Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 149 doctor with experience in X-Linked Visceral Heterotaxy 1. Of these, 117 are Experienced, 29 are Advanced and 3 are Distinguished.

    Location
    LocationClose
    149 providers found
      Advanced in X-Linked Visceral Heterotaxy 1
      Internal Medicine
      Advanced in X-Linked Visceral Heterotaxy 1
      Internal Medicine
      5915 W Memorial Rd, Suite 300, 
      Oklahoma City, OK 
      Languages Spoken:
      English
      Accepting New Patients

      Gregory Spencer is a primary care provider, practicing in Internal Medicine in Oklahoma City, Oklahoma. Dr. Spencer is rated as an Advanced provider by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are Situs Inversus, X-Linked Visceral Heterotaxy 1, Dextrocardia with Situs Inversus, and Chronic Cough. Dr. Spencer is currently accepting new patients.

      Experienced in X-Linked Visceral Heterotaxy 1
      Internal Medicine
      Experienced in X-Linked Visceral Heterotaxy 1
      Internal Medicine

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jennifer Mackinnon is a primary care provider, practicing in Internal Medicine in Milwaukee, Wisconsin. Dr. Mackinnon is rated as an Experienced provider by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are Situs Inversus, Dextrocardia with Situs Inversus, X-Linked Visceral Heterotaxy 1, and Juvenile Idiopathic Arthritis (JIA). Dr. Mackinnon is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in X-Linked Visceral Heterotaxy 1
      Family Medicine
      Experienced in X-Linked Visceral Heterotaxy 1
      Family Medicine

      University Of Vermont Medical Center Inc

      111 Colchester Ave, 
      Burlington, VT 
      Languages Spoken:
      English

      Anya Streeter is a primary care provider, practicing in Family Medicine in Burlington, Vermont. Dr. Streeter is rated as an Experienced provider by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are X-Linked Visceral Heterotaxy 1, Situs Inversus, Dextrocardia with Situs Inversus, and Familial Hypertension.

      Learn about our expert tiers
      Distinguished in X-Linked Visceral Heterotaxy 1
      Distinguished in X-Linked Visceral Heterotaxy 1
      Rudolf Buchheim Street 7, 
      Giessen, HE, DE 

      Gotz Schmidt practices in Giessen, Germany. Schmidt is rated as a Distinguished expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Their top areas of expertise are X-Linked Visceral Heterotaxy 1, Low Blood Pressure, Heterotaxy Syndrome, Sepsis, and Embolectomy.

      Distinguished in X-Linked Visceral Heterotaxy 1
      Distinguished in X-Linked Visceral Heterotaxy 1
      Maastricht, LI, NL 

      Aimee Paulussen practices in Maastricht, Netherlands. Ms. Paulussen is rated as a Distinguished expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are X-Linked Visceral Heterotaxy 1, Nevoid Basal Cell Carcinoma Syndrome, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

      Distinguished in X-Linked Visceral Heterotaxy 1
      Distinguished in X-Linked Visceral Heterotaxy 1
      University Drive, 
      Callaghan, NSW, AU 

      Helen Bellchambers practices in Callaghan, Australia. Ms. Bellchambers is rated as a Distinguished expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are Heterotaxy Syndrome, X-Linked Visceral Heterotaxy 1, Dextrocardia, and Dextrocardia with Situs Inversus.

      Advanced in X-Linked Visceral Heterotaxy 1
      Family Medicine
      Advanced in X-Linked Visceral Heterotaxy 1
      Family Medicine

      Phoenix Rehabilitation And Health Services Inc

      2000 Westinghouse Dr, Suite 200, 
      Cranberry Township, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Louis Gringeri is a primary care provider, practicing in Family Medicine in Cranberry Township, Pennsylvania. Dr. Gringeri is rated as an Advanced provider by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are Sitosterolemia, Dextrocardia with Situs Inversus, Situs Inversus, and X-Linked Visceral Heterotaxy 1.

      Advanced in X-Linked Visceral Heterotaxy 1
      Internal Medicine
      Advanced in X-Linked Visceral Heterotaxy 1
      Internal Medicine

      Brown Medicine

      909 N Main St, Suite 300, 
      Providence, RI 
      Languages Spoken:
      English
      Offers Telehealth

      Jennifer Maude is a primary care provider, practicing in Internal Medicine in Providence, Rhode Island. Dr. Maude is rated as an Advanced provider by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are Situs Inversus, X-Linked Visceral Heterotaxy 1, Dextrocardia with Situs Inversus, and HER2 Negative Breast Cancer.

