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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Trisomy 13 near Grand Rapids, MI. Of these, 5 are Experienced and 4 are Advanced.

    Location
    LocationClose
    9 providers found
      Mary A. Reinoehl
      Advanced in Trisomy 13
      Advanced in Trisomy 13

      Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

      100 Michigan Street Northeast, Floor 3W, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English

      Mary Reinoehl is a Neonatologist in Grand Rapids, Michigan. Dr. Reinoehl has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Wolf-Hirschhorn Syndrome, Atresia of Small Intestine, and Gastroschisis.

      Carolyn Dress
      Advanced in Trisomy 13
      Pediatric Pulmonology
      Advanced in Trisomy 13
      Pediatric Pulmonology

      Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      8+ years
      Languages Spoken:
      English
      Accepting New Patients

      Carolyn Dress is a Pediatric Pulmonologist in Grand Rapids, Michigan. Dr. Dress has been practicing medicine for over 8 years and is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Laryngomalacia, Trisomy 13, Duchenne Muscular Dystrophy, and Spinal Muscular Atrophy Type 2. Dr. Dress is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Jennifer C. Curtis
      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine
      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine

      Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5301, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Curtis is a Pediatrics specialist and a Palliative Medicine provider in Grand Rapids, Michigan. Dr. Curtis has been practicing medicine for over 13 years and is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Trisomy 13, Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B). Dr. Curtis is currently accepting new patients.

      Learn about our expert tiers
      Bradd G. Hemker
      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine
      Advanced in Trisomy 13
      Pediatrics | Palliative Medicine

      Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5301, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients

      Bradd Hemker is a Pediatrics specialist and a Palliative Medicine provider in Grand Rapids, Michigan. Dr. Hemker has been practicing medicine for over 23 years and is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Trisomy 13, Aase Syndrome, Early Infantile Epileptic Encephalopathy, and Koolen De Vries Syndrome. Dr. Hemker is currently accepting new patients.

      Megan D. Quist
      Experienced in Trisomy 13
      Experienced in Trisomy 13

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English

      Megan Quist is a Pediatrics provider in Grand Rapids, Michigan. Dr. Quist has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial.

      Seth P. Devries
      Experienced in Trisomy 13
      Pediatric Neurology
      Experienced in Trisomy 13
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Seth Devries is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Devries has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Absence Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy in Children.

      Daniel R. Fain
      Experienced in Trisomy 13
      Pediatric Neurology
      Experienced in Trisomy 13
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      33+ years
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Fain is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Fain has been practicing medicine for over 33 years and is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is currently accepting new patients.

      Susan L. Millard
      Experienced in Trisomy 13
      Pediatric Pulmonology
      Experienced in Trisomy 13
      Pediatric Pulmonology

      Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      39+ years
      Languages Spoken:
      English

      Susan Millard is a Pediatric Pulmonologist in Grand Rapids, Michigan. Dr. Millard has been practicing medicine for over 39 years and is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Laryngomalacia, Cystic Fibrosis, Exocrine Pancreatic Insufficiency, and Vocal Cord Dysfunction.

      Brooke E. Geddie
      Experienced in Trisomy 13
      Experienced in Trisomy 13

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English

      Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her top areas of expertise are Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of Trisomy 13?

      Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.

      When should I see a Trisomy 13 doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Trisomy 13 doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Trisomy 13 doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Trisomy 13 doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Trisomy 13 doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Trisomy 13 doctor search results page. 

      Why is it important to get a second opinion from a different Trisomy 13 doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Trisomy 13 doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Trisomy 13 doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Trisomy 13 doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Trisomy 13 doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Trisomy 13 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Trisomy 13 doctor that offers video calls?

      Look for the filter feature on the left-side of the Trisomy 13 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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