The 20 Best Fucosidosis Doctors in Germany

Find the Top Fucosidosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 8 doctor with experience in Fucosidosis near Germany. Of these, 6 are Experienced, 1 are Advanced and 1 are Distinguished.

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8 providers found
    Distinguished in Fucosidosis
    Distinguished in Fucosidosis
    Bielefeld, NW, DE 

    Torben Lubke practices practicing medicine in Bielefeld, Germany. Mr. Lubke is rated as a Distinguished expert by MediFind in the treatment of Fucosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Fucosidosis, Mucopolysaccharidoses (MPS), Usher Syndrome, and Macular Corneal Dystrophy Type 1.

    Advanced in Fucosidosis
    Advanced in Fucosidosis
    Bielefeld, NW, DE 

    Thomas Dierks practices practicing medicine in Bielefeld, Germany. Mr. Dierks is rated as an Advanced expert by MediFind in the treatment of Fucosidosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Multiple Sulfatase Deficiency, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, Fucosidosis, and X-Linked Ichthyosis.

    Experienced in Fucosidosis
    Experienced in Fucosidosis
    Kiel, SH, DE 

    Renate Rauch-Lullmann practices practicing medicine in Kiel, Germany. Ms. Rauch-Lullmann is rated as an Experienced expert by MediFind in the treatment of Fucosidosis. Her clinical expertise encompasses Fucosidosis, Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Mucopolysaccharidoses (MPS), and Dilated Cardiomyopathy (DCM).

    Learn about our expert tiers
    Experienced in Fucosidosis
    Experienced in Fucosidosis
    Hamburg, HH, DE 

    Irm Borgmeyer-Hermans practices practicing medicine in Hamburg, Germany. Borgmeyer-Hermans is rated as an Experienced expert by MediFind in the treatment of Fucosidosis. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Glucose Transporter Deficiency, Fucosidosis, Spondyloepiphyseal Dysplasia, and Membranous Nephropathy.

    Experienced in Fucosidosis
    Experienced in Fucosidosis
    Kiel, SH, DE 

    Markus Damme practices practicing medicine in Kiel, Germany. Mr. Damme is rated as an Experienced expert by MediFind in the treatment of Fucosidosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Usher Syndrome, CLN4 Disease, CLN2 Disease, and CLN3 Disease.

    Experienced in Fucosidosis
    Experienced in Fucosidosis
    Hamburg, HH, DE 

    Thomas Braulke practices practicing medicine in Hamburg, Germany. Mr. Braulke is rated as an Experienced expert by MediFind in the treatment of Fucosidosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Mucolipidosis 3, Mucolipidosis Type 4, Sialidosis, and CLN3 Disease.

    Experienced in Fucosidosis
    Experienced in Fucosidosis
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Sven Thoms practices practicing medicine in Goettingen, Germany. Mr. Thoms is rated as an Experienced expert by MediFind in the treatment of Fucosidosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Zellweger Syndrome, Miyoshi Myopathy, Fucosidosis, and Dysferlinopathy.

    Experienced in Fucosidosis
    Experienced in Fucosidosis
    Hamburg, HH, DE 

    Sandra Markmann practices practicing medicine in Hamburg, Germany. Ms. Markmann is rated as an Experienced expert by MediFind in the treatment of Fucosidosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Mucolipidosis Type 4, Mucolipidosis 3, Sialidosis, and Fucosidosis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 04/28/2026

    What is the definition of Fucosidosis?

    Fucosidosis is a condition that affects many areas of the body, especially the brain. The symptoms of fucosidosis can vary from person to person. Affected individuals have intellectual disabilities that worsen with age. Over time, people with this condition tend to lose skills they had previously learned, such as sitting, standing, walking, or talking. Additional signs and symptoms of fucosidosis can include slow growth, abnormal bone development (dysostosis multiplex), and rigid or stiff muscles (spasticity). People with fucosidosis may also have clusters of enlarged blood vessels that form small, dark red spots on the skin (angiokeratomas) and distinctive facial features that are often described as "coarse." Additional features of fucosidosis can include frequent respiratory infections, an enlarged liver and spleen (hepatosplenomegaly), and seizures.

    When should I see a Fucosidosis doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fucosidosis doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fucosidosis doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fucosidosis doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fucosidosis doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fucosidosis doctor search results page. 

    Why is it important to get a second opinion from a different Fucosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fucosidosis doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fucosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fucosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fucosidosis doctors in Germany?

    Look for the filter feature on the left side of the Fucosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fucosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Fucosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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