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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Tubular Aggregate Myopathy near Estonia. Of these, 17 are Experienced, 2 are Advanced, 2 are Distinguished and 2 are Elite.

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    23 providers found
      Elite in Tubular Aggregate Myopathy

      Edoardo Malfatti
      Elite in Tubular Aggregate Myopathy

      Edoardo Malfatti
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Edoardo Malfatti practices in Estonia. Mr. Malfatti is rated as an Elite expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Elite in Tubular Aggregate Myopathy

      Norma B. Romero
      Elite in Tubular Aggregate Myopathy

      Norma B. Romero
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Norma Romero practices in Estonia. Ms. Romero is rated as an Elite expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Nemaline Myopathy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Tubular Aggregate Myopathy

      Bruno Eymard
      Distinguished in Tubular Aggregate Myopathy

      Bruno Eymard
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Bruno Eymard practices in Estonia. Mr. Eymard is rated as a Distinguished expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Paramyotonia Congenita, Congenital Myasthenic Syndrome, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Thymectomy.

      Learn about our expert tiers
      Distinguished in Tubular Aggregate Myopathy

      John Vissing
      Distinguished in Tubular Aggregate Myopathy

      John Vissing
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      John Vissing practices in Estonia. Mr. Vissing is rated as a Distinguished expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Myasthenia Gravis, Limb-Girdle Muscular Dystrophy Type 2I, and Myoglobinuria Recurrent.

      Advanced in Tubular Aggregate Myopathy

      Maud Beuvin
      Advanced in Tubular Aggregate Myopathy

      Maud Beuvin
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Maud Beuvin practices in Estonia. Ms. Beuvin is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in Tubular Aggregate Myopathy

      Marc A. Bartoli
      Advanced in Tubular Aggregate Myopathy

      Marc A. Bartoli
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Marc Bartoli practices in Estonia. Mr. Bartoli is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Miyoshi Myopathy, Limb-Girdle Muscular Dystrophy, Dysferlinopathy, and Transthyretin Amyloid Cardiomyopathy.

      Experienced in Tubular Aggregate Myopathy

      Morten Duno
      Experienced in Tubular Aggregate Myopathy

      Morten Duno
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Morten Duno practices in Estonia. Mr. Duno is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Primary Carnitine Deficiency, Muenke Syndrome, and Paramyotonia Congenita.

      Experienced in Tubular Aggregate Myopathy

      Gisele Bonne
      Experienced in Tubular Aggregate Myopathy

      Gisele Bonne
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Gisele Bonne practices in Estonia. Ms. Bonne is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Cramp-Fasciculation Syndrome, and Dilated Cardiomyopathy (DCM).

      Experienced in Tubular Aggregate Myopathy

      Thomas O. Krag
      Experienced in Tubular Aggregate Myopathy

      Thomas O. Krag
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Thomas Krag practices in Estonia. Mr. Krag is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Hypokalemic Periodic Paralysis, Glycogen Storage Disease Type 5, and Familial Periodic Paralysis.

      Experienced in Tubular Aggregate Myopathy

      Sander Pajusalu
      Experienced in Tubular Aggregate Myopathy

      Sander Pajusalu
      2 L.Puusepa Street, 
      Tartu, EE 

      Sander Pajusalu practices in Tartu, Estonia. Mr. Pajusalu is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Hypotonia, PMM2-Congenital Disorder of Glycosylation, Drug Induced Dyskinesia, and Floating-Harbor Syndrome.

      Experienced in Tubular Aggregate Myopathy

      Katrin Ounap
      Experienced in Tubular Aggregate Myopathy

      Katrin Ounap
      2 L.Puusepa Street, 
      Tartu, EE 

      Katrin Ounap practices in Tartu, Estonia. Ms. Ounap is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Beckwith-Wiedemann Syndrome, Classic Galactosemia, Macroglossia, and Hypotonia.

      Experienced in Tubular Aggregate Myopathy

      Tiia Reimand
      Experienced in Tubular Aggregate Myopathy

      Tiia Reimand
      Tartu, EE 

      Tiia Reimand practices in Tartu, Estonia. Reimand is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are PEHO Syndrome, Trisomy 14 Mosaicism, Temple Syndrome, and Spondylocostal Dysostosis.

