The 20 Best Wildervanck Syndrome Doctors Near Me in Portland, OR

Find the Top Wildervanck Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 20 doctor with experience in Wildervanck Syndrome near Portland, OR. Of these, 17 are Experienced and 3 are Advanced.

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20 providers found
    Advanced in Wildervanck Syndrome
    Ophthalmology
    Advanced in Wildervanck Syndrome
    Ophthalmology
    Referral may be required

    Office

    545 SW Campus Dr, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Paul Yang is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses X-Linked Retinitis Pigmentosa (XLRP), Retinitis Pigmentosa, Usher Syndrome Type 2A, and Cone Rod Dystrophy Amelogenesis Imperfecta. Dr. Yang is currently accepting new patients.

    Advanced in Wildervanck Syndrome
    Ophthalmology
    Advanced in Wildervanck Syndrome
    Ophthalmology
    Referral may be required

    Casey Eye Physicians And Surgeons LLC

    3375 SW Terwilliger Blvd, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Mark Pennesi is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Pennesi is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Usher Syndrome, Late-Onset Retinal Degeneration, and Vitrectomy. Dr. Pennesi is currently accepting new patients.

    Advanced in Wildervanck Syndrome
    Pediatric Orthopedics
    Advanced in Wildervanck Syndrome
    Pediatric Orthopedics
    Referral may be required

    Shriners Hospitals For Children-Portland

    3101 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Michelle Welborn is a Pediatric Orthopedics provider practicing medicine in Portland, Oregon. Dr. Welborn is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Collins Pope Syndrome, PIK3CA-Related Overgrowth Spectrum, CHARGE Syndrome, Osteotomy, and Spinal Fusion. Dr. Welborn is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome
    Referral may be required

    Randall Children's Genetics & Metabolism

    501 N Graham St Ste 330B Office, 
    Portland, OR 
    Languages Spoken:
    English, Greek
    Accepting New Patients
    Offers Telehealth

    George Anadiotis is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Anadiotis is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His clinical expertise encompasses Autism Spectrum Disorder, Pompe Disease, Koolen De Vries Syndrome, and Wildervanck Syndrome. Dr. Anadiotis is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Pediatric Orthopedics
    Experienced in Wildervanck Syndrome
    Pediatric Orthopedics
    Referral may be required

    Shriners Hospitals For Children-Portland

    3101 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Robert Bernstein is a Pediatric Orthopedics provider practicing medicine in Portland, Oregon. Dr. Bernstein is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Greenberg Dysplasia, Kyphomelic Dysplasia, Opsismodysplasia, and Cartilage-Hair Hypoplasia. Dr. Bernstein is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Orthopedics | Pediatric Orthopedics
    Experienced in Wildervanck Syndrome
    Orthopedics | Pediatric Orthopedics
    Referral may be required
    9135 Southwest Barnes Road, Suite 763, 
    Portland, OR 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Heather Kong is an Orthopedics specialist and a Pediatric Orthopedics provider practicing medicine in Portland, Oregon. Dr. Kong is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Clubfoot, Beukes Familial Hip Dysplasia, Knock Knees, and Meningococcemia. Dr. Kong is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Medical Genetics
    Experienced in Wildervanck Syndrome
    Medical Genetics
    Referral may be required

    Legacy Good Samaritan Hospital And Medical Center

    1040 Nw 22nd Ave, Suite 30, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dana Simpson is a Medical Genetics provider practicing medicine in Portland, Oregon. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Incontinentia Pigmenti, Increased Head Circumference, Miller-Dieker Syndrome, and Smith-Magenis Syndrome. Dr. Simpson is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Orthopedics
    Experienced in Wildervanck Syndrome
    Orthopedics
    Referral may be required

    Shriners Hospitals For Children-Portland

    3101 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Ellen Raney is an Orthopedics provider practicing medicine in Portland, Oregon. Dr. Raney is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, Clubfoot, Spastic Diplegia Infantile Type, and Osteotomy. Dr. Raney is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Orthopedics | Pediatric Orthopedics
    Experienced in Wildervanck Syndrome
    Orthopedics | Pediatric Orthopedics
    Referral may be required
    9135 Southwest Barnes Road, Suite 763, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Ahmad Bayomy is an Orthopedics specialist and a Pediatric Orthopedics provider practicing medicine in Portland, Oregon. Dr. Bayomy is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Knock Knees, Osgood-Schlatter Disease, Osteochondritis Dissecans, and Beukes Familial Hip Dysplasia. Dr. Bayomy is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome
    Referral may be required

    Office

    7213 SW Hazel Fern Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Heather Moore is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Moore is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her clinical expertise encompasses Croup, Developmental Dysphasia Familial, Delayed Growth, and Early Infantile Epileptic Encephalopathy. Dr. Moore is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Developmental and Behavioral Pediatrics | Pediatrics
    Experienced in Wildervanck Syndrome
    Developmental and Behavioral Pediatrics | Pediatrics
    Referral may be required

