The 20 Best Tubular Aggregate Myopathy Doctors Near Me in North Rhine-Westphalia, DE

Find the Top Tubular Aggregate Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 58 doctor with experience in Tubular Aggregate Myopathy near North Rhine-Westphalia, DE. Of these, 46 are Experienced and 12 are Advanced.

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58 providers found
    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Essen, NW, DE 

    Ulrike Schmidt-Schara practices practicing medicine in Essen, Germany. Ms. Schmidt-Schara is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Dieter Furst practices practicing medicine in Bonn, Germany. Mr. Furst is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Limb-Girdle Muscular Dystrophy.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Robert Koch Str. 21, 
    Koeln, NW, DE 

    Haicui Wang practices practicing medicine in Koeln, Germany. Wang is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and High Arch.

    Learn about our expert tiers
    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Peter Van Der Ven practices practicing medicine in Bonn, Germany. Mr. Van Der Ven is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Cardiomyopathy.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    St Josef Hospital, 
    Bochum, NW, DE 

    Raphael Schneider practices practicing medicine in Bochum, Germany. Mr. Schneider is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Bernd Fleischmann practices practicing medicine in Bonn, Germany. Mr. Fleischmann is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Vasoconstriction, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Michael Hesse practices practicing medicine in Bonn, Germany. Mr. Hesse is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Duisburg, NW, DE 

    Ulrike Schara practices practicing medicine in Duisburg, Germany. Ms. Schara is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Cramp-Fasciculation Syndrome, Gastrostomy, and Thymectomy.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    BG University Hospital Bergmannsheil Bochum, 
    Bochum, NW, DE 

    Matthias Vorgerd practices practicing medicine in Bochum, Germany. Mr. Vorgerd is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Limb-Girdle Muscular Dystrophy, Cytoplasmic Body Myopathy, and Myositis.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy

    St. Marien Hospital Borken

    Borken, NW, DE 

    Rudolf Kley practices practicing medicine in Borken, Germany. Mr. Kley is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Cytoplasmic Body Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Kerpener Str. 34, 
    Koeln, NW, DE 

    Sebahattin Cirak practices practicing medicine in Koeln, Germany. Cirak is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. They are also highly rated in 26 other conditions, according to our data. Their clinical expertise encompasses Marden-Walker Syndrome, Arthrogryposis Multiplex Congenita Neurogenic Type, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Deep Brain Stimulation.

    Advanced in Tubular Aggregate Myopathy
    Advanced in Tubular Aggregate Myopathy
    Joseph Stelzmann Str. 26, 
    Koeln, NW, DE 

    Christoph Clemen practices practicing medicine in Koeln, Germany. Mr. Clemen is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Paget's Disease of Bone, Emery-Dreifuss Muscular Dystrophy, and Primary Lateral Sclerosis.

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Kerpener Str 62, 
    Koeln, NW, DE 

    Holger Thiele practices practicing medicine in Koeln, Germany. Mr. Thiele is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 82 other conditions, according to our data. His clinical expertise encompasses Heart Attack, Cardiogenic Shock, Tricuspid Regurgitation, Percutaneous Coronary Intervention (PCI), and Transcatheter Aortic Valve Replacement (TAVR).

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Julia Schuld practices practicing medicine in Bonn, Germany. Ms. Schuld is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Myofibrillar Myopathy.

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Essen, NW, DE 

    Frederik Braun practices practicing medicine in Essen, Germany. Mr. Braun is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Troyer Syndrome, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Bonn, NW, DE 

    Martin Wiemann practices practicing medicine in Bonn, Germany. Mr. Wiemann is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Necrosis, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Otto Hahn Str. 6b, 
    Dortmund, NW, DE 

    Andreas Roos practices practicing medicine in Dortmund, Germany. Mr. Roos is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, and Spinal Muscular Atrophy (SMA).

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Essen, NW, DE 

    Andrea Gangfuss practices practicing medicine in Essen, Germany. Ms. Gangfuss is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Infantile Axonal Neuropathy, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Giant Axonal Neuropathy.

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Robert Koch Str. 21, 
    Koeln, NW, DE 

    Hulya-sevcan Daimaguler practices practicing medicine in Koeln, Germany. Daimaguler is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their clinical expertise encompasses Dysarthria, Congenital Contractures, Arthrogryposis Multiplex Congenita, and Primary Lateral Sclerosis.

    Experienced in Tubular Aggregate Myopathy
    Experienced in Tubular Aggregate Myopathy
    Koeln, NW, DE 

    Carolin Berwanger practices practicing medicine in Koeln, Germany. Ms. Berwanger is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Congenital Fiber-Type Disproportion.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 58

    Last Updated: 04/28/2026

    What is the definition of Tubular Aggregate Myopathy?

    Tubular aggregate myopathy is a disorder that affects the skeletal muscles. The leg muscles are most often affected, but the arm muscles may also be involved. Symptoms include muscle pain, cramping, weakness or stiffness; and exercise-induced muscle fatigue. Affected individuals may have an unusual walking style (gait) or difficulty running, climbing stairs, or getting up from a squatting position. Some individuals develop contractures. This condition may be caused by genetic changes in the STIM1 or ORAI1 genes. It is usually inherited in an autosomal dominant manner, but autosomal recessive inheritance has also been reported.

    When should I see a Tubular Aggregate Myopathy doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tubular Aggregate Myopathy doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tubular Aggregate Myopathy doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tubular Aggregate Myopathy doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tubular Aggregate Myopathy doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Tubular Aggregate Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tubular Aggregate Myopathy doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tubular Aggregate Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tubular Aggregate Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tubular Aggregate Myopathy doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tubular Aggregate Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Tubular Aggregate Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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