The 20 Best Wolfram Syndrome Doctors in Netherlands

Find the Top Wolfram Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 16 doctor with experience in Wolfram Syndrome near Netherlands. Of these, 16 are Experienced.

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16 providers found
    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Leiden, ZH, NL 

    Camiel Boon practices practicing medicine in Leiden, Netherlands. Mr. Boon is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Central Serous Chorioretinopathy, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and Vitrectomy.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Nijmegen, GE, NL 

    Lonneke Wigman-Haer practices practicing medicine in Nijmegen, Netherlands. Wigman-Haer is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Hearing Loss.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Utrecht, UT, NL 

    Maria Van Genderen practices practicing medicine in Utrecht, Netherlands. Ms. Van Genderen is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Ocular Albinism, Late-Onset Retinal Degeneration, Albinism, and X-Linked Congenital Stationary Night Blindness.

    Learn about our expert tiers
    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Utrecht, UT, NL 

    Marleen Simon practices practicing medicine in Utrecht, Netherlands. Ms. Simon is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Spondylocarpotarsal Synostosis Syndrome, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Acrodysostosis.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Rotterdam, ZH, NL 

    Marieke Van Dooren practices practicing medicine in Rotterdam, Netherlands. Ms. Van Dooren is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acrofacial Dysostosis Nager Type, Craniosynostosis, Acrofacial Dysostosis Catania Type, Chromosome 18p Deletion, and Hepato-Pancreato-Biliary Surgery.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Naarden, NH, NL 

    Michal Geva practices practicing medicine in Naarden, Netherlands. Geva is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Huntington Disease, Movement Disorders, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Dementia.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Nijmegen, GE, NL 

    Antonius Mylanus practices practicing medicine in Nijmegen, Netherlands. Mylanus is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Hearing Loss, Wolfram Syndrome, Familial Otosclerosis, and Otosclerosis.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Leiden, ZH, NL 

    Irene Notting practices practicing medicine in Leiden, Netherlands. Ms. Notting is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Progressive External Ophthalmoplegia, Hypothalamic Tumor, Brown Syndrome, and Graves Disease.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Nijmegen, GE, NL 

    Ronald Pennings practices practicing medicine in Nijmegen, Netherlands. Mr. Pennings is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Usher Syndrome Type 2A, Usher Syndrome, and Retinitis Pigmentosa.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Amsterdam, NH, NL 

    Arthur Bergen practices practicing medicine in Amsterdam, Netherlands. Mr. Bergen is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Gyrate Atrophy of the Choroid and Retina, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and Retinopathy Pigmentary Mental Retardation.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Erasmus MC

    Rotterdam, ZH, NL 

    Elisa Proietti practices practicing medicine in Rotterdam, Netherlands. Ms. Proietti is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. Her clinical expertise encompasses Viral Gastroenteritis, Crohn's Disease, Wolfram Syndrome, and Diabetes Insipidus (DI).

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Nijmegen, GE, NL 

    Wendy Huinck practices practicing medicine in Nijmegen, Netherlands. Ms. Huinck is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Hearing Loss, Retinopathy Pigmentary Mental Retardation, Usher Syndrome, and Tinnitus.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Erasmus MC

    Rotterdam, ZH, NL 

    Pam Heutinck practices practicing medicine in Rotterdam, Netherlands. Ms. Heutinck is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cone Dystrophy, Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, and Blue Cone Monochromatism.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome
    Nijmegen, GE, NL 

    Cris Lanting practices practicing medicine in Nijmegen, Netherlands. Lanting is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Hearing Loss, Retinopathy Pigmentary Mental Retardation, Tinnitus, and Usher Syndrome.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Erasmus MC

    Rotterdam, ZH, NL 

    Anneke Kievit practices practicing medicine in Rotterdam, Netherlands. Ms. Kievit is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Blepharocheilodontic Syndrome, Fryns Syndrome, Ectropion, and Movement Disorders.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Erasmus MC

    Rotterdam, ZH, NL 

    Virginie Verhoeven practices practicing medicine in Rotterdam, Netherlands. Ms. Verhoeven is rated as an Experienced expert by MediFind in the treatment of Wolfram Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Nearsightedness, Retinopathy Pigmentary Mental Retardation, Donnai-Barrow Syndrome, and Late-Onset Retinal Degeneration.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-16 of 16

    Last Updated: 04/28/2026

    What is the definition of Wolfram Syndrome?

    Wolfram syndrome is a condition that affects many of the body's systems. The hallmark features of Wolfram syndrome are high blood sugar (glucose) levels resulting from a shortage of the hormone insulin (a condition called diabetes mellitus) and progressive vision loss due to degeneration of the nerves that carry information from the eyes to the brain (a condition called optic atrophy). People with Wolfram syndrome often also have pituitary gland dysfunction that results in excess urine production (a condition called diabetes insipidus), hearing loss caused by changes in the inner ear (sensorineural deafness), urinary tract problems, reduced amounts of the sex hormone testosterone in males (hypogonadism), or neurological or psychiatric disorders.

    When should I see a Wolfram Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Wolfram Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Wolfram Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Wolfram Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Wolfram Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wolfram Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Wolfram Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Wolfram Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Wolfram Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Wolfram Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Wolfram Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the Wolfram Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Wolfram Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Wolfram Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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