neonatologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Attar is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Cystic Adenomatoid Malformation of Lung, Trisomy 13, Atresia of Small Intestine, and Myelomeningocele. Dr. Attar is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Tara Havens is a Pediatric Pulmonologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Havens is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Cystic Fibrosis, Congenital Unilateral Pulmonary Hypoplasia, Secondary Immunodeficiency (SID), and Newborn Jaundice. Dr. Havens is currently accepting new patients.

      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics
      Advanced in Trisomy 13
      Pediatric Pulmonology | Pediatrics
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English, French
      Accepting New Patients

      Thomas Saba is a Pediatric Pulmonologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Saba is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Situs Inversus, Ciliary Dyskinesia-Bronchiectasis, Primary Ciliary Dyskinesia (PCD), and Secondary Immunodeficiency (SID). Dr. Saba is currently accepting new patients.

      Showing 1-20 of 47

      Last Updated: 10/30/2025

      What is the definition of Trisomy 13?

      Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.

      When should I see a Trisomy 13 doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Trisomy 13 doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Trisomy 13 doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Trisomy 13 doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Trisomy 13 doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Trisomy 13 doctor search results page. 

      Why is it important to get a second opinion from a different Trisomy 13 doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Trisomy 13 doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Trisomy 13 doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Trisomy 13 doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Trisomy 13 doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Trisomy 13 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Trisomy 13 doctor that offers video calls?

      Look for the filter feature on the left-side of the Trisomy 13 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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