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    Last Updated: 10/30/2025

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    MediFind found 22 doctor with experience in Histiocytosis.

    Location
    LocationClose
    22 providers found
      Elite in Histiocytosis
      Elite in Histiocytosis
      Hochheim, TH, DE 

      Eugen Mengel practices in Hochheim, Germany. Mr. Mengel is rated as an Elite expert by MediFind in the treatment of Histiocytosis. His top areas of expertise are Niemann-Pick Disease, Acid Sphingomyelinase Deficiency (ASMD), Non-Langerhans-Cell Histiocytosis, and Reticulohistiocytoma.

      Elite in Histiocytosis
      Elite in Histiocytosis
      Iss, 
      Zaragoza, AR, ES 

      Pilar Giraldo practices in Zaragoza, Spain. Giraldo is rated as an Elite expert by MediFind in the treatment of Histiocytosis. Their top areas of expertise are Gaucher Disease Type 1, Gaucher Disease, Farber Lipogranulomatosis, Fabry Disease, and Splenectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Histiocytosis
      Elite in Histiocytosis
      Mansfield Road, 
      Oxford, ENG, GB 

      Frances Platt practices in Oxford, United Kingdom. Ms. Platt is rated as an Elite expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Niemann-Pick Disease, Sandhoff Disease, Non-Langerhans-Cell Histiocytosis, and Reticulohistiocytoma.

      Learn about our expert tiers
      Elite in Histiocytosis
      Elite in Histiocytosis
      Milan, IT 

      Rossella Parini practices in Milan, Italy. Ms. Parini is rated as an Elite expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Brachydactyly Mononen Type, and Bone Marrow Transplant.

      Elite in Histiocytosis
      Elite in Histiocytosis
      Warsaw, MZ, PL 

      Anna Szymanska-Tylki practices in Warsaw, Poland. Ms. Szymanska-Tylki is rated as an Elite expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Gaucher Disease, Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Gaucher Disease Type 1, and Liver Transplant.

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      Mainz, RP, DE 

      Julia Hennermann practices in Mainz, Germany. Ms. Hennermann is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Gaucher Disease Type 3, Alpha Mannosidosis, Fabry Disease, and Phenylketonuria (PKU).

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      Bern, BE, CH 

      Matthias Gautschi practices in Bern, Switzerland. Mr. Gautschi is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. His top areas of expertise are Classic Galactosemia, Galactokinase Deficiency, Galactose Epimerase Deficiency, and Galactosemia.

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      Via S. Pansini 5, 
      Naples, IT 

      Giancarlo Parenti practices in Naples, Italy. Mr. Parenti is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. His top areas of expertise are Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Pompe Disease, Von Gierke Disease, Mucopolysaccharidoses (MPS), and Hormone Replacement Therapy (HRT).

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      Paris, FR 

      Benedicte Heron-Longe practices in Paris, France. Ms. Heron-Longe is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Niemann-Pick Disease, Mucopolysaccharidoses (MPS), and Non-Langerhans-Cell Histiocytosis.

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      Udine, IT 

      Bruno Bembi practices in Udine, Italy. Mr. Bembi is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. His top areas of expertise are Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Acid Sphingomyelinase Deficiency (ASMD), and Gaucher Disease.

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Stephanie Grunewald practices in London, United Kingdom. Ms. Grunewald is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Propionic Acidemia, SRD5A3-CDG, Urea Cycle Disorders (UCD), Liver Transplant, and Gastrostomy.

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      Rome, IT 

      Federica Deodato practices in Rome, Italy. Ms. Deodato is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Niemann-Pick Disease, Acid Sphingomyelinase Deficiency (ASMD), Non-Langerhans-Cell Histiocytosis, and Histiocytosis.

      Distinguished in Histiocytosis
      Distinguished in Histiocytosis
      Montpellier, FR 

      Agathe Roubertie practices in Montpellier, France. Ms. Roubertie is rated as a Distinguished expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Chorea, Drug Induced Dyskinesia, West Syndrome, Aicardi-Goutieres Syndrome, and Deep Brain Stimulation.

      Advanced in Histiocytosis
      Advanced in Histiocytosis
      Steelhouse Lane, 
      Birmingham, ENG, GB 

      Saikat Santra practices in Birmingham, United Kingdom. Santra is rated as an Advanced expert by MediFind in the treatment of Histiocytosis. Their top areas of expertise are Argininosuccinic Aciduria, Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Liver Transplant, and Gastrostomy.

      Advanced in Histiocytosis
      Advanced in Histiocytosis
      Dr. Von Haunersches Kinderspital, 
      Munich, BY, DE 

      Esther Maier practices in Munich, Germany. Ms. Maier is rated as an Advanced expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Glutaric Acidemia Type 1, Isovaleric Acidemia, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, and Mitochondrial Trifunctional Protein Deficiency.

      Advanced in Histiocytosis
      Advanced in Histiocytosis
      Copenhagen, DK 

      Christine Dali practices in Copenhagen, Denmark. Ms. Dali is rated as an Advanced expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Alpha Mannosidosis, Metachromatic Leukodystrophy, Leukodystrophy, and Spinocerebellar Ataxia Type 11.

      Advanced in Histiocytosis
      Advanced in Histiocytosis
      Milan, IT 

      Anna Ardissone practices in Milan, Italy. Ms. Ardissone is rated as an Advanced expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Leigh Syndrome, MELAS Syndrome, CACH Syndrome, and Mitochondrial Complex V Deficiency.

      Advanced in Histiocytosis
      Advanced in Histiocytosis
      Copenhagen, DK 

      Sabine Gronborg practices in Copenhagen, Denmark. Ms. Gronborg is rated as an Advanced expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Niemann-Pick Disease, and Non-Langerhans-Cell Histiocytosis.

      Advanced in Histiocytosis
      Advanced in Histiocytosis
      Barcelona, CT, ES 

      Mireia Del Toro-Riera practices in Barcelona, Spain. Ms. Del Toro-Riera is rated as an Advanced expert by MediFind in the treatment of Histiocytosis. Her top areas of expertise are Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), Niemann-Pick Disease, Propionic Acidemia, and Non-Langerhans-Cell Histiocytosis.

      Advanced in Histiocytosis
      Advanced in Histiocytosis
      Copenhagen, DK 

      Thomas Kirkegaard practices in Copenhagen, Denmark. Mr. Kirkegaard is rated as an Advanced expert by MediFind in the treatment of Histiocytosis. His top areas of expertise are Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Showing 1-20 of 22

      Last Updated: 10/30/2025

      What is the definition of Histiocytosis?

      Histiocytosis is a general name for a group of disorders or "syndromes" that involve an abnormal increase in the number of specialized white blood cells that are called histiocytes.

      Recently, new knowledge about this family of diseases has led experts to develop a new classification. Five categories have been proposed:

      • L group -- includes Langerhans cell histiocytosis and Erdheim-Chester disease
      • C group -- includes non-Langerhans cell histiocytosis that involves the skin
      • M group -- includes malignant histiocytosis
      • R group -- includes Rosai-Dorfman disease
      • H Group -- includes hemophagocytic lymphohistiocytosis

      This article focuses only on the L group, which includes Langerhans cell histiocytosis and Erdheim-Chester disease.

      When should I see a Histiocytosis doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Histiocytosis doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Histiocytosis doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Histiocytosis doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Histiocytosis doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Histiocytosis doctor search results page. 

      Why is it important to get a second opinion from a different Histiocytosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Histiocytosis doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Histiocytosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Histiocytosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Histiocytosis doctors near me?

      Look for the filter feature on the left side of the Histiocytosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Histiocytosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Histiocytosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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