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    Last Updated: 10/30/2025

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    MediFind found 170 doctor with experience in Tubular Aggregate Myopathy near Germany. Of these, 147 are Experienced, 20 are Advanced, 2 are Distinguished and 1 are Elite.

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    170 providers found
      Elite in Tubular Aggregate Myopathy

      Wolfgang Felber-Muller
      Elite in Tubular Aggregate Myopathy

      Wolfgang Felber-Muller

      UMC, LMU Munich

      Munich, BY, DE 

      Wolfgang Felber-Muller practices in Munich, Germany. Mr. Felber-Muller is rated as an Elite expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Spinal Muscular Atrophy (SMA), and Thymectomy.

      Distinguished in Tubular Aggregate Myopathy

      Astrid Blaschek
      Distinguished in Tubular Aggregate Myopathy

      Astrid Blaschek
      Dr Von Haunersches Children's Hospital, 
      Munich, BY, DE 

      Astrid Blaschek practices in Munich, Germany. Ms. Blaschek is rated as a Distinguished expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Spinal Muscular Atrophy (SMA).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Tubular Aggregate Myopathy

      Benedikt H. Schoser
      Distinguished in Tubular Aggregate Myopathy

      Benedikt H. Schoser
      Munich, BY, DE 

      Benedikt Schoser practices in Munich, Germany. Mr. Schoser is rated as a Distinguished expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, Pompe Disease, and Thymectomy.

      Learn about our expert tiers
      Volker Haucke
      Advanced in Tubular Aggregate Myopathy

      Volker Haucke
      Advanced in Tubular Aggregate Myopathy

      Volker Haucke
      Robert Roessle Str. 10, 
      Berlin, BE, DE 

      Volker Haucke practices in Berlin, Germany. Mr. Haucke is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Cohen Syndrome, Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, and Microcephaly.

      Advanced in Tubular Aggregate Myopathy

      Hans H. Goebel
      Advanced in Tubular Aggregate Myopathy

      Hans H. Goebel

      Charité Universitätsmedizin

      Berlin, BE, DE 

      Hans Goebel practices in Berlin, Germany. Mr. Goebel is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Centronuclear Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Werner P. Stenzel
      Advanced in Tubular Aggregate Myopathy

      Werner P. Stenzel

      Charité Universitätsmedizin

      Berlin, BE, DE 

      Werner Stenzel practices in Berlin, Germany. Mr. Stenzel is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

      Advanced in Tubular Aggregate Myopathy

      Ulrike Schmidt-Schara
      Advanced in Tubular Aggregate Myopathy

      Ulrike Schmidt-Schara
      Essen, NW, DE 

      Ulrike Schmidt-Schara practices in Essen, Germany. Ms. Schmidt-Schara is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

      Advanced in Tubular Aggregate Myopathy

      Haicui Wang
      Advanced in Tubular Aggregate Myopathy

      Haicui Wang
      Robert Koch Str. 21, 
      Koeln, NW, DE 

      Haicui Wang practices in Koeln, Germany. Wang is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and High Arch.

      Advanced in Tubular Aggregate Myopathy

      Raphael J. Schneider
      Advanced in Tubular Aggregate Myopathy

      Raphael J. Schneider
      St Josef Hospital, 
      Bochum, NW, DE 

      Raphael Schneider practices in Bochum, Germany. Schneider is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Amyotonia Congenita, Myotonia Congenita, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Dieter O. Furst
      Advanced in Tubular Aggregate Myopathy

      Dieter O. Furst
      Ulrich Haberland Str. 61a, 
      Bonn, NW, DE 

      Dieter Furst practices in Bonn, Germany. Mr. Furst is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Limb-Girdle Muscular Dystrophy.

