Peter Byers is a Medical Genetics provider in Seattle, Washington. Dr. Byers is rated as an Elite provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and Hypotonia. Dr. Byers is currently accepting new patients.

Sherene Shalhub is a Vascular Surgeon in Portland, Oregon. Dr. Shalhub is rated as an Elite provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Thoracic Aortic Aneurysm, Aortic Dissection, Ehlers-Danlos Syndrome (EDS), and Angioplasty. Dr. Shalhub is currently accepting new patients.

Jennifer Lamps is a primary care provider, practicing in Family Medicine in West Salem, Wisconsin. Dr. Lamps is rated as a Distinguished provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). Her top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

Rex Dancel is a primary care provider, practicing in Family Medicine in Chapel Hill, North Carolina. Dr. Dancel is rated as an Experienced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Chronic Cough, Vertigo, Familial Dysautonomia, and Glucocorticoid-Remediable Aldosteronism. Dr. Dancel is currently accepting new patients.

Shaine Morris is a Pediatrics provider in Houston,, Texas. Dr. Morris is rated as a Distinguished provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). Her top areas of expertise are Arterial Tortuosity Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Marfan Syndrome, Heart Transplant, and Septoplasty.

Douglas Ball is a Medical Genetics provider in Layton, Utah. Dr. Ball has been practicing medicine for over 31 years and is rated as a Distinguished provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Ball is currently accepting new patients.

Peter Rossi is a Vascular Surgeon and a General Surgeon in Germantown, Wisconsin. Dr. Rossi is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Abdominal Aortic Aneurysm (AAA), Arterial Insufficiency, Peripheral Artery Disease, Carotid Artery Surgery, and Gastrostomy. Dr. Rossi is currently accepting new patients.

. Dr. Colyar is rated as an Experienced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are High Cholesterol, Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

Joseph Hart is a General Surgeon and an Interventional Radiologist in Milwaukee, Wisconsin. Dr. Hart is rated as an Experienced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Peripheral Artery Disease, Arterial Insufficiency, Abdominal Aortic Aneurysm (AAA), Thrombectomy, and Carotid Artery Surgery. Dr. Hart is currently accepting new patients.

Natalia Mahlay is a Vascular Surgeon in Cleveland, Ohio. Dr. Mahlay is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). Her top areas of expertise are Carotid Artery Disease, Arterial Embolism, Peripheral Artery Disease, and Arterial Insufficiency.

James Black is a Vascular Surgeon in Baltimore, Maryland. Dr. Black is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Aortic Dissection, Carotid Artery Surgery, and Hernia Surgery.

Mark Lavallee, MD, is a sports medicine physician with Sports Medicine of Central PA-UPMC and is certified in family medicine and sports medicine by the American Board of Family Medicine. He received his medical degree from the Pennsylvania State University College of Medicine and completed his family medicine residency at York Hospital, followed by his primary care sports medicine fellowship at Crozer-Keystone Health System. Dr. Lavallee is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Tenotomy.

Dr. Peter Rowe is a Professor of Pediatrics at the Johns Hopkins University School of Medicine. He is the inaugural Sunshine Natural Wellbeing Foundation Professor of Chronic Fatigue and Related Disorders and serves as the Director of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Related Disorders Program at Johns Hopkins Children’s Center. His areas of clinical expertise include chronic fatigue syndrome and other disorders characterized by fatigue and orthostatic intolerance. Dr. Rowe and his colleagues were the first to describe the relationship between myalgic ecephalomyelitis/chronic fatigue syndrome (ME/CFS) and treatable orthostatic intolerance syndromes, as well as the association between Ehlers-Danlos syndrome and ME/CFS. After receiving his undergraduate degree from the University of Toronto, Dr. Rowe earned his medical degree at McMaster University Medical School in Ontario. He completed his residency in pediatrics at Johns Hopkins and completed his fellowship in General Pediatric Academic Development. He was on the staff at the Children's Hospital of Eastern Ontario from 1987-1991 before returning to Johns Hopkins in 1991. Dr. Rowe’s research focuses on the physiologic factors (circulatory dysregulation, allergic disorders, joint laxity, biomechanical strain, and neuroanatomic problems) that contribute to chronic fatigue as asymptom, and to ME/CFS and long COVID as conditions. In 2014, Dr. Rowe received the research award from the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) for his clinical and scientific work on chronic fatigue syndrome and related disorders. He is a member of the research advisory council for Solve ME/CFS. He is also a member of the American Pediatric Society, the Society for Pediatric Research, the Canadian Pediatric Society, and the American Academy of Pediatrics. Dr. Rowe is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Pelvic Congestion Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS).

Bruce Gelb is a Pediatric Cardiologist in New York, New York. Dr. Gelb is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.

