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    Last Updated: 05/01/2025

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    MediFind found 123 doctor with experience in AEC Syndrome. Of these, 87 are Advanced, 27 are Experienced and 9 are Distinguished.

    Location:
    123 providers found
    Advanced in AEC Syndrome
    Advanced in AEC Syndrome

    Osu Eye Physicians And Surgeons, LLC

    915 Olentangy River Rd, Fl 5, 
    Columbus, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Andrew Hendershot is an Ophthalmologist in Columbus, Ohio. Dr. Hendershot and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Keratoconus, Coloboma of Iris, Coloboma, Cataract, and Corneal Transplant. Dr. Hendershot is currently accepting new patients.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Naples, IT 

    Caterina Missero practices in Naples, Italy. Missero and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are AEC Syndrome, Split Hand Foot Malformation, Clouston Syndrome, and Ectodermal Dysplasias.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Naples, IT 

    Dario Antonini practices in Naples, Italy. Antonini and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. His top areas of expertise are AEC Syndrome, Squamous Cell Skin Carcinoma, Ectodermal Dysplasias, and Clouston Syndrome.

    Learn about our expert tiers
    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Nijmegen, GE, NL 

    Hans Van Bokhoven practices in Nijmegen, Netherlands. Van Bokhoven and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Crouzon Syndrome, AEC Syndrome, Lissencephaly, and X-Linked Retinal Dysplasia.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Nijmegen, GE, NL 

    Huiqing Zhou practices in Nijmegen, Netherlands. Zhou and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. Their top areas of expertise are EEC Syndrome, Split Hand Foot Malformation, AEC Syndrome, and Clouston Syndrome.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Max Von Laue Str. 7, 
    Frankfurt Am Main, HE, DE 

    Volker Dotsch practices in Frankfurt Am Main, Germany. Dotsch and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. His top areas of expertise are AEC Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Frankfurt Am Main, HE, DE 

    Christian Osterburg practices in Frankfurt Am Main, Germany. Osterburg and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. His top areas of expertise are AEC Syndrome, Split Hand Foot Malformation, Clouston Syndrome, and Ectodermal Dysplasias.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Naples, IT 

    Maria Mollo practices in Naples, Italy. Mollo and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are AEC Syndrome and Squamous Cell Skin Carcinoma.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Queen Victoria Road, 
    Newcastle Upon Tyne, ENG, GB 

    Jill Dixon practices in Newcastle Upon Tyne, United Kingdom. Dixon and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are AEC Syndrome, Acrofacial Dysostosis Catania Type, Bartsocas-Papas Syndrome, and Popliteal Pterygium Syndrome.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Naples, IT 

    Raffaele Ambrosio practices in Naples, Italy. Ambrosio and is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. His top areas of expertise are AEC Syndrome, Hypothyroidism, Basal Cell Skin Cancer, and Thyroid Cancer.

    Giovanni Corsello
    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Palermo, IT 

    Giovanni Corsello practices in Palermo, Italy. Corsello and is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Delayed Growth, Congenital Hypothyroidism, Hypothyroidism, and Syngnathia Cleft Palate.

    Yang D. Liu
    Advanced in AEC Syndrome
    Emergency Medicine | General Surgery
    Advanced in AEC Syndrome
    Emergency Medicine | General Surgery

    Rockford Emergency Physicians, LLC

    1401 E State St, 
    Rockford, IL 
    Languages Spoken:
    English

    Yang Liu is an Emergency Medicine specialist and a General Surgeon in Rockford, Illinois. Dr. Liu and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Triple-Negative Breast Cancer, Necrosis, Liver Cancer, Endoscopy, and Lithotripsy.

    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Ankara, TR 

    Pelin Kiper-Simsek practices in Ankara, Turkey. Kiper-Simsek and is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Chondrodystrophy, X-Linked Spondyloepiphyseal Dysplasia Tarda, Schwartz-Jampel Syndrome, and Brachydactyly Mononen Type.

    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Ankara, TR 

    Gulen Utine practices in Ankara, Turkey. Utine and is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. Their top areas of expertise are Camptodactyly Syndrome Guadalajara Type 2, Camptodactyly Syndrome Guadalajara Type 1, Camptodactyly Taurinuria, and Camptodactyly Fibrous Tissue Hyperplasia Skeletal Dysplasia.

