The 20 Best Fatal Familial Insomnia Doctors in The United States

Find the Top Fatal Familial Insomnia Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 20 doctor with experience in Fatal Familial Insomnia near The United States. Of these, 15 are Experienced and 2 are Advanced.

Location
LocationClose
20 providers found
    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Schrag is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Cerebral Amyloid Angiopathy, Stroke, Hereditary Cerebral Amyloid Angiopathy, Thrombectomy, and Gastrostomy.

    Colin M. Smith
    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    LVH Neurology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 405, 
    Allentown, PA 
    Languages Spoken:
    English

    Philosophy of care | I believe in working alongside patients and families as part of a team to reestablish their way of life, focusing on preserving and empowering each person’s ideal way of living. | Why I entered medicine | I love having the opportunity to help individuals reconnect with the unique aspects of life they value by restoring function and highlighting intact potential. | Community involvement | My wife and I proudly support United Way of the Greater Lehigh Valley! | Personal interests | I like bonsai and gardening, hiking, tennis, table tennis, golf, and my dog (a very sweet American Staffordshire terrier named Bumblebee). Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Creutzfeldt-Jakob Disease, Retinal Vasculopathy with Cerebral Leukodystrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    John C. Probasco
    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    Johns Hopkins Outpatient Center

    Baltimore, MD 
    Experience:
    18+ years
    Languages Spoken:
    English, German
    Offers Telehealth

    Dr. Probasco is a professor at the Johns Hopkins University School of Medicine Department of Neurology. He is the Vice Chair for Quality, Safety, and Service for the department. He also serves as the Director of the Johns Hopkins Division of Advanced Clinical Neurology as well as the Medical Director of the Johns Hopkins Inpatient General Neurology Service. He co-directs the Johns Hopkins Encephalitis Center and the Johns Hopkins Center for Refractory Status Epilepticus and Neuroinflammation. He cares for general neurology inpatients and outpatients, specializing in autoimmune and paraneoplastic syndromes as well as neurological immune-related adverse events following immunotherapies for cancer. After completing his undergraduate studies in biochemistry at the University of New Mexico, Dr. Probasco attended the University of Oxford as a Rhodes Scholar and earned a second undergraduate degree in psychology, philosophy and physiology. He went on to earn his medical degree at the University of California, San Francisco. He completed an internship in internal medicine at Johns Hopkins Bayview Medical Center and a residency in neurology at Johns Hopkins, where he was the faculty liaison/executive chief resident. He went on to complete an instructorship in inpatient general neurology at Johns Hopkins. Dr. Probasco’s research interests include increasing care value through improving outcomes, incorporation of patient experience of disease and treatment, the efficiency of care delivery, and diagnostic test utilization in general and specifically in relation to autoimmune and paraneoplastic neurological syndromes, including encephalitis. Finally, he is interested in the management of neurological immune-related adverse events following immunotherapies for the treatment of cancer. Dr. Probasco has been recognized at the departmental, institutional, and national levels for teaching and clinical excellence, including the American Academy of Neurology’s A.B. Baker Teacher Recognition Award and the Frank L. Coulson, Jr. Award from the Johns Hopkins Medicine Miller-Coulson Academy of Clinical Excellence. He is a past graduate of the Johns Hopkins Armstrong Institute Resident Scholars (AIRS) program in Patient Safety and Quality. As a faculty member, he was inducted into the Miller-Coulson Academy of Clinical Excellence in 2019. He serves as Editor-in-Chief of NEJM Journal Watch Neurology. Videos The impact of COVID-19 on the Department of Neurology‚Äôs clinical care and medical education programs. Dr. Probasco is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Encephalitis, Anti-NMDA Receptor Encephalitis, Status Epilepticus, Creutzfeldt-Jakob Disease, and Gastrostomy.

    Learn about our expert tiers
    Advanced in Fatal Familial Insomnia
    Advanced in Fatal Familial Insomnia

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Reder is a Neurologist in Chicago, Illinois. Dr. Reder is rated as an Advanced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Transverse Myelitis, Neuromyelitis Optica, and Gastrostomy.

    Advanced in Fatal Familial Insomnia
    Advanced in Fatal Familial Insomnia

    Office

    675 Nelson Rising Ln Ste 190, 
    San Francisco, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Geschwind is a Neurologist in San Francisco, California. Dr. Geschwind is rated as an Advanced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Creutzfeldt-Jakob Disease, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, Olivopontocerebellar Atrophy, and Spinocerebellar Ataxia.

    Edgar Yepes-Correa
    Nurse Practitioner
    Nurse Practitioner

    Adrian Yepes, MSN,PMHNP-BC,RN,BS

    Ocean Ave, 
    San Francisco, CA 
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Edgar Yepes-Correa is a Nurse Practitioner in San Francisco, California. His top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), Generalized Anxiety Disorder (GAD), Bipolar Disorder (BPD), and Dementia.

    Paola F. Paquini
    Nurse Practitioner
    Nurse Practitioner

    Paola Paquini's Practice

    S Avalon Blvd, 
    Los Angeles, CA 
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Paola Paquini practices in Los Angeles, California. Her top areas of expertise are Generalized Anxiety Disorder (GAD), Major Depression, Post-Traumatic Stress Disorder (PTSD), and Attention Deficit Hyperactivity Disorder (ADHD).

