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    Last Updated: 01/09/2026

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    MediFind found 11 doctor with experience in Tubular Aggregate Myopathy near Hamburg, DE. Of these, 11 are Experienced.

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    11 providers found
      Experienced in Tubular Aggregate Myopathy

      Jessika C. Johannsen
      Experienced in Tubular Aggregate Myopathy

      Jessika C. Johannsen
      Hamburg, HH, DE 

      Jessika Johannsen practices in Hamburg, Germany. Ms. Johannsen is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy Type 2.

      Experienced in Tubular Aggregate Myopathy

      Andreas L. Hahn
      Experienced in Tubular Aggregate Myopathy

      Andreas L. Hahn
      Bernhard Nocht Str. 74, 
      Hamburg, HH, DE 

      Andreas Hahn practices in Hamburg, Germany. Mr. Hahn is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Pompe Disease, Noonan Syndrome, Sandhoff Disease, Gastrostomy, and Heart Transplant.

      Experienced in Tubular Aggregate Myopathy

      Tess Holling
      Experienced in Tubular Aggregate Myopathy

      Tess Holling
      Hamburg, HH, DE 

      Tess Holling practices in Hamburg, Germany. Ms. Holling is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Microcephaly Deafness Syndrome, VLDLR-Associated Cerebellar Hypoplasia, Cerebellar Hypoplasia, and Short Stature (Growth Disorders).

      Learn about our expert tiers
      Experienced in Tubular Aggregate Myopathy

      Hermann C. Altmeppen
      Experienced in Tubular Aggregate Myopathy

      Hermann C. Altmeppen
      Hamburg, HH, DE 

      Hermann Altmeppen practices in Hamburg, Germany. Mr. Altmeppen is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Creutzfeldt-Jakob Disease, Alzheimer's Disease, Dementia, and Parkinson's Disease.

      Experienced in Tubular Aggregate Myopathy

      Frank Jacobsen
      Experienced in Tubular Aggregate Myopathy

      Frank Jacobsen
      Hamburg, HH, DE 

      Frank Jacobsen practices in Hamburg, Germany. Mr. Jacobsen is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Anal Cancer, Prostate Cancer, Mesothelioma, Neuroendocrine Tumor, and Prostatectomy.

      Experienced in Tubular Aggregate Myopathy

      Jonas Denecke
      Experienced in Tubular Aggregate Myopathy

      Jonas Denecke
      Martini Str. 52, 
      Hamburg, HH, DE 

      Jonas Denecke practices in Hamburg, Germany. Mr. Denecke is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Pelizaeus-Merzbacher Disease, ALG3-CDG, and Primary Lateral Sclerosis.

      Experienced in Tubular Aggregate Myopathy

      Feizhi Song
      Experienced in Tubular Aggregate Myopathy

      Feizhi Song
      Hamburg, HH, DE 

      Feizhi Song practices in Hamburg, Germany. Song is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Creutzfeldt-Jakob Disease, Nemaline Myopathy, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in Tubular Aggregate Myopathy

      Kerstin Kutsche
      Experienced in Tubular Aggregate Myopathy

      Kerstin Kutsche
      Hamburg, HH, DE 

      Kerstin Kutsche practices in Hamburg, Germany. Ms. Kutsche is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Pyle Disease, Microphthalmia with Linear Skin Defects Syndrome, Gingival Fibromatosis with Hypertrichosis, and Hirsutism in Women.

      Experienced in Tubular Aggregate Myopathy

      Maja Hempel
      Experienced in Tubular Aggregate Myopathy

      Maja Hempel
      Martini Str. 52, 
      Hamburg, HH, DE 

      Maja Hempel practices in Hamburg, Germany. Ms. Hempel is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Lactic Acidosis, Mitochondrial Complex 3 Deficiency, Hypotonia, and Microcephaly.

      Experienced in Tubular Aggregate Myopathy

      Jakob B. Matschke
      Experienced in Tubular Aggregate Myopathy

      Jakob B. Matschke
      Hamburg, HH, DE 

      Jakob Matschke practices in Hamburg, Germany. Mr. Matschke is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Brain Tumor, Creutzfeldt-Jakob Disease, Triple-Negative Breast Cancer, and Schwannomatosis.

      Experienced in Tubular Aggregate Myopathy

      Jasmin Lisfeld
      Experienced in Tubular Aggregate Myopathy

      Jasmin Lisfeld
      Hamburg, HH, DE 

      Jasmin Lisfeld practices in Hamburg, Germany. Ms. Lisfeld is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Non-Hodgkin Lymphoma, Achalasia Microcephaly Syndrome, Microcephaly, and Cortical Dysplasia.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-11 of 11

      Last Updated: 01/09/2026

      What is the definition of Tubular Aggregate Myopathy?

      Tubular aggregate myopathy is a disorder that affects the skeletal muscles. The leg muscles are most often affected, but the arm muscles may also be involved. Symptoms include muscle pain, cramping, weakness or stiffness; and exercise-induced muscle fatigue. Affected individuals may have an unusual walking style (gait) or difficulty running, climbing stairs, or getting up from a squatting position. Some individuals develop contractures. This condition may be caused by genetic changes in the STIM1 or ORAI1 genes. It is usually inherited in an autosomal dominant manner, but autosomal recessive inheritance has also been reported.

      When should I see a Tubular Aggregate Myopathy doctor in Hamburg, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Tubular Aggregate Myopathy doctor in Hamburg, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Tubular Aggregate Myopathy doctor in Hamburg, DE?

      You can find a Tubular Aggregate Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Tubular Aggregate Myopathy doctors in Hamburg, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Tubular Aggregate Myopathy doctors in Hamburg, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Tubular Aggregate Myopathy doctor in Hamburg, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Tubular Aggregate Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Tubular Aggregate Myopathy doctor in Hamburg, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Tubular Aggregate Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Tubular Aggregate Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Tubular Aggregate Myopathy doctors in Hamburg, DE?

      Look for the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Tubular Aggregate Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Tubular Aggregate Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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