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    Last Updated: 10/30/2025

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    MediFind found 8 doctor with experience in Acrodysostosis near Seattle, WA. Of these, 5 are Experienced and 3 are Advanced.

    Location
    LocationClose
    8 providers found
      Advanced in Acrodysostosis
      Developmental and Behavioral Pediatrics | Pediatrics
      Advanced in Acrodysostosis
      Developmental and Behavioral Pediatrics | Pediatrics

      The Association Of Chrmc And University Physicians

      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Michael Cunningham is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider in Seattle, Washington. Dr. Cunningham is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Acromicric Dysplasia, Micrognathia, Acrofacial Dysostosis Weyers Type, Acrodysostosis, and Septoplasty.

      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English, Castilian, French, Mandarin, Spanish, Swedish
      Accepting New Patients
      Offers Telehealth

      Kathleen Sie is a Pediatric Otolaryngologist and an Otolaryngologist in Seattle, Washington. Dr. Sie is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Microtia, Velopharyngeal Insufficiency, Acrofacial Dysostosis Rodriguez Type, Treacher Collins Syndrome, and Laryngectomy. Dr. Sie is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Acrodysostosis
      Experienced in Acrodysostosis
      1959 Ne Pacific St, C-212, Box 356340, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kelly Evans is a Pediatrics provider in Seattle, Washington. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Multiple Epiphyseal Dysplasia, Zlotogora-Ogur Syndrome, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Evans is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Acrodysostosis
      Plastic Surgery
      Experienced in Acrodysostosis
      Plastic Surgery

      Seattle Childrens Hospital

      4800 Sand Point Way NE, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Susarla is an Associate Professor of Plastic Surgery at the University of Washington School of Medicine, Associate Professor of Oral and Maxillofacial Surgery at the University of Washington School of Dentistry. His primary clinical practice is in craniomaxillofacial surgery at Seattle Children's Hospital, where he also serves as the Division Chief of Pediatric Oral and Maxillofacial Surgery.Dr. Susarla completed his undergraduate education at Princeton University. He completed his dental degree at the Harvard School of Dental Medicine, a master of public health degree at the Harvard School of Public Health, and his medical degree at Harvard Medical School. He completed surgical residencies in Oral and Maxillofacial Surgery at the Massachusetts General Hospital and Plastic Surgery at the Johns Hopkins Hospital. These were followed by fellowship training in Craniomaxillofacial Surgery at Seattle Children's Hospital/University of Washington Harborview Medical Center.Dr. Susarla's clinical practice focuses on pediatric and adult craniomaxillofacial reconstructive surgery, including management of craniosynostosis, cleft lip and palate, dentofacial deformities, maxillofacial pathology, and primary and secondary reconstruction following facial trauma.He has an active research portfolio, with over 250 peer-reviewed publications and several dozen book chapters. He currently serves on the editorial boards for a number of journals including Craniomaxillofacial Trauma and Reconstruction, the Journal of Oral and Maxillofacial Surgery, Plastic and Reconstructive Surgery, and Plastic and Reconstructive Surgery Global Open. He has given over 40 invited talks nationally and internationally on subjects related to pediatric craniofacial surgery, orthognathic surgery, and facial trauma reconstruction.Dr. Susarla is one of the few craniomaxillofacial surgeons in the country who is board certified in both Plastic Surgery and Oral/Maxillofacial surgery. Dr. Susarla is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Micrognathia, Metopic Ridge, Craniosynostosis, Osteotomy, and Bone Graft.

      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Pediatrics | Otolaryngology

      The Association Of Chrmc And University Physicians

      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Offers Telehealth

      Randall Bly is a Pediatric Otolaryngologist and a Pediatrics provider in Seattle, Washington. Dr. Bly has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Micrognathia, Microtia, Pierre Robin Sequence, Osteotomy, and Endoscopy.

      Experienced in Acrodysostosis
      Emergency Medicine | Pediatrics
      Experienced in Acrodysostosis
      Emergency Medicine | Pediatrics

      The Association Of Chrmc And University Physicians

      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English, Japanese, Spanish
      Accepting New Patients
      Offers Telehealth

      Lauren Kinneman is an Emergency Medicine specialist and a Pediatrics provider in Seattle, Washington. Dr. Kinneman is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Acrodysostosis, Acrofacial Dysostosis Weyers Type, Acrofacial Dysostosis Nager Type, and Urinary Tract Infection in Children. Dr. Kinneman is currently accepting new patients.

      Advanced in Acrodysostosis
      Advanced in Acrodysostosis
      23213 Pacific Hwy S, 
      Kent, WA 
       (14.8 miles away)
      Languages Spoken:
      English, Castilian, Italian, Portuguese, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Matthew Blessing is a Pediatrics provider in Kent, Washington. Dr. Blessing is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Micrognathia, Acrofacial Dysostosis Weyers Type, Acrodysostosis, and Acrofacial Dysostosis Nager Type. Dr. Blessing is currently accepting new patients.

      Experienced in Acrodysostosis
      Experienced in Acrodysostosis

      Kaiser Permanente Lynnwood Medical Center

      20200 54th Ave W, 
      Lynnwood, WA 
       (14.5 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Deanna Dickerman is a Dermatologist in Lynnwood, Washington. Dr. Dickerman has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 2, Acrodysostosis, Basal Cell Skin Cancer, and Actinic Keratosis. Dr. Dickerman is currently accepting new patients.

      Showing 1-8 of 8

      Last Updated: 10/30/2025

      What is the definition of Acrodysostosis?

      Acrodysostosis is an extremely rare disorder that is present at birth (congenital). It leads to problems with the bones of the hands, feet, and nose, and intellectual disability.

      When should I see an Acrodysostosis doctor near Seattle, WA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Acrodysostosis doctor near Seattle, WA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Acrodysostosis doctors near Seattle, WA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Acrodysostosis doctors near Seattle, WA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Acrodysostosis doctor near Seattle, WA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrodysostosis doctor search results page. 

      Why is it important to get a second opinion from a different Acrodysostosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Acrodysostosis doctor near Seattle, WA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Acrodysostosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Acrodysostosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Acrodysostosis doctors near Seattle, WA?

      Look for the filter feature on the left side of the Acrodysostosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Acrodysostosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Acrodysostosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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