    University Professional Services

    901 E 18th Ave, 
    Eugene, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Mario Petersen is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider practicing medicine in Eugene, Oregon. Dr. Petersen is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His clinical expertise encompasses Cardiofaciocutaneous Syndrome, Microcephaly, RASopathies, and Delayed Growth. Dr. Petersen is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome
    Referral may be required

    Randall Children's Orthopedics

    450 N Graham St, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Rebecca Clinton is an Orthopedics provider practicing medicine in Portland, Oregon. Dr. Clinton is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Clubfoot, Claw Foot, Beukes Familial Hip Dysplasia, and Macrodactyly of the Foot. Dr. Clinton is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome
    Referral may be required

    Childhood Health Associates Of Salem

    891 23rd St NE, 
    Salem, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Jenny Hoelter is a Pediatrics provider practicing medicine in Salem, Oregon. Dr. Hoelter is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her clinical expertise encompasses Spondyloepimetaphyseal Dysplasia Joint Laxity, Otospondylomegaepiphyseal Dysplasia, Spondyloepiphyseal Dysplasia Congenita, and X-Linked Spondyloepiphyseal Dysplasia Tarda. Dr. Hoelter is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome
    Referral may be required

    Oregon Pediatrics

    8645 SE Sunnybrook Blvd Ste 200, 
    Clackamas, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Amanda Ankeny is a Pediatrics provider practicing medicine in Clackamas, Oregon. Dr. Ankeny is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her clinical expertise encompasses Autism Spectrum Disorder, Developmental Dysphasia Familial, Delayed Growth, and Microcephaly. Dr. Ankeny is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome
    Referral may be required

    Childhood Health Associates Of Salem

    891 23rd St NE, 
    Salem, OR 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Kimberly Heggen is a Pediatrics provider practicing medicine in Salem, Oregon. Dr. Heggen is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her clinical expertise encompasses Herpangina, Delayed Growth, Autism Spectrum Disorder, and Developmental Dysphasia Familial. Dr. Heggen is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Family Medicine
    Experienced in Wildervanck Syndrome
    Family Medicine

    Samaritan Health Clinic-Sweet Home

    1289 49th Ave, 
    Sweet Home, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Tessa Reff is a primary care provider, practicing in Family Medicine in Sweet Home, Oregon. Dr. Reff is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her clinical expertise encompasses Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Post-Traumatic Stress Disorder (PTSD). Dr. Reff is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Samaritan Medical Group Family Medicine-26th Street

    850 SW 26th St, 
    Corvallis, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Jenny Stegeman-Olsen is a primary care provider, practicing in Family Medicine in Corvallis, Oregon. Dr. Stegeman-Olsen is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Cirrhosis, and Familial Combined Hyperlipidemia. Dr. Stegeman-Olsen is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Cardiology | Pediatrics
    Experienced in Wildervanck Syndrome
    Cardiology | Pediatrics
    Referral may be required
    9427 Southwest Barnes Road, Suite 598, 
    Portland, OR 
    Languages Spoken:
    English, French, Spanish
    Accepting New Patients
    Offers Telehealth

    Marc Legras is a Cardiologist and a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Ophthalmology
    Experienced in Wildervanck Syndrome
    Ophthalmology
    Referral may be required

    Office

    545 SW Campus Dr, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Lesley Everett is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Everett is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Retinitis Pigmentosa, Late-Onset Retinal Degeneration, X-Linked Retinitis Pigmentosa (XLRP), and Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency. Dr. Everett is currently accepting new patients.

    Experienced in Wildervanck Syndrome
    Medical Genetics | Pediatrics
    Experienced in Wildervanck Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    University Professional Services

    3181 Sw Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Wojciech Wiszniewski is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Wiszniewski is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Microcephaly, Achalasia Microcephaly Syndrome, Focal or Multifocal Malformations in Neuronal Migration, and Cortical Dysplasia. Dr. Wiszniewski is currently accepting new patients.

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    Last Updated: 09/26/2026

    What is the definition of Wildervanck Syndrome?

    Wildervanck syndrome is a condition that affects the bones in the neck, the eyes, and the ears. It is characterized by Klippel-Feil anomaly (in which the bones of the neck fuse together), Duane syndrome (an eye movement disorder), and hearing loss. Wildervanck syndrome occurs primarily in females. In most cases, Wildervanck syndrome occurs randomly for unknown reasons in a family with no prior history (sporadically), though a deletion on the X chromosome was identified in one individual with Wildervanck syndrome. X-linked dominant inheritance has been suggested due to the high prevalence of affected females.

    When should I see a Wildervanck Syndrome doctor near Portland, OR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Wildervanck Syndrome doctor near Portland, OR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Wildervanck Syndrome doctors near Portland, OR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Wildervanck Syndrome doctors near Portland, OR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Wildervanck Syndrome doctor near Portland, OR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wildervanck Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Wildervanck Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Wildervanck Syndrome doctor near Portland, OR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Wildervanck Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Wildervanck Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Wildervanck Syndrome doctors near Portland, OR?

    Look for the filter feature on the left side of the Wildervanck Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Wildervanck Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Wildervanck Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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