      Advanced in Tubular Aggregate Myopathy

      Wolfram Kress
      Advanced in Tubular Aggregate Myopathy

      Wolfram Kress
      Wuerzburg, BY, DE 

      Wolfram Kress practices in Wuerzburg, Germany. Mr. Kress is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Miyoshi Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Bernd K. Fleischmann
      Advanced in Tubular Aggregate Myopathy

      Bernd K. Fleischmann
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Bernd Fleischmann practices in Bonn, Germany. Mr. Fleischmann is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Restrictive Cardiomyopathy (RCM), Vasoconstriction, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Michael Hesse
      Advanced in Tubular Aggregate Myopathy

      Michael Hesse
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Michael Hesse practices in Bonn, Germany. Mr. Hesse is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Restrictive Cardiomyopathy (RCM), Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Frederic Chevessier
      Advanced in Tubular Aggregate Myopathy

      Frederic Chevessier
      Tuebingen, BW, DE 

      Frederic Chevessier practices in Tuebingen, Germany. Mr. Chevessier is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in Tubular Aggregate Myopathy

      Rolf J. Schroder
      Advanced in Tubular Aggregate Myopathy

      Rolf J. Schroder
      Erlangen, BY, DE 

      Rolf Schroder practices in Erlangen, Germany. Mr. Schroder is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Myofibrillar Myopathy, Dominant Dystrophic Epidermolysis Bullosa, Dowling-Meara Epidermolysis Bullosa Simplex, and Tubular Aggregate Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Ulrike Schara
      Advanced in Tubular Aggregate Myopathy

      Ulrike Schara
      Duisburg, NW, DE 

      Ulrike Schara practices in Duisburg, Germany. Ms. Schara is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Cramp-Fasciculation Syndrome, Gastrostomy, and Thymectomy.

      Advanced in Tubular Aggregate Myopathy

      Maja Von Der Hagen
      Advanced in Tubular Aggregate Myopathy

      Maja Von Der Hagen
      Dresden, SN, DE 

      Maja Von Der Hagen practices in Dresden, Germany. Ms. Von Der Hagen is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Nemaline Myopathy, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Microcephaly, and Thrombectomy.

      Advanced in Tubular Aggregate Myopathy

      Peter M. Van Der Ven
      Advanced in Tubular Aggregate Myopathy

      Peter M. Van Der Ven
      Ulrich Haberland Str. 61a, 
      Bonn, NW, DE 

      Peter Van Der Ven practices in Bonn, Germany. Mr. Van Der Ven is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Myofibrillar Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Sebahattin Cirak
      Advanced in Tubular Aggregate Myopathy

      Sebahattin Cirak
      Kerpener Str. 34, 
      Koeln, NW, DE 

      Sebahattin Cirak practices in Koeln, Germany. Cirak is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Arthrogryposis Multiplex Congenita Neurogenic Type, Arthrogryposis Multiplex Congenita, Marden-Walker Syndrome, Horizontal Gaze Palsy with Progressive Scoliosis, and Deep Brain Stimulation.

      Advanced in Tubular Aggregate Myopathy

      Matthias Vorgerd
      Advanced in Tubular Aggregate Myopathy

      Matthias Vorgerd
      BG University Hospital Bergmannsheil GGmbH, 
      Bochum, NW, DE 

      Matthias Vorgerd practices in Bochum, Germany. Mr. Vorgerd is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Pompe Disease, Limb-Girdle Muscular Dystrophy, Cytoplasmic Body Myopathy, and Inclusion Body Myositis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 170

      Last Updated: 10/30/2025

      What is the definition of Tubular Aggregate Myopathy?

      Tubular aggregate myopathy is a disorder that affects the skeletal muscles. The leg muscles are most often affected, but the arm muscles may also be involved. Symptoms include muscle pain, cramping, weakness or stiffness; and exercise-induced muscle fatigue. Affected individuals may have an unusual walking style (gait) or difficulty running, climbing stairs, or getting up from a squatting position. Some individuals develop contractures. This condition may be caused by genetic changes in the STIM1 or ORAI1 genes. It is usually inherited in an autosomal dominant manner, but autosomal recessive inheritance has also been reported.

      When should I see a Tubular Aggregate Myopathy doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Tubular Aggregate Myopathy doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Tubular Aggregate Myopathy doctor in Germany?

      You can find a Tubular Aggregate Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Tubular Aggregate Myopathy doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Tubular Aggregate Myopathy doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Tubular Aggregate Myopathy doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Tubular Aggregate Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Tubular Aggregate Myopathy doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Tubular Aggregate Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Tubular Aggregate Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Tubular Aggregate Myopathy doctors in Germany?

      Look for the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Tubular Aggregate Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Tubular Aggregate Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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