The 20 Best Barth Syndrome Doctors in The United States

Find the Top Barth Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 62 doctor with experience in Barth Syndrome near The United States. Of these, 47 are Experienced, 13 are Advanced and 2 are Elite.

Location
LocationClose
62 providers found
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Johns Hopkin Hospital - Department Of Pediatric Cardiology

    1800 Orleans St, Rm 2319, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    William Thompson-Iii is a Pediatric Cardiologist practicing medicine in Baltimore, Maryland. Dr. Thompson-Iii is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Barth Syndrome, Duchenne Muscular Dystrophy, Tetralogy of Fallot, and Ventricular Septal Defects. Dr. Thompson-Iii is board certified in American Board Of Pediatrics and The American Board Of Pediatrics - Pediatric Cardiology. Dr. Thompson-Iii is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    University Medical Associates Of The Medical University Of South Carol

    171 Ashley Ave, 
    Charleston, SC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Shahryar Chowdhury is a Pediatric Cardiologist practicing medicine in Charleston, South Carolina. Dr. Chowdhury is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Truncus Arteriosus, Patent Ductus Arteriosus, Barth Syndrome, Heart Transplant, and Gastrostomy. Dr. Chowdhury is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    MUSC Children's Health Cardiology At Summey Medical Pavilion

    2250 Mall Dr, 
    North Charleston, SC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lanier Jackson is a Pediatric Cardiologist practicing medicine in North Charleston, South Carolina. Dr. Jackson is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Barth Syndrome, Anomalous Left Coronary Artery from the Pulmonary Artery, Congenital Coronary Artery Malformation, and Coronary Artery Aneurysm. Dr. Jackson is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Le Bonheur Children's Outpatient Center

    51 N Dunlap St, 
    Memphis,, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Towbin is a Pediatric Cardiologist practicing medicine in Memphis,, Tennessee. Dr. Towbin is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heart Transplant, and Cardiac Ablation. Dr. Towbin is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Arnold Strauss is a Pediatric Cardiologist practicing medicine in Cincinnati, Ohio. Dr. Strauss is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, Barth Syndrome, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, and Mitochondrial Trifunctional Protein Deficiency. Dr. Strauss is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Vassilios Bezzerides is a Pediatric Cardiologist practicing medicine in Boston, Massachusetts. Dr. Bezzerides is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Wolff-Parkinson-White Syndrome, Long QT Syndrome, Arrhythmias, Heart Block, and Cardiac Ablation. Dr. Bezzerides is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Vanderbilt University

    3601 21st Ave S, 
    Nashville, TN 
    Languages Spoken:
    English
    Accepting New Patients

    Justin Godown is a Pediatric Cardiologist practicing medicine in Nashville, Tennessee. Dr. Godown is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Barth Syndrome, Hypertrophic Cardiomyopathy (HCM), Hypoplastic Left Heart Syndrome (HLHS), and Heart Transplant. Dr. Godown is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology | Advanced Heart Failure and Transplant Cardiology | Medical Genetics
    Advanced in Barth Syndrome
    Pediatric Cardiology | Advanced Heart Failure and Transplant Cardiology | Medical Genetics
    Referral may be required
    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English
    Accepting New Patients

    Kathryn Chatfield is a Pediatric Cardiologist and an Advanced Heart Failure and Transplant Cardiologist practicing medicine in Aurora, Colorado. Dr. Chatfield is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses RASopathies, Noonan Syndrome, Costello Syndrome, Cardiomyopathic Lentiginosis, and Heart Transplant. Dr. Chatfield is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Mount Sinai

    1 Gustave L Levy Pl, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Jacqueline Lamour is a Pediatric Cardiologist practicing medicine in New York, New York. Dr. Lamour is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Dilated Cardiomyopathy (DCM), Cardiomyopathy, Barth Syndrome, Dextrocardia with Situs Inversus, and Heart Transplant. Dr. Lamour is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Divine Home Care Agency

    300 Cadman Plz W, 
    Brooklyn, NY 
    Languages Spoken:
    English
    Accepting New Patients

    David Ezon is a Pediatric Cardiologist practicing medicine in Brooklyn, New York. Dr. Ezon is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Ventricular Septal Defects, Coarctation of the Aorta, Pulmonary Atresia with Intact Ventricular Septum, and Right Ventricle Hypoplasia. Dr. Ezon is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    John Parent is a Pediatric Cardiologist practicing medicine in Indianapolis, Indiana. Dr. Parent is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 61 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Pulmonary Valve Stenosis, RASopathies, Duchenne Muscular Dystrophy, and Heart Transplant. Dr. Parent is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Northwest Center For Congenital Heart Disease

    101 W 8th Ave Ste 4300, 
    Spokane,, WA 
    Languages Spoken:
    English, Arabic, Hungarian, Spanish, Tamil
    Accepting New Patients
    Offers Telehealth

    Alexander Hutchinson is a Pediatric Cardiologist practicing medicine in Spokane,, Washington. Dr. Hutchinson is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Barth Syndrome and Dilated Cardiomyopathy (DCM). Dr. Hutchinson is currently accepting new patients.