    Pinnacle Behavioral Health And Wellness

    348 N Main St, 
    Troy, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Afi Kpakossou is a Psychologist in Troy, North Carolina. Her top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), Bipolar Disorder (BPD), Oppositional Defiant Disorder (ODD), and Major Depression.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    Vcu Medial Center-Ambulatory Care Center

    417 N 11th St, 
    Richmond, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Taylor Haight is a Neurologist in Richmond, Virginia. Dr. Haight is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Stroke, Fatal Familial Insomnia, Cavernous Sinus Thrombosis, Transient Ischemic Attack (TIA), and Thrombectomy.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    Jhu Respiratory Div

    5300 Alpha Commons Dr, 
    Baltimore, MD 
    Languages Spoken:
    English
    Offers Telehealth

    Deborah Rose is a Neurologist in Baltimore, Maryland. Dr. Rose is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Stroke, Moyamoya Disease, and Spasticity.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    MedStar Georgetown University Hospital

    3800 Reservoir Rd NW, 
    Washington, DC 
    Languages Spoken:
    English

    Jessica Stevens is a Neurologist in Washington, Washington, D.c.. Dr. Stevens is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Progressive Multifocal Leukoencephalopathy, Encephalitis, and Creutzfeldt-Jakob Disease.

    Experienced in Fatal Familial Insomnia
    Neurology
    Experienced in Fatal Familial Insomnia
    Neurology

    Office

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Sean Taylor is a Neurologist in Rochester, Minnesota. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Familial Benign Copper Deficiency, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Fatal Familial Insomnia.

    Experienced in Fatal Familial Insomnia
    Family Medicine
    Experienced in Fatal Familial Insomnia
    Family Medicine

    Office

    5 Columbus Cir, 
    New York, NY 
    Languages Spoken:
    English

    Sirisha Sanamandra is a Family Medicine provider in New York, New York. Dr. Sanamandra is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Memory Loss, Seizures, Migraine, and Fatal Familial Insomnia.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    NYU Langone Internal Medicine Associates

    222 E 41st St, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Janet Rucker is a Neurologist in New York, New York. Dr. Rucker is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Brown Syndrome, Moebius Syndrome, Supranuclear Ocular Palsy, Movement Disorders, and Deep Brain Stimulation.

    Experienced in Fatal Familial Insomnia
    Neurology
    Experienced in Fatal Familial Insomnia
    Neurology

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Mee-ohk Kim is a Neurologist in Boston, Massachusetts. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Creutzfeldt-Jakob Disease, Gerstmann-Straussler-Scheinker Syndrome, Fatal Familial Insomnia, and Dementia.

    Experienced in Fatal Familial Insomnia
    Neurology
    Experienced in Fatal Familial Insomnia
    Neurology

    Johns Hopkins Hospital

    600 N Wolfe St, 
    Baltimore, MD 
    Languages Spoken:
    English

    David Zee is a Neurologist in Baltimore, Maryland. Dr. Zee is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Vertigo, Brown Syndrome, Cerebelloparenchymal Disorder 3, and Benign Paroxysmal Positional Vertigo.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    Neurology-Medical Arts & Research Center-Marc

    8300 Floyd Curl Dr Fl 8, 
    San Antonio, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Antonio Teixeira is a Psychiatrist in San Antonio, Texas. Dr. Teixeira is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Huntington Disease, Dementia, Chorea, and Movement Disorders.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    University Hospitals

    11100 Euclid Ave, 
    Cleveland, OH 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Mohamed Elkasaby is a Neurologist in Cleveland, Ohio. Dr. Elkasaby has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Cerebellar Degeneration, Movement Disorders, Alzheimer's Disease, and Primary Progressive Aphasia.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    MedStar Health Headache Center At McLean

    1420 Beverly Rd Ste 300, 
    Mclean, VA 
    Languages Spoken:
    English

    Matthew Levine is a Neurologist in Mclean, Virginia. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Fatal Familial Insomnia, and Hydrocephalus.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia

    MedStar Health: Neuroscience At MedStar Georgetown University Hospital

    3800 Reservoir Rd NW Fl 6, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Gholam Motamedi is a Neurologist in Washington, Washington, D.c.. Dr. Motamedi is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Seizures, Restless Legs Syndrome, Generalized Tonic-Clonic Seizure, and Epilepsy.

    Showing 1-20 of 20

    Last Updated: 04/28/2026

    What is the definition of Fatal Familial Insomnia?

    Fatal familial insomnia (FFI) affects the thalamus, the part of the brain that controls the sleep-wake cycle. The most common symptoms are sleep disturbance, psychiatric problems, weight loss, and balance problems. Other symptoms include high blood pressure, excess sweating, and difficulty controlling body temperature. These symptoms tend to get worse over time. Almost all cases of FFI occur due to a specific variant in the PRNP gene and are inherited in an autosomal dominant pattern. Diagnosis is based on the symptoms, clinical exam, sleep study, and imaging studies. The results of genetic testing can help confirm the diagnosis.

    When should I see a Fatal Familial Insomnia doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fatal Familial Insomnia doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fatal Familial Insomnia doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fatal Familial Insomnia doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fatal Familial Insomnia doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. 

    Why is it important to get a second opinion from a different Fatal Familial Insomnia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fatal Familial Insomnia doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fatal Familial Insomnia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fatal Familial Insomnia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fatal Familial Insomnia doctors in The United States?

    Look for the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fatal Familial Insomnia doctor that offers video calls?

    Look for the filter feature on the left-side of the Fatal Familial Insomnia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy