The 20 Best Wolfram Syndrome Doctors Near Me in Boston, MA

Find the Top Wolfram Syndrome Experts and Specialists

The 20 Best Wolfram Syndrome Doctors near Boston, MA

Last Updated: 02/22/2026

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MediFind found 14 doctor with experience in Wolfram Syndrome near Boston, MA. Of these, 14 are Experienced.

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14 providers found
    Timothy R. Smith
    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Timothy Smith is a neurosurgeon-scientist who seeks to understand, predict, and improve clinical outcomes for neurosurgical patients by combining the use of epidemiological data, advanced statistical analysis, machine learning, and emerging biological/information system technologies. Trained as an epidemiologist and statistician in addition to his neurosurgical residency, he focuses primarily on the utilization of data science to optimize neurosurgical patient care.Dr. Smith’s clinical interests focus on tumors of the brain and spine that arise innately from the central nervous system and the meningeal covering of the brain, or metastasize from other primary cancer sites. Dr. Smith is the Director of the Computational Neuroscience Outcomes Center (CNOC) in the Department of Neurosurgery at Brigham and Women’s Hospital. This center strives to collect and maintain prospective data on all neurosurgical patients cared for by the department, synthesize high volume data streams, as well as implement process and outcome improvement through comparison with national data.Dr. Smith is committed to the education of future neurosurgeons and plays an active role in the Brigham and Women’s Hospital’s neurosurgical residency program. He is a committee vice-chair for Medical-Legal Issues with the Council of State Neurosurgical Societies (CSNS) as well as the President of the Boston Society for Neurology, Neurosurgery, and Psychiatry, the oldest academic neuroscience society in the United States. He serves on numerous committees both in the US and worldwide which focus on the ethics of neurosurgery, oncology, skull base surgery, and neurologic outcomes assessment. He is an active member of committees at Brigham and Women’s Hospital addressing information technology, physician wellness, and process improvement.Dr. Smith maintains active membership in both national and international neurosurgical societies, including the American Association of Neurological Surgeons, the Congress of Neurological Surgeons, the North American Skull Base Society, the Society for Neuro-Oncology, and the Pituitary Society. He presents his research regularly at national and international meetings. He has published over 150 peer-reviewed journal articles and several book chapters. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Pituitary Tumor, Meningioma, Brain Tumor, Awake Craniotomy, and Laminectomy.

    Experienced in Wolfram Syndrome
    Neurosurgery
    Experienced in Wolfram Syndrome
    Neurosurgery

    Tufts Medical Center Neely Neurosurgery

    800 Washington St Bldg 7TH Fl 7, 
    Boston, MA 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Carl Heilman is a Neurosurgery provider in Boston, Massachusetts. Dr. Heilman is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Meningioma, Hydrocephalus, Acoustic Neuroma, Endoscopic Transnasal Transsphenoidal Surgery, and Mastoidectomy. Dr. Heilman is currently accepting new patients.

    Experienced in Wolfram Syndrome
    Neurosurgery
    Experienced in Wolfram Syndrome
    Neurosurgery

    Tufts Medical Center Neely Neurosurgery

    800 Washington St Bldg 7TH Fl 7, 
    Boston, MA 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marie Roguski is a Neurosurgery provider in Boston, Massachusetts. Dr. Roguski is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Dandy-Walker Syndrome, Subdural Hematoma, Glioma, Endoscopic Transnasal Transsphenoidal Surgery, and Awake Craniotomy. Dr. Roguski is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Isabel Arrillaga is a Neurologist in Boston, Massachusetts. Dr. Arrillaga is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Astrocytoma, Gliosarcoma, Glioblastoma, and Embryonal Tumor with Multilayered Rosettes.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Bruce Kastin is a Neurologist in Boston, Massachusetts. Dr. Kastin is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Memory Loss, Migraine, Dementia, and Seizures.

    Experienced in Wolfram Syndrome
    Pain Medicine
    Experienced in Wolfram Syndrome
    Pain Medicine

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    David Chen is a Pain Medicine provider in Boston, Massachusetts. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Migraine, Corticobasal Degeneration, Migraine with Brainstem Aura, and Neuralgia.

    Experienced in Wolfram Syndrome
    Neurosurgery
    Experienced in Wolfram Syndrome
    Neurosurgery

    Department Of Neurosurgery

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Pokmeng See is a Neurosurgery provider in Boston, Massachusetts. Dr. See is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Arteriovenous Malformation, Wyburn-Mason Syndrome, Vein of Galen Aneurysm, and Moyamoya Disease.

    Experienced in Wolfram Syndrome
    Pediatric Neurology
    Experienced in Wolfram Syndrome
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Viviana Benitez is a Pediatric Neurologist in Boston, Massachusetts. Dr. Benitez is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Diffuse Midline Glioma H3 K27M-Mutant, and Optic Glioma.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Brigham And Women's Hospital

    75 Francis St, 
    Boston, MA 
     (2.9 miles away)
    Languages Spoken:
    English

    Mam Ibraheem is a Neurologist in Boston, Massachusetts. Dr. Ibraheem is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Opsoclonus-Myoclonus Syndrome, Migraine, Stroke, and Generalized Tonic-Clonic Seizure.

    Experienced in Wolfram Syndrome
    General Surgery
    Experienced in Wolfram Syndrome
    General Surgery

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
     (2.9 miles away)
    Languages Spoken:
    English

    Lissa Baird is a General Surgeon in Boston, Massachusetts. Dr. Baird is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Hydrocephalus, Craniopharyngioma, Chiari Malformation, Posterior Fossa Decompression, and Craniectomy.

    Experienced in Wolfram Syndrome
    General Surgery
    Experienced in Wolfram Syndrome
    General Surgery

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
     (2.9 miles away)
    Languages Spoken:
    English

    Katie Pricola is a General Surgeon in Boston, Massachusetts. Dr. Pricola is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Choroid Plexus Papilloma, Hydrocephalus, Stroke, Cordotomy, and Awake Craniotomy.

    Experienced in Wolfram Syndrome
    Endocrinology
    Experienced in Wolfram Syndrome
    Endocrinology

    Brigham And Women's Faulkner Hospital, Sleep Medicine And Endocrinology Center

    1153 Centre Street, Suite 5K, 
    Jamaica Plain, MA 
     (5.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Zeb Saeed is an Endocrinologist in Jamaica Plain, Massachusetts. Dr. Saeed is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Panhypopituitarism, Type 2 Diabetes (T2D), and Paget's Disease of Bone.

    Experienced in Wolfram Syndrome
    Experienced in Wolfram Syndrome

    Brigham & Women's Hospital

    850 Boylston St, 
    Chestnut Hill, MA 
     (5.2 miles away)
    Languages Spoken:
    English

    Patricia Olson is a Neurologist in Chestnut Hill, Massachusetts. Dr. Olson is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Migraine, Migraine with Brainstem Aura, Pseudotumor Cerebri Syndrome, and Increased Intracranial Pressure.

    Experienced in Wolfram Syndrome
    Endocrinology
    Experienced in Wolfram Syndrome
    Endocrinology

    Office

    104 Endicott St Ste 104, 
    Danvers, MA 
     (14.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Ricciuto is an Endocrinologist in Danvers, Massachusetts. Dr. Ricciuto is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Parathyroid Hyperplasia, Osteitis Fibrosa, Neonatal Severe Hyperparathyroidism, and Familial Isolated Hyperparathyroidism.

    Showing 1-14 of 14

    Last Updated: 02/22/2026

    What is the definition of Wolfram Syndrome?

    Wolfram syndrome is a condition that affects many of the body's systems. The hallmark features of Wolfram syndrome are high blood sugar (glucose) levels resulting from a shortage of the hormone insulin (a condition called diabetes mellitus) and progressive vision loss due to degeneration of the nerves that carry information from the eyes to the brain (a condition called optic atrophy). People with Wolfram syndrome often also have pituitary gland dysfunction that results in excess urine production (a condition called diabetes insipidus), hearing loss caused by changes in the inner ear (sensorineural deafness), urinary tract problems, reduced amounts of the sex hormone testosterone in males (hypogonadism), or neurological or psychiatric disorders.

    When should I see a Wolfram Syndrome doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Wolfram Syndrome doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Wolfram Syndrome doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Wolfram Syndrome doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Wolfram Syndrome doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wolfram Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Wolfram Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Wolfram Syndrome doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Wolfram Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Wolfram Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Wolfram Syndrome doctors near Boston, MA?

    Look for the filter feature on the left side of the Wolfram Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Wolfram Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Wolfram Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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