    Advanced in Barth Syndrome
    Pediatric Cardiology
    Advanced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Johns Hopkins Children's Center

    1800 Orleans St, 
    Baltimore,, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Shelby Kutty is a Pediatric Cardiologist practicing medicine in Baltimore,, Maryland. Dr. Kutty is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Congenital Heart Disease (CHD), Heart Transplant, and Thrombectomy. Dr. Kutty is currently accepting new patients.

    Experienced in Barth Syndrome
    Pediatric Cardiology | Pediatrics | Cardiac Electrophysiology
    Experienced in Barth Syndrome
    Pediatric Cardiology | Pediatrics | Cardiac Electrophysiology
    Referral may be required

    Atrium Health - Levine Congenital Heart Center

    1001 Blythe Boulevard, Suite 500, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Randall Bryant is a Pediatric Cardiologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. Dr. Bryant is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. His clinical expertise encompasses Barth Syndrome, Double Discordia, Wolff-Parkinson-White Syndrome, and Arrhythmias. Dr. Bryant is board certified in (Pediatrics, Pediatric Cardiology), American Board Of Pediatrics, Pediatric Cardiology, and American Board Of Pediatrics. Dr. Bryant is currently accepting new patients.

    Experienced in Barth Syndrome
    Pediatric Cardiology
    Experienced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Languages Spoken:
    English, French
    Offers Telehealth

    Pascal Amedro is a Pediatric Cardiologist practicing medicine in Washington, Washington, D.c.. Dr. Amedro is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Congenital Cardiovascular Shunt, Eisenmenger Syndrome, Gastrostomy, and Heart Transplant.

    Experienced in Barth Syndrome
    Pediatric Cardiology
    Experienced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Dell Children's Pediatric And Congenital Cardiology - Georgetown

    4853 Williams Dr, Ste 105, 
    Georgetown, TX 
    Languages Spoken:
    English, Tamil
    Accepting New Patients

    Saradha Subramanian is a Pediatric Cardiologist practicing medicine in Georgetown, Texas. Dr. Subramanian is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Patent Ductus Arteriosus, Ventricular Septal Defects, Heart Murmurs, and Trisomy 18. Dr. Subramanian is board certified in The American Board Of Pediatrics - Pediatrics and The American Board Of Pediatrics - Pediatric Cardiology. Dr. Subramanian is currently accepting new patients.

    Experienced in Barth Syndrome
    Pediatric Cardiology
    Experienced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Dell Children's Pediatric And Congenital Cardiology - Cedar Park

    1301 Medical Pkwy, Ste 320, 
    Cedar Park, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Casadonte is a Pediatric Cardiologist practicing medicine in Cedar Park, Texas. Dr. Casadonte is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Double Inlet Left Ventricle. Dr. Casadonte is board certified in The American Board Of Pediatrics - Pediatrics and The American Board Of Pediatrics - Pediatric Cardiology. Dr. Casadonte is currently accepting new patients.

    Experienced in Barth Syndrome
    Pediatric Cardiology
    Experienced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Dell Children's Pediatric And Congenital Cardiology - Waco

    6101 Woodway Dr, Ste 220, 
    Waco, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Mardy is a Pediatric Cardiologist practicing medicine in Waco, Texas. Dr. Mardy is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Ventricular Septal Defects, Patent Ductus Arteriosus, Trisomy 18, Double Inlet Left Ventricle, and Septoplasty. Dr. Mardy is board certified in The American Board Of Pediatrics - Pediatrics and The American Board Of Pediatrics - Pediatric Cardiology. Dr. Mardy is currently accepting new patients.

    Experienced in Barth Syndrome
    Pediatric Cardiology
    Experienced in Barth Syndrome
    Pediatric Cardiology
    Referral required

    Dell Children's Pediatric And Congenital Cardiology - Georgetown

    4853 Williams Dr, Ste 105, 
    Georgetown, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Lauren Glass is a Pediatric Cardiologist practicing medicine in Georgetown, Texas. Dr. Glass is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Double Inlet Left Ventricle, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Heart Transplant. Dr. Glass is board certified in The American Board Of Pediatrics - Pediatrics and The American Board Of Pediatrics - Pediatric Cardiology. Dr. Glass is currently accepting new patients.

    Experienced in Barth Syndrome
    Pediatric Cardiology
    Experienced in Barth Syndrome
    Pediatric Cardiology
    Referral may be required

    Dell Children's Pediatric And Congenital Cardiology - Cedar Park

    1301 Medical Pkwy, Ste 320, 
    Cedar Park, TX 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Michael Perez is a Pediatric Cardiologist practicing medicine in Cedar Park, Texas. Dr. Perez is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Patent Ductus Arteriosus, Ventricular Septal Defects, Atrial Septal Defect (ASD), and Heart Murmurs. Dr. Perez is board certified in The American Board Of Pediatrics - Pediatrics and The American Board Of Pediatrics - Pediatric Cardiology. Dr. Perez is currently accepting new patients.

    Showing 1-20 of 62

    Last Updated: 09/26/2026

    What is the definition of Barth Syndrome?

    Barth syndrome is a rare condition characterized by an enlarged and weakened heart (dilated cardiomyopathy), weakness in muscles used for movement (skeletal myopathy), recurrent infections due to small numbers of white blood cells (neutropenia), and short stature. Barth syndrome occurs almost exclusively in males.

    When should I see a Barth Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Barth Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Barth Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Barth Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Barth Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Barth Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Barth Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Barth Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Barth Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Barth Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Barth Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Barth Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Barth Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Barth Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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