Dr. William J. Ravekes is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. A pediatric cardiologist, Dr. Ravekes serves as medical director of the Pediatric Heart Transplant and Mechanical Circulatory Support Program as well as pediatric cardiology fellowship director. He also specializes in non-invasive imaging, fetal echocardiography and the perioperative and intensive care of fetuses, infants, children and adults with congenital heart disease. Dr. Ravekes earned his medical degree at the George Washington University School of Medicine. He completed a pediatrics residency and chief residency at Lucile Salter Packard Children's Hospital at Stanford and a fellowship in pediatric cardiology at Boston Children’s Hospital. He served on the faculty of Texas Children’s Hospital prior to joining Johns Hopkins. His research interests include echocardiographic assessment of cardiac function, aortopathies, heart failure and transplantation, and medical education. He has published more than 90 scholarly articles. Dr. Ravekes is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Pediatric Myocarditis, Ehlers-Danlos Syndrome (EDS), and Pulmonary Hypertension.

Meghann Mccarthy is a Vascular Surgeon in Beachwood, Ohio. Dr. Mccarthy has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). Her top areas of expertise are Fibromuscular Dysplasia (FMD), Arterial Embolism, Carotid Artery Disease, and Arterial Insufficiency.

Jefferson Doyle, M.D., Ph.D., M.H.S. specializes in pediatric ophthalmology and genetic eye diseases and is the recipient of the 2023 Andreas C. Dracopoulos & Daniel Finkelstein, M.D. Rising Professorship in Ophthalmology. His main focus is pediatric and juvenile forms of cataracts, glaucoma, anterior segment dysgenesis, and ectopia lentis. His genetics interests include Marfan syndrome and related connective tissue disorders, complex inherited forms of strabismus in both children and adults (e.g. CFEOM, Duane syndrome), and pediatric retinal dystrophies. Dr. Doyle has published extensively on a number of genetic disorders over the past decade, holds several patents for novel therapeutic approaches to treat them, and has given many national and international talks about them. Dr. Doyle's main research focus is understanding the genetic causes and molecular mechanisms driving genetic diseases, and utilizing that knowledge to develop new therapeutic strategies for them. Over the past decade, he has played a significant role in advancing our understanding of Marfan syndrome and related connective tissue disorders. His work and that of collaborators has led to the discovery of the genetic causes of Shprintzen-Goldberg syndrome and Loeys-Dietz like syndrome. His work has also led to a much better understanding of the molecular mechanisms driving Marfan syndrome, and he holds two patents for novel therapeutic strategies to treat it. Part of his current work focuses on the identification of genes that protect people from developing a number of genetic disorders, and leveraging that knowledge to develop new therapies for those diseases. He also has an interest in pediatric myopia, and has ongoing pre-clinical studies seeking to understand the mechanisms that may drive it and the development of novel therapeutic strategies to treat it. Recent News Articles and Media Coverage A Center for Genetic Eye Disease, Wilmer Insider (Oct. 2021). Dr. Doyle is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Duane-Radial Ray Syndrome, Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), and Strabismus.

Joseph Gallagher is a primary care provider, practicing in Family Medicine in Sewell, New Jersey. Dr. Gallagher is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Maturity Onset Diabetes of the Young, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Gallagher is currently accepting new patients.

Dmitriy Niyazov is a Medical Genetics provider in Durham, North Carolina. Dr. Niyazov is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Early Infantile Epileptic Encephalopathy, Macroglossia, Ehlers-Danlos Syndrome (EDS), and Microcephaly.

Dr. Cynthia Boyd is Professor of Medicine at the Johns Hopkins University School of Medicine. Dr. Boyd is the Director, Division of Geriatric Medicine and Gerontology. She holds a joint appointment in Health Policy and Management and Epidemiology at the Johns Hopkins Bloomberg School of Public Health. Dr. Boyd is a core faculty member at the Center for Transformative Geriatric Research, Johns Hopkins Center on Aging and Health and the Roger and Flo Lipitz Center to Advance Policy in Aging and Disability. A former Robert Wood Johnson Physician Faculty Scholar and a Beeson Scholar, Dr. Boyd is trained in internal medicine, geriatric medicine and epidemiology. Dr. Boyd’s career has focused on improving the health and well-being of older adults with multiple chronic conditions, with robust research and mentoring programs that have helped launch the careers of multiple junior faculties, fellows, medical students and other learners. She earned her M.D. from the Duke University School of Medicine and her M.P.H. from the University of North Carolina at Chapel Hill. She completed her residency at Johns Hopkins Hospital and performed a fellowship in geriatric medicine at Johns Hopkins Bayview Medical Center. Dr. Boyd has been recognized with several honors, including the American Geriatric Society’s Outstanding Scientific Achievement for Clinical Investigation Award, election to the American Society for Clinical Investigation, and Fellowship in the American College of Physicians and the American Geriatric Society. Her research has been funded by the NIH, AHRQ, PCORI, and foundations. Dr. Boyd is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). Her top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Ehlers-Danlos Syndrome (EDS).