      Advanced in X-Linked Visceral Heterotaxy 1
      Family Medicine
      Advanced in X-Linked Visceral Heterotaxy 1
      Family Medicine
      1151 Silver Lake Rd Nw, 
      New Brighton, MN 
      Languages Spoken:
      English

      Jeffrey Hanson is a primary care provider, practicing in Family Medicine in New Brighton, Minnesota. Dr. Hanson is rated as an Advanced provider by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are Dextrocardia with Situs Inversus, X-Linked Visceral Heterotaxy 1, Situs Inversus, and Pulmonary Embolism.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Rudolf Buchheim Street 7, 
      Giessen, HE, DE 

      Michael Sander practices in Giessen, Germany. Mr. Sander is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are Low Blood Pressure, X-Linked Visceral Heterotaxy 1, Sepsis, Heart Bypass Surgery, and Embolectomy.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Maastricht, LI, NL 

      Ingrid Krapels practices in Maastricht, Netherlands. Ms. Krapels is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are Dilated Cardiomyopathy (DCM), X-Linked Visceral Heterotaxy 1, Familial Dilated Cardiomyopathy, Cardiomyopathy, and Heart Transplant.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Budapest, BU, HU 

      Balint Nagy practices in Budapest, Hungary. Mr. Nagy is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are Ovarian Cancer, X-Linked Visceral Heterotaxy 1, Dihydrolipoamide Dehydrogenase Deficiency, and Preeclampsia.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1

      Rigshospitalet

      Copenhagen, DK 

      Iben Bache practices in Copenhagen, Denmark. Bache is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Their top areas of expertise are X-Linked Visceral Heterotaxy 1, Trisomy 14 Mosaicism, Temple Syndrome, and Mosaicism.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Nijmegen, GE, NL 

      Han Brunner practices in Nijmegen, Netherlands. Brunner is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Their top areas of expertise are Genital Dwarfism, Dilated Cardiomyopathy (DCM), Meier-Gorlin Syndrome, Robinow Syndrome, and Heart Transplant.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Lund, M, SE 

      Catarina Lundin practices in Lund, Sweden. Ms. Lundin is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are L1 Syndrome, X-Linked Visceral Heterotaxy 1, Cardiomyopathy, and Long QT Syndrome.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Maastricht, LI, NL 

      Hubert Smeets practices in Maastricht, Netherlands. Mr. Smeets is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are X-Linked Visceral Heterotaxy 1, Progressive External Ophthalmoplegia, Leigh Syndrome, and Neuralgia.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Giessen, HE, DE 

      Matthias Wolff practices in Giessen, Germany. Mr. Wolff is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are X-Linked Visceral Heterotaxy 1, Heterotaxy Syndrome, Situs Inversus, Dextrocardia with Situs Inversus, and Embolectomy.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Maastricht, LI, NL 

      Jo Vanoevelen practices in Maastricht, Netherlands. Ms. Vanoevelen is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. Her top areas of expertise are X-Linked Visceral Heterotaxy 1, Galactokinase Deficiency, Galactose Epimerase Deficiency, and Classic Galactosemia.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Maastricht, LI, NL 

      Arthur Van Den Wijngaard practices in Maastricht, Netherlands. Mr. Van Den Wijngaard is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are Dilated Cardiomyopathy (DCM), Cardiomyopathy, Familial Dilated Cardiomyopathy, X-Linked Visceral Heterotaxy 1, and Heart Transplant.

      Advanced in X-Linked Visceral Heterotaxy 1
      Advanced in X-Linked Visceral Heterotaxy 1
      Rudolf Buchheim Street 7, 
      Giessen, HE, DE 

      Christian Koch practices in Giessen, Germany. Mr. Koch is rated as an Advanced expert by MediFind in the treatment of X-Linked Visceral Heterotaxy 1. His top areas of expertise are Low Blood Pressure, X-Linked Visceral Heterotaxy 1, Sepsis, Pancreaticoduodenectomy, and Hepato-Pancreato-Biliary Surgery.

      Showing 1-20 of 149

      Last Updated: 10/30/2025

      What is the definition of X-Linked Visceral Heterotaxy 1?

      X-linked visceral heterotaxy type 1 is a rare form of heterotaxy. Heterotaxy is the right/left transposition of thoracic and/or abdominal organs. This condition is caused by genetic changes in the ZIC3 gene, is inherited in an X-linked recessive fashion. It is usually seen in males. Physical features include heart abnormalities such as dextrocardia, transposition of great vessels, ventricular septal defect, patent ductus arteriosus, pulmonic stenosis; situs inversus, and missing (asplenia) and/or extra spleens (polysplenia). Affected individuals can also experience abnormalities in the development of the midline of the body, which can cause holoprosencephaly , myelomeningocele, urological anomalies, widely spaced eyes (hypertelorism), cleft palate, and abnormalities of the sacral spine and anus.

      When should I see a X-Linked Visceral Heterotaxy 1 doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Visceral Heterotaxy 1 doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Visceral Heterotaxy 1 doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Visceral Heterotaxy 1 doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Visceral Heterotaxy 1 doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Visceral Heterotaxy 1 doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Visceral Heterotaxy 1 doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Visceral Heterotaxy 1 doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Visceral Heterotaxy 1 doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Visceral Heterotaxy 1 doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Visceral Heterotaxy 1 doctors near me?

      Look for the filter feature on the left side of the X-Linked Visceral Heterotaxy 1 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Visceral Heterotaxy 1 doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Visceral Heterotaxy 1 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy