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    Last Updated: 10/30/2025

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    MediFind found 13 doctor with experience in Wolfram Syndrome near Boston, MA. Of these, 13 are Experienced.

    Location
    LocationClose
    13 providers found
      Experienced in Wolfram Syndrome
      Neurosurgery
      Experienced in Wolfram Syndrome
      Neurosurgery

      New England Medical Center Group Practice Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Carl Heilman is a Neurosurgery provider in Boston, Massachusetts. Dr. Heilman is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Meningioma, Hydrocephalus, Acoustic Neuroma, Endoscopic Transnasal Transsphenoidal Surgery, and Mastoidectomy. Dr. Heilman is currently accepting new patients.

      Experienced in Wolfram Syndrome
      Neurosurgery
      Experienced in Wolfram Syndrome
      Neurosurgery

      New England Medical Center Group Practice Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Marie Roguski is a Neurosurgery provider in Boston, Massachusetts. Dr. Roguski is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Subdural Hematoma, Dandy-Walker Syndrome, Glioma, Awake Craniotomy, and Posterior Fossa Decompression.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Wolfram Syndrome
      Experienced in Wolfram Syndrome

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Isabel Arrillaga-Romany is a Neurologist in Boston, Massachusetts. Dr. Arrillaga-Romany is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Astrocytoma, Glioblastoma, Gliosarcoma, and Embryonal Tumor with Multilayered Rosettes. Dr. Arrillaga-Romany is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Wolfram Syndrome
      Experienced in Wolfram Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Bruce Kastin is a Neurologist in Boston, Massachusetts. Dr. Kastin is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Memory Loss, Migraine, Dementia, and Seizures. Dr. Kastin is currently accepting new patients.

      Experienced in Wolfram Syndrome
      Neurology | Anesthesiology | Pain Medicine
      Experienced in Wolfram Syndrome
      Neurology | Anesthesiology | Pain Medicine

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Chen is a Neurologist and an Anesthesiologist in Boston, Massachusetts. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Migraine, Corticobasal Degeneration, Migraine with Brainstem Aura, and Neuralgia. Dr. Chen is currently accepting new patients.

      Experienced in Wolfram Syndrome
      Neurosurgery
      Experienced in Wolfram Syndrome
      Neurosurgery

      Boston Pediatric Neurosurgical Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Pokmeng See is a Neurosurgery provider in Boston, Massachusetts. Dr. See is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Arteriovenous Malformation, Vein of Galen Aneurysm, Wyburn-Mason Syndrome, and Moyamoya Disease. Dr. See is currently accepting new patients.

      Experienced in Wolfram Syndrome
      Neurosurgery
      Experienced in Wolfram Syndrome
      Neurosurgery

      Boston Pediatric Neurosurgical Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Lissa Baird is a Neurosurgery provider in Boston, Massachusetts. Dr. Baird is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Hydrocephalus, Craniopharyngioma, Chiari Malformation, Posterior Fossa Decompression, and Craniectomy.

      Experienced in Wolfram Syndrome
      Neurosurgery
      Experienced in Wolfram Syndrome
      Neurosurgery

      Boston Pediatric Neurosurgical Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Katie Fehnel is a Neurosurgery provider in Boston, Massachusetts. Dr. Fehnel is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Choroid Plexus Papilloma, Hydrocephalus, Stroke, Cordotomy, and Awake Craniotomy.

      Experienced in Wolfram Syndrome
      Experienced in Wolfram Syndrome

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mam Ibraheem is a Neurologist in Boston, Massachusetts. Dr. Ibraheem is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Opsoclonus-Myoclonus Syndrome, Migraine, Stroke, and Generalized Tonic-Clonic Seizure. Dr. Ibraheem is currently accepting new patients.

      Experienced in Wolfram Syndrome
      Experienced in Wolfram Syndrome

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Timothy Smith is a Neurosurgery provider in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. His top areas of expertise are Pituitary Tumor, Glioma, Meningioma, Awake Craniotomy, and Craniectomy.

      Experienced in Wolfram Syndrome
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Wolfram Syndrome
      Pediatric Neurology | Neurology | Pediatrics

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English

      Viviana Benitez is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Benitez is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Diffuse Midline Glioma H3 K27M-Mutant, and Optic Glioma.

      Experienced in Wolfram Syndrome
      Endocrinology
      Experienced in Wolfram Syndrome
      Endocrinology

      Brigham And Womens Physicians Organization Inc

      1153 Centre St, 
      Jamaica Plain, MA 
       (5.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Zeb Saeed is an Endocrinologist in Jamaica Plain, Massachusetts. Dr. Saeed is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Type 2 Diabetes (T2D), Panhypopituitarism, and Paget's Disease of Bone.

      Experienced in Wolfram Syndrome
      Endocrinology
      Experienced in Wolfram Syndrome
      Endocrinology

      Mass General Brigham Medical Group Northern Massachusetts Inc

      104 Endicott St, Suite 104, 
      Danvers, MA 
       (14.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jessica Ricciuto is an Endocrinologist in Danvers, Massachusetts. Dr. Ricciuto is rated as an Experienced provider by MediFind in the treatment of Wolfram Syndrome. Her top areas of expertise are Familial Isolated Hyperparathyroidism, Parathyroid Hyperplasia, Osteitis Fibrosa, and Neonatal Severe Hyperparathyroidism.

      Showing 1-13 of 13

      Last Updated: 10/30/2025

      What is the definition of Wolfram Syndrome?

      Wolfram syndrome is a condition that affects many of the body's systems. The hallmark features of Wolfram syndrome are high blood sugar (glucose) levels resulting from a shortage of the hormone insulin (a condition called diabetes mellitus) and progressive vision loss due to degeneration of the nerves that carry information from the eyes to the brain (a condition called optic atrophy). People with Wolfram syndrome often also have pituitary gland dysfunction that results in excess urine production (a condition called diabetes insipidus), hearing loss caused by changes in the inner ear (sensorineural deafness), urinary tract problems, reduced amounts of the sex hormone testosterone in males (hypogonadism), or neurological or psychiatric disorders.

      When should I see a Wolfram Syndrome doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Wolfram Syndrome doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Wolfram Syndrome doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Wolfram Syndrome doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Wolfram Syndrome doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wolfram Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Wolfram Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Wolfram Syndrome doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Wolfram Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Wolfram Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Wolfram Syndrome doctors near Boston, MA?

      Look for the filter feature on the left side of the Wolfram Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Wolfram Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Wolfram Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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