The 20 Best Acrocephalopolydactyly Doctors Near Me in Seattle, WA

Find the Top Acrocephalopolydactyly Experts and Specialists

The 20 Best Acrocephalopolydactyly Doctors near Seattle, WA

Last Updated: 02/22/2026

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MediFind found 10 doctor with experience in Acrocephalopolydactyly near Seattle, WA. Of these, 7 are Experienced and 3 are Advanced.

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10 providers found
    Rod Oskouian
    Experienced in Acrocephalopolydactyly
    Neurosurgery
    Experienced in Acrocephalopolydactyly
    Neurosurgery
    550 17th Avenue, Suite 500, 
    Seattle, WA 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Oskouian is a neurosurgeon who specializes in the diagnosis and treatment of complex spinal disorders. As the Chief of the Complex Spine Department, his clinical practice located on the Swedish/Cherry Hill campus in Seattle focuses on scoliosis, spinal deformities, spine trauma, spine fractures, spinal surgery revisions, osteoporosis, spinal cord injury, degenerative disc disease, spine tumors, stereotactic spinal radiosurgery, spine infections, and minimally invasive spinal surgery. Dr. Oskouian received his medical degree from the University of California, Los Angeles. He completed his residency in neurosurgery at the University of Virginia under the late Dr. John Jane, Sr. Dr. Oskouian completed his neurosurgery fellowship at the New Zealand National Hospital in Auckland. Dr. Oskouian has published in numerous medical journals and textbooks, including Neuroscience, Neurosurgery, Neurosurgical Clinics of North America, the Journal of Neurosurgery, Neurosurgical Focus and Spine. His philosophy of care is to provide comprehensive, individualized medical care for his patients based on the most recent scientific advances. Dr. Oskouian also believes prevention, communication and education are a vital component of a patient’s long-term health and well-being. Dr. Oskouian offers the Digital Surgical Experience to guide his practice and maintain consistent communication with his patients throughout their care. This includes offering virtual visits to patients, timely access to information, and interactive messages, check-ins, and reminders, allowing patients to become custodians of their own care. Dr. Oskouian was selected by Seattle Magazine and Seattle Met Magazine as a Top Doctor. Dr. Oskouian is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Spondylolisthesis, Epidural Hematoma, Scoliosis, Laminectomy, and Spinal Fusion.

    Srinivas Susarla
    Advanced in Acrocephalopolydactyly
    Plastic Surgery
    Advanced in Acrocephalopolydactyly
    Plastic Surgery

    Seattle Childrens Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Susarla is an Associate Professor of Plastic Surgery at the University of Washington School of Medicine, Associate Professor of Oral and Maxillofacial Surgery at the University of Washington School of Dentistry. His primary clinical practice is in craniomaxillofacial surgery at Seattle Children's Hospital, where he also serves as the Division Chief of Pediatric Oral and Maxillofacial Surgery.Dr. Susarla completed his undergraduate education at Princeton University. He completed his dental degree at the Harvard School of Dental Medicine, a master of public health degree at the Harvard School of Public Health, and his medical degree at Harvard Medical School. He completed surgical residencies in Oral and Maxillofacial Surgery at the Massachusetts General Hospital and Plastic Surgery at the Johns Hopkins Hospital. These were followed by fellowship training in Craniomaxillofacial Surgery at Seattle Children's Hospital/University of Washington Harborview Medical Center.Dr. Susarla's clinical practice focuses on pediatric and adult craniomaxillofacial reconstructive surgery, including management of craniosynostosis, cleft lip and palate, dentofacial deformities, maxillofacial pathology, and primary and secondary reconstruction following facial trauma.He has an active research portfolio, with over 250 peer-reviewed publications and several dozen book chapters. He currently serves on the editorial boards for a number of journals including Craniomaxillofacial Trauma and Reconstruction, the Journal of Oral and Maxillofacial Surgery, Plastic and Reconstructive Surgery, and Plastic and Reconstructive Surgery Global Open. He has given over 40 invited talks nationally and internationally on subjects related to pediatric craniofacial surgery, orthognathic surgery, and facial trauma reconstruction.Dr. Susarla is one of the few craniomaxillofacial surgeons in the country who is board certified in both Plastic Surgery and Oral/Maxillofacial surgery. Dr. Susarla is rated as an Advanced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Micrognathia, Metopic Ridge, Craniosynostosis, Osteotomy, and Bone Graft.