      Experienced in Tubular Aggregate Myopathy

      Inga Talvik
      Experienced in Tubular Aggregate Myopathy

      Inga Talvik
      28 Tervise Street, 
      Tallinn, EE 

      Inga Talvik practices in Tallinn, Estonia. Ms. Talvik is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Myoclonic Epilepsy, Juvenile Myoclonic Epilepsy, Epilepsy, and Epilepsy in Children.

      Experienced in Tubular Aggregate Myopathy

      Tiit Nikopensius
      Experienced in Tubular Aggregate Myopathy

      Tiit Nikopensius
      Tartu, EE 

      Tiit Nikopensius practices in Tartu, Estonia. Nikopensius is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Familial Hypercholesterolemia, Acne, Comedones, and High Cholesterol.

      Experienced in Tubular Aggregate Myopathy

      Sanna Puusepp
      Experienced in Tubular Aggregate Myopathy

      Sanna Puusepp
      2 L. Puusepa Street, 
      Tartu, EE 

      Sanna Puusepp practices in Tartu, Estonia. Ms. Puusepp is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Microcephaly Deafness Syndrome, Optic Nerve Atrophy, Limb-Girdle Muscular Dystrophy, and Charcot-Marie-Tooth Disease.

      Experienced in Tubular Aggregate Myopathy

      Tarmo Annilo
      Experienced in Tubular Aggregate Myopathy

      Tarmo Annilo
      Tartu, EE 

      Tarmo Annilo practices in Tartu, Estonia. Annilo is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Tubular Aggregate Myopathy

      Tiina Talvik
      Experienced in Tubular Aggregate Myopathy

      Tiina Talvik
      Tartu, EE 

      Tiina Talvik practices in Tartu, Estonia. Ms. Talvik is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Epilepsy in Children, Epilepsy, Juvenile Myoclonic Epilepsy, and Stroke.

      Experienced in Tubular Aggregate Myopathy

      Julia R. Dahlqvist
      Experienced in Tubular Aggregate Myopathy

      Julia R. Dahlqvist
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Julia Dahlqvist practices in Estonia. Ms. Dahlqvist is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Spinal and Bulbar Muscular Atrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), Hypokalemic Periodic Paralysis, and Familial Periodic Paralysis.

      Experienced in Tubular Aggregate Myopathy

      Margit Noukas
      Experienced in Tubular Aggregate Myopathy

      Margit Noukas
      8 Puusepa Street, 
      Tartu, EE 

      Margit Noukas practices in Tartu, Estonia. Ms. Noukas is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Mitochondrial Complex 1 Deficiency, Sideroblastic Anemia, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Tubular Aggregate Myopathy

      Kairit Joost
      Experienced in Tubular Aggregate Myopathy

      Kairit Joost
      Tartu, EE 

      Kairit Joost practices in Tartu, Estonia. Joost is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Alstrom Syndrome, X-Linked Creatine Deficiency, Galactosemia, and Russell-Silver Dwarfism.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Tubular Aggregate Myopathy?

      Tubular aggregate myopathy is a disorder that affects the skeletal muscles. The leg muscles are most often affected, but the arm muscles may also be involved. Symptoms include muscle pain, cramping, weakness or stiffness; and exercise-induced muscle fatigue. Affected individuals may have an unusual walking style (gait) or difficulty running, climbing stairs, or getting up from a squatting position. Some individuals develop contractures. This condition may be caused by genetic changes in the STIM1 or ORAI1 genes. It is usually inherited in an autosomal dominant manner, but autosomal recessive inheritance has also been reported.

      When should I see a Tubular Aggregate Myopathy doctor in Estonia?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Tubular Aggregate Myopathy doctor in Estonia?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Tubular Aggregate Myopathy doctor in Estonia?

      You can find a Tubular Aggregate Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Tubular Aggregate Myopathy doctors in Estonia?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Tubular Aggregate Myopathy doctors in Estonia?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Tubular Aggregate Myopathy doctor in Estonia?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Tubular Aggregate Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Tubular Aggregate Myopathy doctor in Estonia?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Tubular Aggregate Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Tubular Aggregate Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Tubular Aggregate Myopathy doctors in Estonia?

      Look for the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Tubular Aggregate Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Tubular Aggregate Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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