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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Tubular Aggregate Myopathy near Marseille, 93. Of these, 19 are Experienced and 4 are Advanced.

    Location
    LocationClose
    23 providers found
      Advanced in Tubular Aggregate Myopathy
      Advanced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Vincent Jacquemond practices in Lyon, France. Mr. Jacquemond is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Central Core Disease, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in Tubular Aggregate Myopathy
      Advanced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Julien Gondin practices in Lyon, France. Mr. Gondin is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Tubular Aggregate Myopathy
      Advanced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Vincent Gache practices in Lyon, France. Mr. Gache is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Weaver Syndrome.

      Learn about our expert tiers
      Advanced in Tubular Aggregate Myopathy
      Advanced in Tubular Aggregate Myopathy
      Villeurbanne, FR 
       (4.2 km away)

      Candice Kutchukian practices in Villeurbanne, France. Ms. Kutchukian is rated as an Advanced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Central Core Disease.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Bruno Allard practices in Lyon, France. Mr. Allard is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Hypokalemic Periodic Paralysis, Familial Periodic Paralysis, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Colline Sanchez practices in Lyon, France. Ms. Sanchez is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Central Core Disease.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Christine Berthier practices in Lyon, France. Ms. Berthier is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Hypokalemic Periodic Paralysis, Familial Periodic Paralysis, Benign Autosomal Dominant Myopathy, and Tubular Aggregate Myopathy.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Jacques Brocard practices in Lyon, France. Mr. Brocard is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top area of expertise is Tubular Aggregate Myopathy.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Ecole Normale Superieure De Lyon, UMR 5239, Inserm, U1293, Universite Claude Bernard Lyon 1, 46 Allee D'Italie, 
      Lyon, FR 
       (0.8 km away)

      Stephane Janczarski practices in Lyon, France. Ms. Janczarski is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Carole Remy-Kretz practices in Lyon, France. Ms. Remy-Kretz is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Laloe Monteiro practices in Lyon, France. Monteiro is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Emilie Christin practices in Lyon, France. Ms. Christin is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Lyon, FR 
       (0.8 km away)

      Peggy Del Carmine practices in Lyon, France. Ms. Del Carmine is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are High Cholesterol, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Centre De Biologie Et Pathologie Est, CHU De Lyon HCL GH Est, 
      Lyon, FR 
       (1.6 km away)

      Gilles Millat practices in Lyon, France. Mr. Millat is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Long QT Syndrome, and Ventricular Fibrillation.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Hôpital Est, 
      Lyon, FR 
       (3.6 km away)

      Philippe Chevalier practices in Lyon, France. Chevalier is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Ventricular Fibrillation, Wolff-Parkinson-White Syndrome, Cardiomyopathy, Cardiac Ablation, and Heart Transplant.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Groupement Hospitalier Est, 
      Lyon, FR 
       (4.9 km away)

      Nathalie Streichenberger practices in Lyon, France. Ms. Streichenberger is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Myositis, Camptocormism, Primary Lateral Sclerosis, and Creutzfeldt-Jakob Disease.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Groupement Hospitalier Est, 
      Lyon, FR 
       (4.9 km away)

      Francoise Bouhour practices in Lyon, France. Ms. Bouhour is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Pompe Disease, Primary Lateral Sclerosis, Chronic Demyelinizing Neuropathy with IgM Monoclonal, and Camptocormism.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Groupe Hospitalier Est, 
      Lyon, FR 
       (4.9 km away)

      Patrice Bouvagnet practices in Lyon, France. Ms. Bouvagnet is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Heterotaxy Syndrome, Bardet-Biedl Syndrome, Supravalvular Aortic Stenosis, and Heart Block.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy
      Groupement Hospitalier EST, 
      Bron, FR 
       (4.9 km away)

      Veronique Manel practices in Bron, France. Manel is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Chromosome 18p Deletion, Hereditary Hyperekplexia, and Lethal Congenital Contracture Syndrome.

      Experienced in Tubular Aggregate Myopathy
      Experienced in Tubular Aggregate Myopathy

      Hospices Civils De Lyon

      Bron, FR 
       (5.0 km away)

      Carole Vuillerot practices in Bron, France. Ms. Vuillerot is rated as an Experienced expert by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Muscle Atrophy, Cramp-Fasciculation Syndrome, and Gastrostomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Tubular Aggregate Myopathy?

      Tubular aggregate myopathy is a disorder that affects the skeletal muscles. The leg muscles are most often affected, but the arm muscles may also be involved. Symptoms include muscle pain, cramping, weakness or stiffness; and exercise-induced muscle fatigue. Affected individuals may have an unusual walking style (gait) or difficulty running, climbing stairs, or getting up from a squatting position. Some individuals develop contractures. This condition may be caused by genetic changes in the STIM1 or ORAI1 genes. It is usually inherited in an autosomal dominant manner, but autosomal recessive inheritance has also been reported.

      When should I see a Tubular Aggregate Myopathy doctor near Marseille, 93?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Tubular Aggregate Myopathy doctor near Marseille, 93?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Tubular Aggregate Myopathy doctors near Marseille, 93?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Tubular Aggregate Myopathy doctors near Marseille, 93?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Tubular Aggregate Myopathy doctor near Marseille, 93?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Tubular Aggregate Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Tubular Aggregate Myopathy doctor near Marseille, 93?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Tubular Aggregate Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Tubular Aggregate Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Tubular Aggregate Myopathy doctors near Marseille, 93?

      Look for the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Tubular Aggregate Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Tubular Aggregate Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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