    Advanced in Acrocephalopolydactyly
    Medical Genetics | Oncology | Pediatrics
    Advanced in Acrocephalopolydactyly
    Medical Genetics | Oncology | Pediatrics
    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English, Polish, Spanish

    Peter Leahy is a Medical Genetics specialist and an Oncologist in Seattle, Washington. Dr. Leahy is rated as an Advanced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Maple Syrup Urine Disease, Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Beta-Ketothiolase Deficiency.

    Learn about our expert tiers
    Advanced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics
    Advanced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics
    4800 Sand Point Way Ne, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anne Hing is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Hing is rated as an Advanced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Craniosynostosis, Micrognathia, Deafness Craniofacial Syndrome, and Acrofrontofacionasal Dysostosis Syndrome. Dr. Hing is currently accepting new patients.

    Experienced in Acrocephalopolydactyly
    Experienced in Acrocephalopolydactyly

    The Association Of University Physicians

    325 9th Ave, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Richard Ellenbogen is a Neurosurgery provider in Seattle, Washington. Dr. Ellenbogen is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Syringobulbia, Chiari Malformation Type 2, Syringomyelia, Posterior Fossa Decompression, and Laminectomy.

    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Office

    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English

    Jevon Yardley is a Plastic Surgeon in Seattle, Washington. Dr. Yardley is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Apert Syndrome, Acrocephalopolydactyly, Pfeiffer Syndrome, Osteotomy, and Tissue Biopsy.

    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Craig Birgfeld is a Plastic Surgeon in Seattle, Washington. Dr. Birgfeld is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Osteotomy, and Craniectomy.

    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English

    Mert Calis is a Plastic Surgeon in Seattle, Washington. Dr. Calis is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Velopharyngeal Insufficiency, Cleft Lip and Palate, Craniosynostosis, Osteotomy, and Bone Graft.

    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Raymond Tse is a Plastic Surgeon in Seattle, Washington. Dr. Tse is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Cleft Lip and Palate, Velopharyngeal Insufficiency, Newborn Head Molding, Osteotomy, and Septoplasty.

    Experienced in Acrocephalopolydactyly
    Experienced in Acrocephalopolydactyly

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Hayek is a Pediatrics provider in Seattle, Washington. Dr. Hayek is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, HNRNPH2-Related Disorder, and DK Phocomelia Syndrome.

    Showing 1-10 of 10

    Last Updated: 02/22/2026

    What is the definition of Acrocephalopolydactyly?

    Acrocephalopolydactyly, also known as Elejalde syndrome, is an extremely rare genetic (autosomal recessive) disorder characterized by excessive birth weight and facial, body, organ, limb, and finger abnormalities. Fewer than twelve cases have been identified.

    When should I see an Acrocephalopolydactyly doctor near Seattle, WA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Acrocephalopolydactyly doctor near Seattle, WA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Acrocephalopolydactyly doctors near Seattle, WA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Acrocephalopolydactyly doctors near Seattle, WA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Acrocephalopolydactyly doctor near Seattle, WA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrocephalopolydactyly doctor search results page. 

    Why is it important to get a second opinion from a different Acrocephalopolydactyly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Acrocephalopolydactyly doctor near Seattle, WA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Acrocephalopolydactyly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Acrocephalopolydactyly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Acrocephalopolydactyly doctors near Seattle, WA?

    Look for the filter feature on the left side of the Acrocephalopolydactyly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Acrocephalopolydactyly doctor that offers video calls?

    Look for the filter feature on the left-side of the Acrocephalopolydactyly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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