    Advanced in AEC Syndrome
    Family Medicine
    Advanced in AEC Syndrome
    Family Medicine
    301 Cedar St, 
    Orofino, ID 
    Languages Spoken:
    English

    Phillip Petersen is a Family Medicine provider in Orofino, Idaho. Dr. Petersen and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Ectodermal Dysplasias, Naegeli-Franceschetti-Jadassohn Syndrome, Brown-Sequard Syndrome, and Zlotogora-Ogur Syndrome.

    Advanced in AEC Syndrome
    Hand Surgery | Orthopedics
    Advanced in AEC Syndrome
    Hand Surgery | Orthopedics

    Boston Orthopaedic And Spine LLC

    20 Guest St, Suite 225, 
    Brighton, MA 
    Languages Spoken:
    English, Korean, Spanish
    Accepting New Patients
    Offers Telehealth

    Jinsil Sung is a Hand Surgeon and an Orthopedics provider in Brighton, Massachusetts. Dr. Sung and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Their top areas of expertise are Carpal Tunnel Syndrome, Zlotogora-Ogur Syndrome, EEC Syndrome, and AEC Syndrome. Dr. Sung is currently accepting new patients.

    Advanced in AEC Syndrome
    Family Medicine
    Advanced in AEC Syndrome
    Family Medicine

    White River Health System, Inc.

    409 Virginia Dr, 
    Batesville, AR 
    Experience:
    43+ years
    Languages Spoken:
    English
    Accepting New Patients

    Andy Davidson is a Family Medicine provider in Batesville, Arkansas. Dr. Davidson has been practicing medicine for over 43 years and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Urinary Tract Infection in Children, Thrombocytopenia, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Davidson is currently accepting new patients.

    Advanced in AEC Syndrome
    Otolaryngology
    Advanced in AEC Syndrome
    Otolaryngology

    Washington University

    4921 Parkview Pl, 11a, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Patrik Pipkorn is an Otolaryngologist in Saint Louis, Missouri. Dr. Pipkorn and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Laryngeal Cancer, Head and Neck Squamous Cell Carcinoma (HNSCC), Throat Cancer, Laryngectomy, and Gastrostomy. Dr. Pipkorn is currently accepting new patients.

    Advanced in AEC Syndrome
    Medical Genetics | Pediatrics
    Advanced in AEC Syndrome
    Medical Genetics | Pediatrics

    State University Of Iowa

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Safina is a Medical Genetics specialist and a Pediatrics provider in Iowa City, Iowa. Dr. Safina and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Split Hand Foot Malformation, AEC Syndrome, Nicolaides-Baraitser Syndrome, and Aase Syndrome. Dr. Safina is currently accepting new patients.

    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Rabat, MA 

    Abdelaziz Sefiani practices in Rabat, Morocco. Sefiani and is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Bosma Arhinia Microphthalmia Syndrome, Choanal Atresia, Brachydactyly Type B, and AEC Syndrome.

    Showing 1-20 of 123

    Last Updated: 05/01/2025

    What is the definition of AEC Syndrome?

    Ankyloblepharon-ectodermal defects-cleft lip/palate syndrome (AEC syndrome) is a form of ectodermal dysplasia, a group of conditions characterized by abnormal development of ectodermal tissues including the skin, hair, nails, teeth, and sweat glands. The most common feature is missing patches of skin (erosions) on the scalp, neck, hands, and feet. The skin erosions can lead to infection, scarring, and hair loss. Other features include changes in skin coloring; misshapen or absent fingernails and toenails; malformed or missing teeth; increased sensitivity to heat; hearing loss; cleft lip and/or palate; and other facial abnormalities. This condition is caused by genetic changes in the TP63 gene and is inherited in an autosomal dominant fashion. Rapp-Hodgkin syndrome was classified as a separate disorder until it was discovered that it result from genetic changes in the same part of the TP63 gene. Rapp-Hodgkin syndrome and AEC syndrome are considered to be part of the same disease spectrum.

    When should I see an AEC Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an AEC Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank AEC Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by AEC Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an AEC Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the AEC Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different AEC Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an AEC Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my AEC Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my AEC Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female AEC Syndrome doctors near me?

    Look for the filter feature on the left side of the AEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an AEC Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the AEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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